http://rett.tv/video/Sindrome-de-rett-1-pasos-de-And Andrea with Rett Syndrome walking at 14 months http://www.youtube.com/v/lXkFpLZ2Gdw http://s3.amazonaws.com/magnifythumbs/H80XXT2NP8PHX3TY.jpg <a href="http://rett.tv/video/Sindrome-de-rett-1-pasos-de-And"><img src="http://s3.amazonaws.com/magnifythumbs/H80XXT2NP8PHX3TY.jpg" align="right" border="0"></a> FelipePinilla wrote: Son los 1� Pasos de Andrea,ella tenia 14 meses y eran sus primeros pasitos todavia no sabiamos que tenia el S�ndrome These are the steps 1 Andrea, she was 14 months and his first steps were still unaware that she had the syndrome 1 1 2010-03-06T10:04:17+05:00 176 http://rett.tv/video/Evolucin-del-Sndrome-de-Rett-av Evolution of Rett syndrome from childhood http://www.youtube.com/v/CocyY4yxob4 http://s3.amazonaws.com/magnifythumbs/T20XV11H727CBB0Y.jpg <a href="http://rett.tv/video/Evolucin-del-Sndrome-de-Rett-av"><img src="http://s3.amazonaws.com/magnifythumbs/T20XV11H727CBB0Y.jpg" align="right" border="0"></a> rettspain wrote: Evoluci�n del S�ndrome de Rett desde la infancia. El S�ndrome de Rett es un grave trastorno del desarrollo que cursa normalmente en mujeres. Evolution of Rett syndrome from childhood. Rett Syndrome is a severe developmental disorder that presents usually in women. Evoluci Evoluci 2010-03-06T10:02:13+05:00 248 http://rett.tv/video/Police-Arrest-Uncle-In-Girls-De Uncle arrested in girl's death http://eplayer.clipsyndicate.com/cs_api/get_swf?swfHome=eplayer.clipsyndicate.com&va_id=1314379 http://s3.amazonaws.com/magnifythumbs/RXRSTT2HLQG9LTP8.jpg <a href="http://rett.tv/video/Police-Arrest-Uncle-In-Girls-De"><img src="http://s3.amazonaws.com/magnifythumbs/RXRSTT2HLQG9LTP8.jpg" align="right" border="0"></a> KPHO Phoenix, Arizona wrote: Police arrest Leonard Orta Jr. in connection with the death of his 5-year-old niece who had Rett's syndrome. 2010-03-04T05:48:11+05:00 http://rett.tv/video/situps5-MOV Abby's Physical Therapy http://www.youtube.com/v/ou5YWSTiJ-E http://s3.amazonaws.com/magnifythumbs/13HRMR2CF6W4N24F.jpg <a href="http://rett.tv/video/situps5-MOV"><img src="http://s3.amazonaws.com/magnifythumbs/13HRMR2CF6W4N24F.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby. 5 years old. Rett Syndrome. PT to try to maintain Abby's core and back strength Abby, V, rett Abby V rett 2010-03-04T05:43:57+05:00 69 http://rett.tv/video/Associazione-ONLUS-Un-volo-pe-2 Rett syndrome, Anne Malatesta and therapies in America http://www.youtube.com/v/JFxeqHLgjTI http://s3.amazonaws.com/magnifythumbs/3FFBM10W3YJ4GX9D.jpg <a href="http://rett.tv/video/Associazione-ONLUS-Un-volo-pe-2"><img src="http://s3.amazonaws.com/magnifythumbs/3FFBM10W3YJ4GX9D.jpg" align="right" border="0"></a> ellysing84 wrote: sindrome di Rett, Anna Malatesta, terapie in America sindrome, di, rett sindrome di rett 2010-03-01T10:12:28+05:00 177 http://rett.tv/video/I-need-help-for-my-daughter-Rob Need help for my daughter Robyn with Rett Syndrome http://www.youtube.com/v/8Cs5yF_Pyeo http://s3.amazonaws.com/magnifythumbs/Y5QJV81YMTPX2XYN.jpg <a href="http://rett.tv/video/I-need-help-for-my-daughter-Rob"><img src="http://s3.amazonaws.com/magnifythumbs/Y5QJV81YMTPX2XYN.jpg" align="right" border="0"></a> nicnak1181 wrote: This is my daughter Robyn she has Rett Syndrome she has been doing theses movements for about 5 mths is it epileptic activity or Retts manorisms... She has recently been prescribed Buspirone for breathing Dystonia, but it does seem to be working SDV, 0051 SDV 0051 2010-03-01T10:06:21+05:00 140 http://rett.tv/video/Rett-Syndrome-Importance-of-Fam Rett Syndrome: Importance of Families to Research http://www.youtube.com/v/xFRrFgbTJB0 http://s3.amazonaws.com/magnifythumbs/MPPSNR2Q3WND51V4.jpg <a href="http://rett.tv/video/Rett-Syndrome-Importance-of-Fam"><img src="http://s3.amazonaws.com/magnifythumbs/MPPSNR2Q3WND51V4.jpg" align="right" border="0"></a> IRSFoundation wrote: international, families, rett, research, irsf international families rett research irsf 2010-02-26T09:09:26+05:00 135 http://rett.tv/video/Kelly-wmv Kelly.wmv http://www.youtube.com/v/pE1-obPuhYM http://s3.amazonaws.com/magnifythumbs/PB1MNJ13XRZDF65C.jpg <a href="http://rett.tv/video/Kelly-wmv"><img src="http://s3.amazonaws.com/magnifythumbs/PB1MNJ13XRZDF65C.jpg" align="right" border="0"></a> bgroton43 wrote: In memory of our beautiful daughter, Kelly. She passed away 9/14/09 from complications of Rett Syndrome. Kelly Kelly 2010-02-26T09:09:37+05:00 628 http://rett.tv/video/my-wish-wmv my wish.wmv http://www.youtube.com/v/Vcxg-BOb2Lg http://s3.amazonaws.com/magnifythumbs/FNPGKY1B4DSD66PV.jpg <a href="http://rett.tv/video/my-wish-wmv"><img src="http://s3.amazonaws.com/magnifythumbs/FNPGKY1B4DSD66PV.jpg" align="right" border="0"></a> hckauffman76 wrote: A look into our daughter's journey with Rett Syndrome rett rett 2010-02-26T09:09:34+05:00 214 http://rett.tv/video/Alexis-Basile-CDKL5-Atypical-Re Alexis Basile CDKL5, Atypical Rett Syndrome http://www.youtube.com/v/N22di7Ib6xI http://s3.amazonaws.com/magnifythumbs/G3QRD52DG0XKS3N2.jpg <a href="http://rett.tv/video/Alexis-Basile-CDKL5-Atypical-Re"><img src="http://s3.amazonaws.com/magnifythumbs/G3QRD52DG0XKS3N2.jpg" align="right" border="0"></a> liser1976 wrote: Alexis Basile CDKL5, Atypical Rett Syndrome. 1st Fundraiser June 12, 2008 8.19 Alexis Alexis 2010-02-26T09:09:42+05:00 150 http://rett.tv/video/retts-syndrome-biology rett's syndrome biology http://www.youtube.com/v/LVhmzH39Ruk http://s3.amazonaws.com/magnifythumbs/WZ44TD23TJ3SJYZG.jpg <a href="http://rett.tv/video/retts-syndrome-biology"><img src="http://s3.amazonaws.com/magnifythumbs/WZ44TD23TJ3SJYZG.jpg" align="right" border="0"></a> fordyates554660 wrote: ford biology ford, biology ford biology 2010-02-26T09:10:09+05:00 70 http://rett.tv/video/Rett-Syndrome-Clint-Black-Resea Rett Syndrome: Clint Black Research to Reality Message http://www.youtube.com/v/tXTrGxyy50c http://s3.amazonaws.com/magnifythumbs/VR2GBH16DGKBQBTH.jpg <a href="http://rett.tv/video/Rett-Syndrome-Clint-Black-Resea"><img src="http://s3.amazonaws.com/magnifythumbs/VR2GBH16DGKBQBTH.jpg" align="right" border="0"></a> IRSFoundation wrote: rett, reality, research, clint, irsf, black rett reality research clint irsf black 2010-02-26T09:09:45+05:00 45 http://rett.tv/video/A-Mothers-Mission-2 A Mother’s Mission http://www.howcast.com/flash/howcast_player.swf?file=1095602501&theme=black http://s3.amazonaws.com/magnifythumbs/JX8KQY1VTXQBYY7T.jpg <a href="http://rett.tv/video/A-Mothers-Mission-2"><img src="http://s3.amazonaws.com/magnifythumbs/JX8KQY1VTXQBYY7T.jpg" align="right" border="0"></a> parents wrote: Since her daughter was diagnosed with Rett Syndrome 4 years ago, Ingrid Harding has fought to spread awareness & raise funds to research this devastating neurological disorder. Parents TVs Anne Ebeling has her familys story.&#32;&#32; Author: youtube rett, kids, tv, children, sick, parenting, child, parents rett kids tv children sick parenting child parents 2010-02-26T09:12:16+05:00 http://rett.tv/video/Rett-Syndrome-Clint-Black-PSA Clint Black Rett Syndrome Public Service Announcement http://www.youtube.com/v/gg-kM1_f2gg http://s3.amazonaws.com/magnifythumbs/BLRMLP10GK5DXNLW.jpg <a href="http://rett.tv/video/Rett-Syndrome-Clint-Black-PSA"><img src="http://s3.amazonaws.com/magnifythumbs/BLRMLP10GK5DXNLW.jpg" align="right" border="0"></a> Country music singer Clint Black and his brother Kevin (who lost his daughter, Cortney, to Rett syndrome several years ago) have been outstanding advocates and fundraisers for the International Rett Syndrome Foundation. international, reality, rett, clint, research, black international reality rett clint research black 2010-02-26T09:10:15+05:00 64 http://rett.tv/video/Rett-Syndrome-Together-We-Are-B Rett Syndrome: Together We Are Better http://www.youtube.com/v/XKYk-SJ0bS8 http://s3.amazonaws.com/magnifythumbs/W1JKXH30WXRL4SMJ.jpg <a href="http://rett.tv/video/Rett-Syndrome-Together-We-Are-B"><img src="http://s3.amazonaws.com/magnifythumbs/W1JKXH30WXRL4SMJ.jpg" align="right" border="0"></a> IRSFoundation wrote: Together, Better, international, We, rett, Are, irsf Together Better international We rett Are irsf 2010-02-26T09:10:54+05:00 295 http://rett.tv/video/Rett-Syndrome-Heros-Path Rett Syndrome: Heros Path http://www.youtube.com/v/RTQq_HtIO9E http://s3.amazonaws.com/magnifythumbs/KFCPV52WXBSHYR3P.jpg <a href="http://rett.tv/video/Rett-Syndrome-Heros-Path"><img src="http://s3.amazonaws.com/magnifythumbs/KFCPV52WXBSHYR3P.jpg" align="right" border="0"></a> IRSFoundation wrote: heros, irsf, path, international, rett heros irsf path international rett 2010-02-26T09:10:58+05:00 329 http://rett.tv/video/january-19-2010-young-girl-with Doctor discusses Rett syndrome patient http://www.youtube.com/v/Cw7b0th_Db0 http://s3.amazonaws.com/magnifythumbs/YCJXLS2N0RXGZGZ1.jpg <a href="http://rett.tv/video/january-19-2010-young-girl-with"><img src="http://s3.amazonaws.com/magnifythumbs/YCJXLS2N0RXGZGZ1.jpg" align="right" border="0"></a> bryanmccolgan published this on YouTube on 1/27/10. Rett.tv note: While this is an interesting perspective, note that he incorrectly refers to Rett Syndrome as a "neuro-degenerative" disorder rather than "neuro-developmental". 1.56 doctor doctor 2010-01-29T13:49:05+05:00 280 http://rett.tv/video/SINDROME-DI-RETT-ANNA-DICEMBRE Anna - Texas Children's Hospital Dec 2009 http://www.youtube.com/v/-PeYUcyo4qU http://s3.amazonaws.com/magnifythumbs/ZSXKVZ1ZWQS57B6N.jpg <a href="http://rett.tv/video/SINDROME-DI-RETT-ANNA-DICEMBRE"><img src="http://s3.amazonaws.com/magnifythumbs/ZSXKVZ1ZWQS57B6N.jpg" align="right" border="0"></a> ricciuforever wrote: Sito della ONLUS: www.unvoloperanna.it Video report di Anna al Texas Children's Hospital, centro specializzato nella terapia per sindrome di Rett sindrome, rett sindrome rett 2010-01-22T11:20:42+05:00 373 http://rett.tv/video/sindrome-di-rett-ELISA Elisa - Sindrome di Rett http://www.youtube.com/v/rfZ8QJxsa-Q http://s3.amazonaws.com/magnifythumbs/H7H3V52TL47G7G10.jpg <a href="http://rett.tv/video/sindrome-di-rett-ELISA"><img src="http://s3.amazonaws.com/magnifythumbs/H7H3V52TL47G7G10.jpg" align="right" border="0"></a> 85leone wrote: elisa, foto elisa foto 2010-01-22T11:22:20+05:00 252 http://rett.tv/video/American-Idol-9-Angela-Martin-i Rett Mom on American Idol http://www.youtube.com/v/uprzzC7I7Zs http://s3.amazonaws.com/magnifythumbs/QQ1J7V189G13CHY1.jpg <a href="http://rett.tv/video/American-Idol-9-Angela-Martin-i"><img src="http://s3.amazonaws.com/magnifythumbs/QQ1J7V189G13CHY1.jpg" align="right" border="0"></a> Is the third time the charm for Angela Martin on "American Idol?" After two failed attempts at "American Idol," losing her father, dealing with a daughter with Rett Syndrome and then having her mother go missing this past Christmas, one has to think Angela Martin has some good things coming her way this time around on "Idol." We liked her audition tonight and certainly feel for the poor girl, so it'd be nice to see something go her way. We don't normally love "Idol" sob stories but man... ... 2010-01-22T11:04:13+05:00 214 http://rett.tv/video/A-Mothers-Mission A Mother's Mission http://www.youtube.com/v/mJuwnz7n6jY http://s3.amazonaws.com/magnifythumbs/2W5Y7D0H4DJXQHB0.jpg <a href="http://rett.tv/video/A-Mothers-Mission"><img src="http://s3.amazonaws.com/magnifythumbs/2W5Y7D0H4DJXQHB0.jpg" align="right" border="0"></a> parents wrote: Since her daughter was diagnosed with Rett Syndrome 4 years ago, Ingrid Harding has fought to spread awareness & raise funds to research this devastating neurological disorder. Parents TVs Anne Ebeling has her familys story. ... "Rett Syndrome" children child kids sick "parents tv" parenting 2010-01-17T11:21:12+05:00 259 http://rett.tv/video/Rett-Syndrome-OSSA-Campaign Rett Syndrome / OSSA Campaign http://www.youtube.com/v/-PvAuBtZKOc http://s3.amazonaws.com/magnifythumbs/MYQDBZ24F6V9K4VH.jpg <a href="http://rett.tv/video/Rett-Syndrome-OSSA-Campaign"><img src="http://s3.amazonaws.com/magnifythumbs/MYQDBZ24F6V9K4VH.jpg" align="right" border="0"></a> kallibell6 wrote: A campaign to gain Oprah Winfrey's attention began summer of 2009. Thousands of letters pleading her to help raise Rett Syndrome awareness & funding will be delivered to her studio Summer 2010. Rett Syndrome advocacy & awareness will help raise funding desperately needed to continue current research. Mice have been cured.....Now it is our daughters turn!! This video was created with footage from our local fundraiser honoring "Silent Angels" who are patiently waiting for us to help them fly ... 2010-01-17T11:21:22+05:00 254 http://rett.tv/video/Itu-2007mpeg4002-mp4 Rett Girl Dancing http://www.youtube.com/v/drXxiWAX1E8 http://s3.amazonaws.com/magnifythumbs/PQD0972PHLRWV7QP.jpg <a href="http://rett.tv/video/Itu-2007mpeg4002-mp4"><img src="http://s3.amazonaws.com/magnifythumbs/PQD0972PHLRWV7QP.jpg" align="right" border="0"></a> pcury1963 wrote: Apresenta��o de dan�a de Isabela, portadora de Sindrome de Rett com o coreografo Carlos Faustini. ... "Sindrome de Rett" "Rett Syndrome" Dan�a "special needs" "necessidades especiais" Sindrome, Dan, de, rett Sindrome Dan de rett 2010-01-17T11:23:00+05:00 312 http://rett.tv/video/Running-But-she-has-Rett-Syndro Running? But she has Rett Syndrome http://www.youtube.com/v/0cxHMzPjZfA http://s3.amazonaws.com/magnifythumbs/FDWPWL39JJP3P1DZ.jpg <a href="http://rett.tv/video/Running-But-she-has-Rett-Syndro"><img src="http://s3.amazonaws.com/magnifythumbs/FDWPWL39JJP3P1DZ.jpg" align="right" border="0"></a> CtyExaminer wrote: Rett Syndrome is...One page of a prognosis cannot tell you what WILL happen, only what might happen or what usually happens or what could happen. Our geneticist told us that our daughter would NEVER walk. (She walked at 23 months). Today she runs. She could lose it all tomorrow. But today she runs. 2010-01-12T08:23:21+05:00 43 http://rett.tv/video/musicoterapia-sndrome-de-Rett musicoterapia - s�ndrome de Rett http://www.youtube.com/v/yTzBvK-9HSo http://s3.amazonaws.com/magnifythumbs/7XBVFP2DBLX0WSTV.jpg <a href="http://rett.tv/video/musicoterapia-sndrome-de-Rett"><img src="http://s3.amazonaws.com/magnifythumbs/7XBVFP2DBLX0WSTV.jpg" align="right" border="0"></a> rettargentina wrote: Promover intencion comunicativa, Aumentar tiempos de atenci�n, Uso m�s intencional de sus manos www.rettargentina.com.ar 2010-01-12T05:59:50+05:00 155 http://rett.tv/video/The-road-begins The road begins http://www.youtube.com/v/fyyUe-WjeNY http://s3.amazonaws.com/magnifythumbs/HJ64F839H2LY5NCB.jpg <a href="http://rett.tv/video/The-road-begins"><img src="http://s3.amazonaws.com/magnifythumbs/HJ64F839H2LY5NCB.jpg" align="right" border="0"></a> CtyExaminer wrote: Rett Syndrome is...We knew nothing of Rett Syndrome when our first child was born in 2002. In December 2003 her MECP2 blood test came back "affected" and our world was torn apart. It is amazing looking back how little there was 'out there' about Rett Syndrome. A few websites, virtually nothing in libraries, and almost no Drs office knew more than we did. We were groping in the dark and in our grief and fear of the unknown our family almost split apart. Our hearts were shattered. We decided ... rett rett 2010-01-12T08:22:44+05:00 299 http://rett.tv/video/taylor-smiths-story-rett-syndro taylor smiths story rett syndrome http://www.youtube.com/v/Osne01JM2eU http://s3.amazonaws.com/magnifythumbs/4FJPCR39HT4JFBWN.jpg <a href="http://rett.tv/video/taylor-smiths-story-rett-syndro"><img src="http://s3.amazonaws.com/magnifythumbs/4FJPCR39HT4JFBWN.jpg" align="right" border="0"></a> TheClose555 wrote: rett syndrome unlimited unlimited 2010-01-12T08:23:10+05:00 212 http://rett.tv/video/Happy-Birthday-Baby Happy Birthday Baby http://www.youtube.com/v/bcuVF0qeoZQ http://s3.amazonaws.com/magnifythumbs/FWM81R39J5DTK64T.jpg <a href="http://rett.tv/video/Happy-Birthday-Baby"><img src="http://s3.amazonaws.com/magnifythumbs/FWM81R39J5DTK64T.jpg" align="right" border="0"></a> CtyExaminer wrote: Rett Syndrome is...Birthdays can be hard as we try to discern what our daughter wants and include the people and foods and celebrations she wants. We communicate with her to find out her preferences through eye-gaze (choices), smiles, and a Dynavox communication machine. It can be hard to choose gifts that she likes and can use - - and keep her sibs from taking them over. Sometimes we get it right! ... "Rett Syndrome" RTT "Life with Rett Syndrome" Retts Rhetts "Rett's Disorder" ... 2010-01-12T08:23:15+05:00 44 http://rett.tv/video/The-Seven-Sydneys-of-Rett-Syndr The Seven Sydney's of Rett Syndrome http://www.youtube.com/v/OjC1MVBVlPs http://s3.amazonaws.com/magnifythumbs/9V54ZH39JWYDSWP4.jpg <a href="http://rett.tv/video/The-Seven-Sydneys-of-Rett-Syndr"><img src="http://s3.amazonaws.com/magnifythumbs/9V54ZH39JWYDSWP4.jpg" align="right" border="0"></a> mabsbb1 wrote: Rett Syndrome is considered a rare disorder- Seven of these special girls share the same first name; Sydney. Sydney Sydney 2010-01-12T08:23:23+05:00 264 http://rett.tv/video/ECI-in-home-Physical-Therapy-Se ECI in-home Physical Therapy Services (Early Childhood Intervention for Rett Syndrome) http://www.youtube.com/v/GVa32SFw7To http://s3.amazonaws.com/magnifythumbs/1V3QQH39KMH01L6G.jpg <a href="http://rett.tv/video/ECI-in-home-Physical-Therapy-Se"><img src="http://s3.amazonaws.com/magnifythumbs/1V3QQH39KMH01L6G.jpg" align="right" border="0"></a> CtyExaminer wrote: Rett Syndrome is...one Dr. told us we could try OT/PT/ST but it wouldn't do any good, she would lose it all anyway. We had Early Childhood Intervention through Easter Seals of Center Texas. OT, PT, Speech, and psychological support services weekly. These intervention services can begin at birth and continue until children turn three. This is how it is, in your home, in the midst of family life, babies underfoot:) Our daughter had recently started to walk and was working on sit to stand ... 2010-01-12T08:24:24+05:00 60 http://rett.tv/video/Rett-Syndrome-Research-Trust-Bl Rett Syndrome Research (Trust Blog) http://www.youtube.com/v/8hbT7Sb3rpI http://s3.amazonaws.com/magnifythumbs/X7D36X39K86PXQY9.jpg <a href="http://rett.tv/video/Rett-Syndrome-Research-Trust-Bl"><img src="http://s3.amazonaws.com/magnifythumbs/X7D36X39K86PXQY9.jpg" align="right" border="0"></a> ikkw wrote: filmpje over Rett Syndroom, dit syndroom is nog steeds onbehandelbaar, geld is nodig voor onderzoek. 2010-01-12T08:23:51+05:00 95 http://rett.tv/video/Rett-Syndrome-brain-development Rett Syndrome brain development http://www.youtube.com/v/bUZyErJeyfM http://s3.amazonaws.com/magnifythumbs/V87FDY226FXXX320.jpg <a href="http://rett.tv/video/Rett-Syndrome-brain-development"><img src="http://s3.amazonaws.com/magnifythumbs/V87FDY226FXXX320.jpg" align="right" border="0"></a> Rett Center at Montefiore Sep, 2009 Parent Gathering 2009-12-13T12:01:12+05:00 566 http://rett.tv/video/Pia-watching-music-video Pia watching music video http://www.youtube.com/v/3u_exmfeVAM http://s3.amazonaws.com/magnifythumbs/VB17030YK54KBH69.jpg <a href="http://rett.tv/video/Pia-watching-music-video"><img src="http://s3.amazonaws.com/magnifythumbs/VB17030YK54KBH69.jpg" align="right" border="0"></a> kpad2 wrote: 4 year-old Pia with Rett Syndrome watching a Japanese boy band's concert DVD. You can see her body gets up and starts moving as soon as the song starts. She taps her hands (even more than her usual stereotypical hand movements) and kicks her legs in tune with the music. She loves music.....and the boys! ４歳のピアが KAT-TUNのコンサートDVDを見る様子。 曲が始まるまではニコニコと声を上げながら（なかなか声を出すことのない静かな子なんですが）画面に魅入るピア、歌が始まった瞬間体が起き上がり動きだし rett rett 2009-12-13T11:17:00+05:00 264 http://rett.tv/video/Telethon-Sindrome-di-Rett-la-st Telethon : Sindrome di Rett "la storia di Anna" commovente http://www.youtube.com/v/DohQ1qqT4TQ http://s3.amazonaws.com/magnifythumbs/CRQC2H2YK4YNLS72.jpg <a href="http://rett.tv/video/Telethon-Sindrome-di-Rett-la-st"><img src="http://s3.amazonaws.com/magnifythumbs/CRQC2H2YK4YNLS72.jpg" align="right" border="0"></a> iacesat wrote: La sindrome di Rett è una grave patologia neurologica, che colpisce prevalentemente soggetti di sesso femminile. La malattia è congenita, anche se non subito evidente, e si manifesta durante il secondo anno di vita e comunque entro i primi quattro anni. Colpisce circa una persona su 10.000. Si possono osservare gravi ritardi nell'acquisizione del linguaggio e nell'acquisizione della coordinazione motoria. Spesso la sindrome è associata a ritardo mentale grave o gravissimo. La perdita delle ... 2009-12-13T11:19:10+05:00 405 http://rett.tv/video/IsabelaDP2-mp4 Isabela_DP~2.mp4 http://www.youtube.com/v/OroA-2rQS2M http://s3.amazonaws.com/magnifythumbs/1LT4G01M3HHDV9RM.jpg <a href="http://rett.tv/video/IsabelaDP2-mp4"><img src="http://s3.amazonaws.com/magnifythumbs/1LT4G01M3HHDV9RM.jpg" align="right" border="0"></a> pcury1963 wrote: Isabela, portadora de Sindrome de Rett em coreografia de Carlos Faustini. ... "sindrome de rett" "rett syndrome" sindrome, de, rett sindrome de rett 2009-12-09T08:21:15+05:00 646 http://rett.tv/video/Sndrome-de-Rett-7 Síndrome de Rett http://www.youtube.com/v/u0MN-ymbeF4 http://s3.amazonaws.com/magnifythumbs/X9B84C18VCJ5ZXVP.jpg <a href="http://rett.tv/video/Sndrome-de-Rett-7"><img src="http://s3.amazonaws.com/magnifythumbs/X9B84C18VCJ5ZXVP.jpg" align="right" border="0"></a> erien92 wrote: S S 2009-12-09T08:17:22+05:00 80 http://rett.tv/video/Sindrome-de-Rett-8 Sindrome de Rett http://www.youtube.com/v/-uojiBukZvI http://s3.amazonaws.com/magnifythumbs/XQ1C4W3R3S3Q354D.jpg <a href="http://rett.tv/video/Sindrome-de-Rett-8"><img src="http://s3.amazonaws.com/magnifythumbs/XQ1C4W3R3S3Q354D.jpg" align="right" border="0"></a> FelipePinilla wrote: Primer año de Andrea con su hermana melliza Judit 2009-12-09T08:17:27+05:00 261 http://rett.tv/video/Associazione-ONLUS-Un-volo-per Associazione ONLUS Un volo per Anna, Sindrome di Rett http://www.youtube.com/v/8ajR-vXsrRc http://s3.amazonaws.com/magnifythumbs/FKFTL40V6PGTGTDM.jpg <a href="http://rett.tv/video/Associazione-ONLUS-Un-volo-per"><img src="http://s3.amazonaws.com/magnifythumbs/FKFTL40V6PGTGTDM.jpg" align="right" border="0"></a> ellysing84 wrote: Sindrome di Rett, www.unvoloperanna.it Sindrome, di, rett Sindrome di rett 2009-12-09T08:20:14+05:00 72 http://rett.tv/video/Carolina-3 Carolina http://www.youtube.com/v/AMpLURlFEm8 http://s3.amazonaws.com/magnifythumbs/6Y6YH130Z5PQNSTQ.jpg <a href="http://rett.tv/video/Carolina-3"><img src="http://s3.amazonaws.com/magnifythumbs/6Y6YH130Z5PQNSTQ.jpg" align="right" border="0"></a> Telethonitalia wrote: www.telethon.it - Carolina ha 10 anni ed è affetta da Sindrome di Rett. ... Telethon "malattie genetiche" "sindrome di rett" cortometraggio 2009-12-09T08:18:56+05:00 325 http://rett.tv/video/Donning-Costumes-to-Help-Find-a Donning Costumes to Help Find a Cure for Rett Syndrome http://xml.truveo.com/eb?i=V3814589 http://s3.amazonaws.com/magnifythumbs/3QKJP1188GCLTR0G.jpg <a href="http://rett.tv/video/Donning-Costumes-to-Help-Find-a"><img src="http://s3.amazonaws.com/magnifythumbs/3QKJP1188GCLTR0G.jpg" align="right" border="0"></a> NBC Universal wrote: Donning costumes to help find a cure for Rett Syndrome -- that's the goal behind this Monster Bash benefit that's happening in Carlsbad. 2009-11-16T04:47:46+05:00 http://rett.tv/video/Sndrome-de-Rett-Entrevista Síndrome de Rett (Entrevista) http://www.dailymotion.com/swf/xaydls http://s3.amazonaws.com/magnifythumbs/KP72WX0PJG7FXNXH.jpg <a href="http://rett.tv/video/Sndrome-de-Rett-Entrevista"><img src="http://s3.amazonaws.com/magnifythumbs/KP72WX0PJG7FXNXH.jpg" align="right" border="0"></a> raulespert wrote: El síndrome de Rett es una grave patología neurológica, que afecta únicamente a sujetos del sexo femenino. La enfermedad es congénita, aunque no es evidente en un primer momento, y se manifiesta durante el segundo año de vida y, en todo caso, dentro de los 4 primeros años. Afecta aproximadamente a 1 persona por cada 10000. Pueden observarse graves retrasos en la adquisición del lenguaje y en la adquisición de la coordinación motriz. A menudo, está asociado con retraso mental grave o leve. La pérdida de las capacidades es por lo general persistente y progresiva. El síndrome de Rett provoca graves discapacidades a muchos niveles, causando al enfermo ser dependiente de los demás para toda la vida. Toma su nombre de Andreas Rett, el profesor que primero la describió y la estudio, en 1966. rett rett 2009-12-07T04:43:46+05:00 470 http://rett.tv/video/Rett-Syndrome-first-dose-of-gly Rett Syndrome-first dose of glycopyrolate and valproic acid-small seizure http://www.youtube.com/v/-coYQMSLHq8 http://s3.amazonaws.com/magnifythumbs/KG3BLR2PY2H9Z789.jpg <a href="http://rett.tv/video/Rett-Syndrome-first-dose-of-gly"><img src="http://s3.amazonaws.com/magnifythumbs/KG3BLR2PY2H9Z789.jpg" align="right" border="0"></a> 6739913 wrote: Brianna is 8 years old with Rett Sydrome. In this video we are noticing that 15 min after the glycopyrolate it given she seems very "busy" cant seem to focus on one perticular thing. Breathing is very heavy and deep. She seems confused or overwhelmed by whats going on around her. This is not her usually behavior. rett, seizures, glycopyrolate rett seizures glycopyrolate 2009-11-16T04:49:13+05:00 114 http://rett.tv/video/La-Vie-Selon-Noemie-dans-les-Ma "La Vie Selon Noemie" dans les Maternelles de France 5 le 15-10-2009 http://www.youtube.com/v/FZZuuIChKyw http://s3.amazonaws.com/magnifythumbs/FRM6ZC1LG3LPZLZY.jpg <a href="http://rett.tv/video/La-Vie-Selon-Noemie-dans-les-Ma"><img src="http://s3.amazonaws.com/magnifythumbs/FRM6ZC1LG3LPZLZY.jpg" align="right" border="0"></a> LaVieSelonNoemie wrote: Présentation du site de l'association "La Vie selon Noémie" dans l'émission 'Les Maternelles' de france 5 le 15/10/2009. C'est Emma Rota dans sa rubrique 'Net & Clair" qui a fait un zoom sur l'association pour Noémie qui combat la maladie du Syndrome de Rett. ... Rett syndrome noemie maternelles france5 la vie selon 2009-11-23T07:04:58+05:00 395 http://rett.tv/video/Typical-Rett-Syndrome-Hand-Wrin Typical Rett Syndrome Hand Wringing http://www.youtube.com/v/53k1EsP5D8k http://s3.amazonaws.com/magnifythumbs/R09S7H0JKBFYXMN0.jpg <a href="http://rett.tv/video/Typical-Rett-Syndrome-Hand-Wrin"><img src="http://s3.amazonaws.com/magnifythumbs/R09S7H0JKBFYXMN0.jpg" align="right" border="0"></a> 6739913 wrote: rett, hand, wringing rett hand wringing 2009-11-23T07:05:14+05:00 61 http://rett.tv/video/Hersenstamonderzoek-Rett-Syndom Hersenstamonderzoek Rett Syndome http://www.youtube.com/v/GqIQiIN0zDQ http://s3.amazonaws.com/magnifythumbs/5KWNQY28BG3X0GW6.jpg <a href="http://rett.tv/video/Hersenstamonderzoek-Rett-Syndom"><img src="http://s3.amazonaws.com/magnifythumbs/5KWNQY28BG3X0GW6.jpg" align="right" border="0"></a> Rettsyndroom wrote: Stichting Terre helpt kinderen met het syndroom van Rett (Rett syndrome). Kijk op www.stichtingterre.nl! 2009-11-16T04:49:25+05:00 208 http://rett.tv/video/Life-with-Rett-Syndrome-Melody Life with Rett Syndrome- Melody Ballard http://www.youtube.com/v/kUhm0nkw47Y http://s3.amazonaws.com/magnifythumbs/WT9X6S3GR3B571GQ.jpg <a href="http://rett.tv/video/Life-with-Rett-Syndrome-Melody"><img src="http://s3.amazonaws.com/magnifythumbs/WT9X6S3GR3B571GQ.jpg" align="right" border="0"></a> kazzMarie wrote: My two year old Daughter Melody's daily struggles every day with Rett Syndrome 2009-11-16T04:48:51+05:00 253 http://rett.tv/video/International-Rett-Syndrome-Fou International Rett Syndrome Foundation http://www.youtube.com/v/qZS6gQBLeog http://s3.amazonaws.com/magnifythumbs/1TS7073NGNGQLBFL.jpg <a href="http://rett.tv/video/International-Rett-Syndrome-Fou"><img src="http://s3.amazonaws.com/magnifythumbs/1TS7073NGNGQLBFL.jpg" align="right" border="0"></a> socalrettmom wrote: International, rett International rett 2009-11-16T04:49:09+05:00 295 http://rett.tv/video/Rett-Syndrome-Research-Trust-PS Rett Syndrome Research Trust PSA http://www.youtube.com/v/H9E-4GPU-Gc http://s3.amazonaws.com/magnifythumbs/RHGMJ50FH0VN1L0M.jpg <a href="http://rett.tv/video/Rett-Syndrome-Research-Trust-PS"><img src="http://s3.amazonaws.com/magnifythumbs/RHGMJ50FH0VN1L0M.jpg" align="right" border="0"></a> reverserett wrote: rett rett 2009-11-16T04:49:27+05:00 95 http://rett.tv/video/Reverse-Rett-Gala-Event-Photos Reverse Rett Gala Event Photos http://e.blip.tv/scripts/flash/showplayer.swf?file=2817550 http://s3.amazonaws.com/magnifythumbs/KKGHQC2T6MN4VBMC.jpg <a href="http://rett.tv/video/Reverse-Rett-Gala-Event-Photos"><img src="http://s3.amazonaws.com/magnifythumbs/KKGHQC2T6MN4VBMC.jpg" align="right" border="0"></a> <a href="http://www.reverserett.org" target="_blank">Rett Syndrome Research Trust</a> wrote: 2009-11-16T04:47:26+05:00 243 http://rett.tv/video/Tango-trial-Rett-syndrome-angel Tango trial, Rett syndrome angel Brenna Leigh Gomez http://www.youtube.com/v/Ko6CkdmO76w http://s3.amazonaws.com/magnifythumbs/Y9C4001D33L5QF9J.jpg <a href="http://rett.tv/video/Tango-trial-Rett-syndrome-angel"><img src="http://s3.amazonaws.com/magnifythumbs/Y9C4001D33L5QF9J.jpg" align="right" border="0"></a> lbarrick wrote: Here's Brenna trying to communicate through the Tango device made by Dyna Vox/Mayer Johnson 2009-11-16T04:48:37+05:00 135 http://rett.tv/video/Tango-device-trial-Part-2-Brenn Tango device trial Part 2, Brenna Leigh Gomez http://www.youtube.com/v/M6OozM-bfiw http://s3.amazonaws.com/magnifythumbs/2Q6MSZ2ND35GLDJ0.jpg <a href="http://rett.tv/video/Tango-device-trial-Part-2-Brenn"><img src="http://s3.amazonaws.com/magnifythumbs/2Q6MSZ2ND35GLDJ0.jpg" align="right" border="0"></a> lbarrick wrote: Here's Brenna trying the Tango commication device for the first time. She has Rett syndrome and cannot speak words. This device will help her communicate. ... "Rett syndrome" "rett angel" "brenna gomez" lbarrick "lora barrick-ramirez" tango "dyna vox" 2009-11-16T04:48:49+05:00 175 http://rett.tv/video/VIDEO-NEWS-FOR-SEPTEMBER-30-200 Rett Syndrome Angola IN Fundraiser http://www.youtube.com/v/BLTY4Ecmd64 http://s3.amazonaws.com/magnifythumbs/J40TKW2LV8XSVXVV.jpg <a href="http://rett.tv/video/VIDEO-NEWS-FOR-SEPTEMBER-30-200"><img src="http://s3.amazonaws.com/magnifythumbs/J40TKW2LV8XSVXVV.jpg" align="right" border="0"></a> Find out where you can have a great time and win prizes Thursday night while helping find a cure for Rett Syndrome 2009-10-25T06:01:54+05:00 317 http://rett.tv/video/My-rett-angel-93009 My rett angel 9/30/09 http://www.youtube.com/v/6hIQZuY8DIc http://s3.amazonaws.com/magnifythumbs/LJ78V81WFK2HT16H.jpg <a href="http://rett.tv/video/My-rett-angel-93009"><img src="http://s3.amazonaws.com/magnifythumbs/LJ78V81WFK2HT16H.jpg" align="right" border="0"></a> starbrittany20 wrote: My 4 year old daughter, Gia Leonardi, who has Rett Syndrome Gia Gia 2009-10-25T05:55:18+05:00 255 http://rett.tv/video/Sydney-Breanne-Silent-Angel-200 Sydney Breanne, Silent Angel 2009 http://www.youtube.com/v/aR01Pze-_A0 http://s3.amazonaws.com/magnifythumbs/QW7WC42QZ2KKN7ZH.jpg <a href="http://rett.tv/video/Sydney-Breanne-Silent-Angel-200"><img src="http://s3.amazonaws.com/magnifythumbs/QW7WC42QZ2KKN7ZH.jpg" align="right" border="0"></a> mabsbb1 wrote: Sydney's Story The many seasons of Rett Syndrome ... Rett Syndrome; Sydney: Girlpower2cure.org: RSRT: SRSA; IRSF: Dr. Alan Percy: UAB: Paul Heil rett rett 2009-10-25T05:56:08+05:00 594 http://rett.tv/video/My-Montage-93009 Gia Leonardi 9/30/09 http://www.youtube.com/v/Ze1nhDYE-zE http://s3.amazonaws.com/magnifythumbs/W9WNFY1GTG5T8FXY.jpg <a href="http://rett.tv/video/My-Montage-93009"><img src="http://s3.amazonaws.com/magnifythumbs/W9WNFY1GTG5T8FXY.jpg" align="right" border="0"></a> starbrittany20 wrote: My 4 year old daughter, Gia Leonardi who suffers from rett syndrome. ... Gia renae OneTrueMedia Gia Leonardi, rett Gia Leonardi rett 2009-10-25T05:56:12+05:00 243 http://rett.tv/video/Rett-Syndrome-Awareness-Ciaras Rett Syndrome Awareness. Ciara's story http://www.youtube.com/v/-UPl22IOrSA http://s3.amazonaws.com/magnifythumbs/NKTM4V24G52TPJ8T.jpg <a href="http://rett.tv/video/Rett-Syndrome-Awareness-Ciaras"><img src="http://s3.amazonaws.com/magnifythumbs/NKTM4V24G52TPJ8T.jpg" align="right" border="0"></a> veiledexpressions wrote: As a followup to my Rett Syndrome awareness video I made two years ago, I decided to make a short video focused more on my own silent angel. She's 6 years old now, and the light of our lives. 2009-10-25T05:56:16+05:00 296 http://rett.tv/video/Our-Silent-Angel-Jaydin-Rett-Sy Our Silent Angel Jaydin - Rett Syndrome http://www.youtube.com/v/huFMH8Y48sI http://s3.amazonaws.com/magnifythumbs/2JJZF22GHSXWYGG5.jpg <a href="http://rett.tv/video/Our-Silent-Angel-Jaydin-Rett-Sy"><img src="http://s3.amazonaws.com/magnifythumbs/2JJZF22GHSXWYGG5.jpg" align="right" border="0"></a> Jaydin13 wrote: A video I made in honor of my daughter who has Rett Syndrome. Please learn more about this devastating disorder and help our silent angels speak. rett rett 2009-10-25T05:59:13+05:00 299 http://rett.tv/video/Parent-gathering-Rett-Syndrome Osteopenia in Rett Syndrome http://www.youtube.com/v/kEmOreaWtyA http://s3.amazonaws.com/magnifythumbs/QP6BNH25BVMT54M7.jpg <a href="http://rett.tv/video/Parent-gathering-Rett-Syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/QP6BNH25BVMT54M7.jpg" align="right" border="0"></a> Sashadjukic wrote: Osteopenia in Rett Syndrome 2009-10-25T05:56:26+05:00 589 http://rett.tv/video/Rett-Syndrome-Awareness-for-Che Rett Syndrome Awareness for Chelsea at Eastlake High http://www.youtube.com/v/llK-_6-1qfQ http://s3.amazonaws.com/magnifythumbs/VY62X1393W430WVZ.jpg <a href="http://rett.tv/video/Rett-Syndrome-Awareness-for-Che"><img src="http://s3.amazonaws.com/magnifythumbs/VY62X1393W430WVZ.jpg" align="right" border="0"></a> veleriafab1 wrote: rett rett 2009-10-25T05:56:34+05:00 218 http://rett.tv/video/Hard-Knock-Life-inanniesvoice Hard Knock Life - @inanniesvoice http://www.youtube.com/v/DduoIF9bPIQ http://s3.amazonaws.com/magnifythumbs/RTGSLQ0NXLC4RDTP.jpg <a href="http://rett.tv/video/Hard-Knock-Life-inanniesvoice"><img src="http://s3.amazonaws.com/magnifythumbs/RTGSLQ0NXLC4RDTP.jpg" align="right" border="0"></a> inanniesvoice wrote: My name is Annie. I am 21 years old. I have Rett Syndrome, a developmental disorder that occurs only in girls. It affects my motor skills, my ability to use my hands, prevents me from speaking or otherwise communicating effectively, and causes other problems such as seizures. Here's a video of me that my dad and some friends from MTV made 10 years ago (sorry for the poor quality, this was back in the days of VHS! YouWhat?). They showed this at a Rett Syndrome fundraiser, where my dad and ... 2009-10-25T05:59:26+05:00 198 http://rett.tv/video/dancinwcasey Dancing with Abby's buddy Casey http://www.youtube.com/v/doBTjYiXJIw http://s3.amazonaws.com/magnifythumbs/CDHVPJ31FDT308KZ.jpg <a href="http://rett.tv/video/dancinwcasey"><img src="http://s3.amazonaws.com/magnifythumbs/CDHVPJ31FDT308KZ.jpg" align="right" border="0"></a> Abby's buddy took her on the floor for Dancinforrett in honor of Abby Vejrosta. She's my little dancin machine 2009-10-24T22:55:17+05:00 http://rett.tv/video/Salsawdad Abby Salsa with Dad http://www.youtube.com/v/0VWhkKZ1yHM http://s3.amazonaws.com/magnifythumbs/NWBXZ10BMF9WY311.jpg <a href="http://rett.tv/video/Salsawdad"><img src="http://s3.amazonaws.com/magnifythumbs/NWBXZ10BMF9WY311.jpg" align="right" border="0"></a> Abby doing a little salsa with her daddy at Dancinforrett 2009. Abby, rett Abby rett 2009-10-24T22:56:27+05:00 http://rett.tv/video/Sindrome-di-rett-Anna-in-altale Sindrome di rett: Anna in altalena | Un volo per Anna http://www.youtube.com/v/WmLKXgYDQkw http://s3.amazonaws.com/magnifythumbs/W3MZNV191FQ0ZXXN.jpg <a href="http://rett.tv/video/Sindrome-di-rett-Anna-in-altale"><img src="http://s3.amazonaws.com/magnifythumbs/W3MZNV191FQ0ZXXN.jpg" align="right" border="0"></a> ricciuforever wrote: Sito ufficiale: www.unvoloperanna.it Anna è una bambina afflitta da sindrome di rett In questo video va in altalena 2009-09-29T04:37:39+05:00 51 http://rett.tv/video/sindrome-de-rett-MI-ANGELITO-AL sindrome de rett MI ANGELITO ALESSANDRA http://www.youtube.com/v/fO6v6u2RWMo http://s3.amazonaws.com/magnifythumbs/ZHSFL933NXG9BV45.jpg <a href="http://rett.tv/video/sindrome-de-rett-MI-ANGELITO-AL"><img src="http://s3.amazonaws.com/magnifythumbs/ZHSFL933NXG9BV45.jpg" align="right" border="0"></a> josesito695 wrote: mi ALE recibiendo fisioterapia para fortalecer sus musculos para contrarrestrar la malformacion de su coloidal 2009-09-29T04:36:51+05:00 526 http://rett.tv/video/Sndrome-de-Rett-6 Síndrome de Rett http://www.youtube.com/v/TMVnGcPgWMM http://s3.amazonaws.com/magnifythumbs/Q4S25P1GV3N1NZDH.jpg <a href="http://rett.tv/video/Sndrome-de-Rett-6"><img src="http://s3.amazonaws.com/magnifythumbs/Q4S25P1GV3N1NZDH.jpg" align="right" border="0"></a> petrelrett wrote: Paula Romero con 11 meses cuando el Síndrome de Rett aun no habia hecho acto de presencia, todabia conocia las cosa, las cojia .... S S 2009-09-29T04:34:02+05:00 60 http://rett.tv/video/sindrome-de-rett-alessandra-y-s sindrome de rett ,alessandra y su tia kelly http://www.youtube.com/v/PIKfMk6YSEs http://s3.amazonaws.com/magnifythumbs/RH506Y3DJSW746D1.jpg <a href="http://rett.tv/video/sindrome-de-rett-alessandra-y-s"><img src="http://s3.amazonaws.com/magnifythumbs/RH506Y3DJSW746D1.jpg" align="right" border="0"></a> josesito695 wrote: alessandra ,caminandoal lado de su tia kelly de, rett, sindrome de rett sindrome 2009-09-29T04:34:55+05:00 325 http://rett.tv/video/Mothers-Discuss-Rett-Syndrome-O Mothers Discuss Rett Syndrome http://xml.truveo.com/eb?i=V3720891 http://s3.amazonaws.com/magnifythumbs/L6NDRJ1T4GYQPFNF.jpg <a href="http://rett.tv/video/Mothers-Discuss-Rett-Syndrome-O"><img src="http://s3.amazonaws.com/magnifythumbs/L6NDRJ1T4GYQPFNF.jpg" align="right" border="0"></a> Meredith wrote: Pat Fay and Maggie Wurm discuss Rett syndrome, a disease from which both of their daughters suffer. 2009-09-25T15:50:29+05:00 http://rett.tv/video/Clint-Blacks-Charity-Internatio Clint Black’s Charity: International Rett Syndrome Foundation http://xml.truveo.com/eb/i/3547184266/a/4c86ff7dda1f7b769d520f50a4658f1d/p/1 http://s3.amazonaws.com/magnifythumbs/BRRPQX3C2WS1TVSY.jpg <a href="http://rett.tv/video/Clint-Blacks-Charity-Internatio"><img src="http://s3.amazonaws.com/magnifythumbs/BRRPQX3C2WS1TVSY.jpg" align="right" border="0"></a> Clint Black discusses his cause, International Rett Syndrome Foundation 2009-09-25T15:52:58+05:00 78 http://rett.tv/video/Celeb-Apprentice-Spotlights-Ret Celeb Apprentice Spotlights Rett Syndrome http://xml.truveo.com/eb?i=V3692545 http://s3.amazonaws.com/magnifythumbs/ZSR2M90MQ6V2CZW9.jpg <a href="http://rett.tv/video/Celeb-Apprentice-Spotlights-Ret"><img src="http://s3.amazonaws.com/magnifythumbs/ZSR2M90MQ6V2CZW9.jpg" align="right" border="0"></a> NBC Universal wrote: Country star Clint Black plays for the "International Rett Syndrome Foundation" this season on Celebrity Apprentice. It's a devastating condition that doctors say affects about one in every 10-thousand girls. And a North County mom is fighting for a cure. 2009-09-25T15:51:24+05:00 http://rett.tv/video/RACE-FOR-GRACE-2 RACE FOR GRACE http://eplayer.clipsyndicate.com/cs_api/get_swf?swfHome=eplayer.clipsyndicate.com&va_id=960462 http://s3.amazonaws.com/magnifythumbs/PZC3YYYG6RC79LXM.jpg <a href="http://rett.tv/video/RACE-FOR-GRACE-2"><img src="http://s3.amazonaws.com/magnifythumbs/PZC3YYYG6RC79LXM.jpg" align="right" border="0"></a> WPRI CBS 12 Providence wrote: STROLL A THON FOR GIRLS WITH RETTS SYNDROME 2009-09-25T15:57:10+05:00 http://rett.tv/video/Fernanda-Rett-Angel-4-Years-Old Fernanda Rett Angel 4 Years Old http://videos.cache.magnify.net/M4K52R3BXBF3B2P2-Fernanda_Slide_483_336_384x214.mp4 http://s3.amazonaws.com/magnifythumbs/M4K52R3BXBF3B2P2-l.jpg <a href="http://rett.tv/video/Fernanda-Rett-Angel-4-Years-Old"><img src="http://s3.amazonaws.com/magnifythumbs/M4K52R3BXBF3B2P2-l.jpg" align="right" border="0"></a> Letra y Musica: Carlos Gamboa (Fernanda's Daddy) www.myspace.com/carlosgamboa www.carlosgamboa.com Buy this track on iTunes and help Fernanda: http://itunes.apple.com/WebObjects/MZStore.woa/wa/viewAlbum?id=323141990&s=143468 Donate (Paypal): https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=6259527 2009-09-24T16:25:55+05:00 199 http://rett.tv/video/Rett-Angel-Kemry Rett Angel Kemry http://videos.cache.magnify.net/H6JD7T3QYP6K1D10-Kemry_Our_Rett_Angel_0001_483_336_384x288.mp4 http://s3.amazonaws.com/magnifythumbs/H6JD7T3QYP6K1D10-l.jpg <a href="http://rett.tv/video/Rett-Angel-Kemry"><img src="http://s3.amazonaws.com/magnifythumbs/H6JD7T3QYP6K1D10-l.jpg" align="right" border="0"></a> Kemry was diagnosed with Rett syndrome in October of 2008. She is a beautiful, fun loving, caring little soul. We love her with every piece of our hearts and feel so blessed to have her in our lives. She teaches us the true meaning of life of being happy beyond circumstances and control of situations. By not discriminating and loving all. And by her complete happiness for life. 2009-09-24T07:28:01+05:00 195 http://rett.tv/video/Syndrome-de-Rett Syndrome de Rett http://www.youtube.com/v/J8N48kOtQRI http://s3.amazonaws.com/magnifythumbs/9K39611WHBV1MWX8.jpg <a href="http://rett.tv/video/Syndrome-de-Rett"><img src="http://s3.amazonaws.com/magnifythumbs/9K39611WHBV1MWX8.jpg" align="right" border="0"></a> ganimete05 wrote: La stéréotypie des mains fait partie intégrante du Syndrome de Rett. girl, My girl My 2009-09-20T17:15:40+05:00 16 http://rett.tv/video/Caroline-Elhajj Caroline Elhajj http://www.youtube.com/v/hRA2cqUXAf8 http://s3.amazonaws.com/magnifythumbs/55V02J0MS149K63Y.jpg <a href="http://rett.tv/video/Caroline-Elhajj"><img src="http://s3.amazonaws.com/magnifythumbs/55V02J0MS149K63Y.jpg" align="right" border="0"></a> sampson6767 wrote: Retts Syndrome Caroline Elhajj ... Retts Syndrome Caroline Elhajj Caroline, Elhajj, Retts Caroline Elhajj Retts 2009-09-20T17:19:39+05:00 305 http://rett.tv/video/Katy-at-the-Wedding Katy at the Wedding http://www.youtube.com/v/2SClUExhVdc http://s3.amazonaws.com/magnifythumbs/JHB7Y72VLQXMH7NT.jpg <a href="http://rett.tv/video/Katy-at-the-Wedding"><img src="http://s3.amazonaws.com/magnifythumbs/JHB7Y72VLQXMH7NT.jpg" align="right" border="0"></a> TheWonkeydonkey wrote: Katy, one of the bridesmaids at our wedding, suffers from Rett Syndrome, a profound genetic disorder. Nonetheless, she bravely made her way through the day, and got a dance with the groom! ... Wedding "Rett Syndrome" Rett Katy Bridesmaid Anthony Rachael 2009-08-31T10:43:04+05:00 285 http://rett.tv/video/Spring-Race-for-the-benefit-of Spring Race for the benefit of the Silent Angles - Rett Syndrome http://www.youtube.com/v/DJXIl8tGHIE http://s3.amazonaws.com/magnifythumbs/S18JHG2SJ197DFT3.jpg <a href="http://rett.tv/video/Spring-Race-for-the-benefit-of"><img src="http://s3.amazonaws.com/magnifythumbs/S18JHG2SJ197DFT3.jpg" align="right" border="0"></a> nataliedana1 wrote: To Make a donation go to : www.rett.org.il rett, marato rett marato 2009-08-31T10:44:06+05:00 253 http://rett.tv/video/Polka-wiggles Polka wiggles http://www.youtube.com/v/TFbXB4F1cw8 http://s3.amazonaws.com/magnifythumbs/JXW0L70C5RC14KDX.jpg <a href="http://rett.tv/video/Polka-wiggles"><img src="http://s3.amazonaws.com/magnifythumbs/JXW0L70C5RC14KDX.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V. Classic Rett Syndrome. Enjoying The Wiggles show at the start of the show. We did a meet and greet before hand but I don't think she really comprehended what was happening until the music started. I love her reactions in this one. The Wiggles did give verbal permission to take all the video we wanted during the show! ... "Rett Syndrome" "Abby V" "The Wiggles" Abby, V, rett, Wiggles Abby V rett Wiggles 2009-08-31T10:44:37+05:00 43 http://rett.tv/video/You-make-me-feel-like-dancin You make me feel like dancin http://www.youtube.com/v/bzWVSkhedg4 http://s3.amazonaws.com/magnifythumbs/ZMQDLS05G0J3G8P1.jpg <a href="http://rett.tv/video/You-make-me-feel-like-dancin"><img src="http://s3.amazonaws.com/magnifythumbs/ZMQDLS05G0J3G8P1.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V. Classic Rett Syndrome. Wiggles Show. You make me feel like Dancin. Great show and she is the happiest little girl in the world today. August 1 2009 Permission to record from the Wiggles ... "Rett Syndrome" "Abby V" "The Wiggles" Abby, V, rett, Wiggles Abby V rett Wiggles 2009-08-31T10:44:48+05:00 169 http://rett.tv/video/Silent-Angels Silent Angels http://www.youtube.com/v/BwHvIvUlWmk http://s3.amazonaws.com/magnifythumbs/YMJZT833XFR4L9F8.jpg <a href="http://rett.tv/video/Silent-Angels"><img src="http://s3.amazonaws.com/magnifythumbs/YMJZT833XFR4L9F8.jpg" align="right" border="0"></a> rickandkathyjamison wrote: emotions experienced by the families of children with Rett Syndrome. Rick and Kathy performed this song during the opening evening of "Casting 4 a Cure," a flyfishing-focused benefit event organized by Bill and Beth Farnum on August 27-30. This video was taped at Christensen Studio in Teton Valley, Idaho. The paintings seen in the background are original works by Scott Christensen. Please visit Rick and Kathy's website at rickandkathy.com ... "Rett Syndrome" "Casting 4 a Cure" "Rick Jamison" " ... 2009-08-31T10:46:23+05:00 245 http://rett.tv/video/Waiting-for-Wings Waiting for Wings http://www.youtube.com/v/MvDcWd2KEpw http://s3.amazonaws.com/magnifythumbs/MSVK6X16M09LRRQC.jpg <a href="http://rett.tv/video/Waiting-for-Wings"><img src="http://s3.amazonaws.com/magnifythumbs/MSVK6X16M09LRRQC.jpg" align="right" border="0"></a> StarsforSarahTexas wrote: Video about Sarah and her life with Rett Syndrome-- Sorry audio is not working. I am working on a song replacement. ... "Rett Syndrome" "waiting for wings" "stars for sarah" "stars for sarah texas" 10 2009-08-31T10:43:38+05:00 290 http://rett.tv/video/Retts-Syndrome-2 Rett's Syndrome http://www.youtube.com/v/A-QqYhN5fDo http://s3.amazonaws.com/magnifythumbs/7MN2B92HSM7823Y3.jpg <a href="http://rett.tv/video/Retts-Syndrome-2"><img src="http://s3.amazonaws.com/magnifythumbs/7MN2B92HSM7823Y3.jpg" align="right" border="0"></a> ccdttherapy wrote: Rett's Syndrome client's testmonial of CCDT therapy at Futures Unlimited rett rett 2009-08-31T10:42:21+05:00 255 http://rett.tv/video/Silent-Rett-Angel-Brenna-Leigh Silent Rett Angel Brenna Leigh Gomez http://www.youtube.com/v/nTi2Cgz8chE http://s3.amazonaws.com/magnifythumbs/ZWDPND0J4VNZNCY6.jpg <a href="http://rett.tv/video/Silent-Rett-Angel-Brenna-Leigh"><img src="http://s3.amazonaws.com/magnifythumbs/ZWDPND0J4VNZNCY6.jpg" align="right" border="0"></a> lbarrick wrote: This video was made in honor of my daughter Brenna and to raise awareness of Rett Syndrome. ... "Rett Angel" Brenna angel, Brenna, rett angel Brenna rett 2009-08-31T10:43:53+05:00 243 http://rett.tv/video/Curing-Rett-Syndrome-How-do-we Curing Rett Syndrome - How do we get there? http://www.youtube.com/v/Cit1Ff08Cgs http://s3.amazonaws.com/magnifythumbs/HHSB511M4FRBHLZY.jpg <a href="http://rett.tv/video/Curing-Rett-Syndrome-How-do-we"><img src="http://s3.amazonaws.com/magnifythumbs/HHSB511M4FRBHLZY.jpg" align="right" border="0"></a> reverserett wrote: FULL VIDEO at www.rsrt.org/video. Monica Coenraads, Executive Director of the Rett Syndrome Research Trust, gives an in-depth presentation on Rett Syndrome. This is the first 10 minutes of her hour-long talk. 2009-08-31T10:47:37+05:00 586 http://rett.tv/video/Saras-Song Saras' Song http://www.youtube.com/v/gWpSBOIpHa0 http://s3.amazonaws.com/magnifythumbs/L3KLVS06G0T1M6WS.jpg <a href="http://rett.tv/video/Saras-Song"><img src="http://s3.amazonaws.com/magnifythumbs/L3KLVS06G0T1M6WS.jpg" align="right" border="0"></a> The Songs of Love Organization wrote and recorede a song for my daughter, Sara. She is seven years old now and has Rett Syndrome. We put some pictures of her with the song and made a video. I hope you enjoy. Tonya & Sara in SC, drgnlnce2003@yahoo.com 2009-08-31T10:36:56+05:00 http://rett.tv/video/Rett-Angels-waterski-Jade Rett Angel's waterski - Jade http://www.youtube.com/v/yiCL2vxO6cU http://s3.amazonaws.com/magnifythumbs/SKG58L07Q211RY70.jpg <a href="http://rett.tv/video/Rett-Angels-waterski-Jade"><img src="http://s3.amazonaws.com/magnifythumbs/SKG58L07Q211RY70.jpg" align="right" border="0"></a> Hawes4 wrote: Jade's first waterski session at Lake Roosevelt, July 13, 2009. Jade is 6 years old and has been diagnosed with Rett Syndrome; the most severe form of autism. While she does not speak much and has trouble walking and running, she is doing quite well on skis! Go, Jade! ... Jade "Rett Syndrome" "Roosevelt Lake" "kids waterskiing" autism 2009-07-25T09:41:01+05:00 43 http://rett.tv/video/Tractor-Race-for-Rett-Syndrome Tractor Race for Rett Syndrome http://www.youtube.com/v/Liiq-cRhjmM http://s3.amazonaws.com/magnifythumbs/9ZR2Q61NBJM7KCV5.jpg <a href="http://rett.tv/video/Tractor-Race-for-Rett-Syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/9ZR2Q61NBJM7KCV5.jpg" align="right" border="0"></a> NJRettmom wrote: June 2009, Freehold, NJ 0453, MVI 0453 MVI 2009-07-25T09:41:37+05:00 105 http://rett.tv/video/Annettes-Brain-Wave-Vibration-M Annette's Brain Wave Vibration Miracle Continued... http://www.youtube.com/v/c5v8SmIv85k http://s3.amazonaws.com/magnifythumbs/3XRRDS0T3BM4DHV8.jpg <a href="http://rett.tv/video/Annettes-Brain-Wave-Vibration-M"><img src="http://s3.amazonaws.com/magnifythumbs/3XRRDS0T3BM4DHV8.jpg" align="right" border="0"></a> BrainWaveVibration wrote: After less than a month of Brain Wave Vibration, the motor impediments caused by Annette's Rett syndrome had vastly improved. Now a year later, Annette has become more attentive, smiling, and expressive with her family and the world around her. ... Annette "Brain Wave Vibration" "Ilchi Lee" "Rett syndrome" 2009-07-25T09:39:29+05:00 233 http://rett.tv/video/Djukic-R3 Djukic R3 http://www.youtube.com/v/voVOI1OcsHk http://s3.amazonaws.com/magnifythumbs/B831FL10VRFHP5FT.jpg <a href="http://rett.tv/video/Djukic-R3"><img src="http://s3.amazonaws.com/magnifythumbs/B831FL10VRFHP5FT.jpg" align="right" border="0"></a> Sashadjukic wrote: Welcome remarks Rethink Education Therapy &Technology Project ... Rett Syndrome Center at Montefiore Parent gathering 2009-07-25T09:39:46+05:00 417 http://rett.tv/video/Rett-Syndrome-Center-Family-G-2 Rett Syndrome Center Family Gathering, EIP tips - a true story http://www.youtube.com/v/Kb2Ks5BAFhk http://s3.amazonaws.com/magnifythumbs/52NPMG2NWWDW3CH8.jpg <a href="http://rett.tv/video/Rett-Syndrome-Center-Family-G-2"><img src="http://s3.amazonaws.com/magnifythumbs/52NPMG2NWWDW3CH8.jpg" align="right" border="0"></a> Sashadjukic wrote: Part Part 2009-07-25T09:40:08+05:00 367 http://rett.tv/video/Rett-SYndrome-Center-Family-Gat Rett SYndrome Center Family Gathering, IEP tips Part 1 http://www.youtube.com/v/WMYtA9LNsgw http://s3.amazonaws.com/magnifythumbs/CBDSY0182LJZBCNJ.jpg <a href="http://rett.tv/video/Rett-SYndrome-Center-Family-Gat"><img src="http://s3.amazonaws.com/magnifythumbs/CBDSY0182LJZBCNJ.jpg" align="right" border="0"></a> Sashadjukic wrote: Part 1, background Part, 1, Minsky Part 1 Minsky 2009-07-25T09:40:13+05:00 383 http://rett.tv/video/Balancing-2 Balancing http://www.youtube.com/v/AtJz_wWrGc0 http://s3.amazonaws.com/magnifythumbs/RNJ47511LYVHTQBH.jpg <a href="http://rett.tv/video/Balancing-2"><img src="http://s3.amazonaws.com/magnifythumbs/RNJ47511LYVHTQBH.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V. Classic Rett Syndrome. Walking again after 6 months of downtime after gtube surgery. July 09. 4 years old ... "Abby V" "Rett Syndrome" rett, V, Abby rett V Abby 2009-07-25T09:39:33+05:00 93 http://rett.tv/video/Flirty-McSnacky Flirty McSnacky http://www.youtube.com/v/XKb1Pi3alns http://s3.amazonaws.com/magnifythumbs/BC25ND0RPC7JCZZR.jpg <a href="http://rett.tv/video/Flirty-McSnacky"><img src="http://s3.amazonaws.com/magnifythumbs/BC25ND0RPC7JCZZR.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V. Classic Rett Syndrome. Eating grapes with her Dad and having a giggle fit. July 09. 4 years old ... Abby V. Rett Syndrome V., rett, Abby V. rett Abby 2009-07-25T09:38:59+05:00 80 http://rett.tv/video/alamo alamo http://www.youtube.com/v/Lkq22aP7nss http://s3.amazonaws.com/magnifythumbs/K085FQ050TRNBXY2.jpg <a href="http://rett.tv/video/alamo"><img src="http://s3.amazonaws.com/magnifythumbs/K085FQ050TRNBXY2.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V. 4 years old Classic Rett Syndrome. Out for a family dinner. Flirting with her father ... "Abby V" "Rett Syndrome" V, rett, Abby V rett Abby 2009-07-25T09:40:53+05:00 46 http://rett.tv/video/Vocalwiggles Vocalwiggles http://www.youtube.com/v/ihvy9UgCZoM http://s3.amazonaws.com/magnifythumbs/JZV5223FSHC2GTFD.jpg <a href="http://rett.tv/video/Vocalwiggles"><img src="http://s3.amazonaws.com/magnifythumbs/JZV5223FSHC2GTFD.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V. Classic Rett Syndrome. Girls with Rett Syndrome are essentially non-verbal and often referred to as silent angels. Abby missed out on the silent part. Here she is telling us all about her new Wiggles DVD. ... "Abby V" "Rett Syndrome" 2009-07-25T09:17:33+05:00 98 http://rett.tv/video/Chicken-walking-Abby-Dance Chicken walking Abby Dance. http://www.youtube.com/v/468Vd3P4P8E http://s3.amazonaws.com/magnifythumbs/207BKF2WC4V1H5K4.jpg <a href="http://rett.tv/video/Chicken-walking-Abby-Dance"><img src="http://s3.amazonaws.com/magnifythumbs/207BKF2WC4V1H5K4.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V. 4 years old. Classic Rett Syndrome. Abby is Going Bananas over her new Wiggles DVD. Here is her dancing to Chickenwalk! ... "Abby V" "Rett Syndrome" 2009-07-25T09:18:44+05:00 104 http://rett.tv/video/Vibration-Therapy-for-Rett-Synd Vibration Therapy for Rett Syndrome http://www.youtube.com/v/PL49fXgyJvo http://s3.amazonaws.com/magnifythumbs/2QZZ1T1ZTCBNZ348.jpg <a href="http://rett.tv/video/Vibration-Therapy-for-Rett-Synd"><img src="http://s3.amazonaws.com/magnifythumbs/2QZZ1T1ZTCBNZ348.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V. Classic Rett Syndrome. 4 years old. Trying out a whole body wave vibration plate. Vibration helps with digestion,circulation and muscle tone. 2009-07-25T09:19:39+05:00 165 http://rett.tv/video/Rhymer Rhymer http://www.youtube.com/v/z0HmWmvna2s http://s3.amazonaws.com/magnifythumbs/2Y45M12SK8WPTPML.jpg <a href="http://rett.tv/video/Rhymer"><img src="http://s3.amazonaws.com/magnifythumbs/2Y45M12SK8WPTPML.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V. Classic Rett Syndrome. Following along and picking out pictures in her Sesame Street Nursery Rhyme Book. She cannot always make her hands touch the picture so she face points with great accuracy. ... "Abby V" "Rett Syndrome" 2009-07-25T09:22:09+05:00 261 http://rett.tv/video/Tahoe-Ride-For-Rett-2009 Tahoe Ride For Rett 2009 http://www.youtube.com/v/9JdPybzxb9U http://s3.amazonaws.com/magnifythumbs/M9RFYN27HG26VMSK-l.jpg <a href="http://rett.tv/video/Tahoe-Ride-For-Rett-2009"><img src="http://s3.amazonaws.com/magnifythumbs/M9RFYN27HG26VMSK-l.jpg" align="right" border="0"></a> bfarnu wrote: Please check out this video of our 2nd Annual Tahoe Ride for Rett Syndrome. This year we were able to raise over $15000, which brings the two year total to $36000 for Rett Syndrome Research and Family Support...Every Ride gets us 72 Miles Closer To A Cure....Thanks to our key sponsor Cloudveil and our team of riders; Brad Bennett, Frank Harmon, Bill Hadley, and myself, Bill Farnum for making the effort! 2009-07-06T19:49:26+05:00 266 http://rett.tv/video/DENISE-3 DENISE 3 http://www.youtube.com/v/Yst1_i6uGO0 http://s3.amazonaws.com/magnifythumbs/8KCSQ2GP7163B47C-l.jpg <a href="http://rett.tv/video/DENISE-3"><img src="http://s3.amazonaws.com/magnifythumbs/8KCSQ2GP7163B47C-l.jpg" align="right" border="0"></a> TITTY630 wrote: sindrome di rett ... DENISE VIDEO NUOVO 0004 VIDEO, NUOVO, DENISE, 0004 VIDEO NUOVO DENISE 0004 2009-07-06T19:53:48+05:00 308 http://rett.tv/video/sindrome-rett-JENNY-en-sus-ter-2 sindrome rett....JENNY en sus terapias. http://www.youtube.com/v/nNBmmt8gI3Q http://s3.amazonaws.com/magnifythumbs/91JNQM36FM0F95Y5-l.jpg <a href="http://rett.tv/video/sindrome-rett-JENNY-en-sus-ter-2"><img src="http://s3.amazonaws.com/magnifythumbs/91JNQM36FM0F95Y5-l.jpg" align="right" border="0"></a> alejandrat22 wrote: jenny mariposa haciendo su terapia de los jueves....un gran avance se ve en el video ya que meses atras no podia sostenerse sola.......gracias a todas las niñas que padecen el mismo sindrome y que sus padres han subido sus videos, por que con esto nos damos cuenta que no estamos solos y que estas niñas son unos angeles .... alejandra_t22@hotmail.com rett, sindrome rett sindrome 2009-07-06T19:53:11+05:00 114 http://rett.tv/video/sindrome-rett-JENNY-en-sus-tera sindrome rett...JENNY en sus terapias 2 http://www.youtube.com/v/xL87mzuoZsg http://s3.amazonaws.com/magnifythumbs/8FC4871SQYTGRNR1-l.jpg <a href="http://rett.tv/video/sindrome-rett-JENNY-en-sus-tera"><img src="http://s3.amazonaws.com/magnifythumbs/8FC4871SQYTGRNR1-l.jpg" align="right" border="0"></a> alejandrat22 wrote: La JENNY en sus terapias un poco molesta porque hacia calor pero al final coopero y todo salio bien...... rett, sindrome rett sindrome 2009-07-06T19:53:12+05:00 151 http://rett.tv/video/Criaturas-de-otro-planeta-de-E-2 Criaturas de otro planeta de Elisabet Pedrosa http://www.youtube.com/v/6z6OuTbml-M http://s3.amazonaws.com/magnifythumbs/28KV851MYCQFHSWP-l.jpg <a href="http://rett.tv/video/Criaturas-de-otro-planeta-de-E-2"><img src="http://s3.amazonaws.com/magnifythumbs/28KV851MYCQFHSWP-l.jpg" align="right" border="0"></a> Planetarett wrote: Criaturas de otro planeta es la historia de Gina, una niña de 6 años, y Elisabet, su madre, que un día decidió luchar contra su enfermedad, la síndrome de Rett, escribiendo... Este es un pequeño vídeo para introduciros en el mundo de las niñas Rett, para que conozcáis cómo es Gina en la actualidad. Desde el último vídeo que hicimos, ahora hace 2 años, Gina y Pol han crecido, y mucho! Jorge Drexler escribió unos versos para Gina que encontraréis en el libro y que gracias al amigo y músico ... 2009-07-06T19:55:26+05:00 398 http://rett.tv/video/notalone notalone http://www.youtube.com/v/FfqSRps6eoo http://s3.amazonaws.com/magnifythumbs/4G0V7R0CLGB0G1R1-l.jpg <a href="http://rett.tv/video/notalone"><img src="http://s3.amazonaws.com/magnifythumbs/4G0V7R0CLGB0G1R1-l.jpg" align="right" border="0"></a> breaux6 wrote: Life with Rett Syndrome ... Rett Syndrome rett rett 2009-07-04T08:41:26+05:00 383 http://rett.tv/video/Mueve-tu-Corazn-Tema-Ganador-D-2 Mueve tu Corazón - Tema Ganador Del Radio Teletón 2007 http://www.youtube.com/v/kteYTRQyaD0 http://s3.amazonaws.com/magnifythumbs/VFG4HT25BDH7P6JX-l.jpg <a href="http://rett.tv/video/Mueve-tu-Corazn-Tema-Ganador-D-2"><img src="http://s3.amazonaws.com/magnifythumbs/VFG4HT25BDH7P6JX-l.jpg" align="right" border="0"></a> ch4rli3 wrote: Mueve Tu Corazón L. y M. Carlos Gamboa Piano y Voz: Carlos Gamboa Drums: Freddy Manrique Bajo: Hugo Borges Guitarra Acústica: Hugo Borges Percuciones: Hugo Borges Programación de Loops: Freddy Manrique Arreglo y Producción: Carlos Gamboa Grabado en MixdownStudio.com.mx www.fugaband.com www.carlosgamboa.com www.mixdownstudio.com.mx ... fernanda rett syndrome sindrome mueve tu corazon niños especiales discapacidad 2009-07-04T08:44:52+05:00 186 http://rett.tv/video/Retts-Syndrome Retts Syndrome http://www.youtube.com/v/FGsTRpKYtS4 http://s3.amazonaws.com/magnifythumbs/BZM6FV2DMDC1Z72V-l.jpg <a href="http://rett.tv/video/Retts-Syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/BZM6FV2DMDC1Z72V-l.jpg" align="right" border="0"></a> samx5453 wrote: Raymond's Story from his grandmother. Retts Syndrom 2009-07-04T08:46:28+05:00 221 http://rett.tv/video/Jesus-To-A-Child-by-Kazz Jesus To A Child by Kazz http://www.youtube.com/v/4yKVIG5ZCl0 http://s3.amazonaws.com/magnifythumbs/S5LX0N2M7S86J80Q-l.jpg <a href="http://rett.tv/video/Jesus-To-A-Child-by-Kazz"><img src="http://s3.amazonaws.com/magnifythumbs/S5LX0N2M7S86J80Q-l.jpg" align="right" border="0"></a> kazzMarie wrote: Me and my daughter Melody, who has Rett Syndrome this was taken before she was diagnosed. ... "jesus to a child" "george michael" "rett syndrome" melody 2009-06-24T13:23:29+05:00 253 http://rett.tv/video/In-My-Daughters-Eyes-by-Kazz In My Daughter's Eyes by Kazz http://www.youtube.com/v/t0meHeaHzLA http://s3.amazonaws.com/magnifythumbs/GQ2HB13QJKLTDGTB-l.jpg <a href="http://rett.tv/video/In-My-Daughters-Eyes-by-Kazz"><img src="http://s3.amazonaws.com/magnifythumbs/GQ2HB13QJKLTDGTB-l.jpg" align="right" border="0"></a> kazzMarie wrote: My Daughter Melody who has Rett Syndrome ... "Rett Syndrome" "In my daughter's eyes" "martina mcbride" In, my, rett, daughter In my rett daughter 2009-06-24T13:20:23+05:00 202 http://rett.tv/video/websitevideo2009final websitevideo2009final http://www.youtube.com/v/yzi3X1qOmp8 http://s3.amazonaws.com/magnifythumbs/FR6B641P761RCFFJ-l.jpg <a href="http://rett.tv/video/websitevideo2009final"><img src="http://s3.amazonaws.com/magnifythumbs/FR6B641P761RCFFJ-l.jpg" align="right" border="0"></a> StarsforSarahTexas wrote: This video was made for the website www.starsforsarah.bravehost.com. Stars for Sarah is hosting a Variety Show to benefit Rett Syndrome research. If you have an talent you would like to share, or would like to attend this event, happening in the Dallas/ Fort Worth area please go to www.starsforsarah.bravehost.com for more information. ... "Rett Syndrome" "Stars for Sarah" MercyMe "Variety Show" Cure "I Can Only Imagine" Karaoke "autism disorders" "charity events" benefits Coppell Texas ... 2009-06-24T13:21:14+05:00 105 http://rett.tv/video/Mencap-2009-Snap-winner-My-life Mencap 2009 Snap! winner: My life http://www.youtube.com/v/FBofbxioc9I http://s3.amazonaws.com/magnifythumbs/R03ZZS2JZZWPPLGR-l.jpg <a href="http://rett.tv/video/Mencap-2009-Snap-winner-My-life"><img src="http://s3.amazonaws.com/magnifythumbs/R03ZZS2JZZWPPLGR-l.jpg" align="right" border="0"></a> MencapDirector wrote: My name is Stacey and I have Rett Syndrome. I want to show you that my condition doesn't stop me doing the things I enjoy. This two minute film gives you an insight into one of my days, and the wonderful people who support me. ... Mencap Snap! "learning disability" Mencap, Snap Mencap Snap 2009-06-24T13:23:17+05:00 145 http://rett.tv/video/Cinderella Cinderella :) http://www.youtube.com/v/LGTTgK0ubzw http://s3.amazonaws.com/magnifythumbs/GRBV0T2FT43MY4VW-l.jpg <a href="http://rett.tv/video/Cinderella"><img src="http://s3.amazonaws.com/magnifythumbs/GRBV0T2FT43MY4VW-l.jpg" align="right" border="0"></a> annsley98 wrote: This is me and my little sister dancing to Cinderella. I am the tall one. :) This was when I was in 3rd grade....Um My little sister( Mckenna) has Rett.Syndrome and can't talk. So don't leave any rude comments about her. We were just having fun.Enjoy!!! I OWN NOTHING EXEPT ME AND MCKENNA!!!!! :) ... annsley98 cinderella rett awesoeme dancing annsley ann mckenna 2009-06-24T13:22:16+05:00 98 http://rett.tv/video/Rachels-Stroll-and-Roll-for-Re-2 Rachel's Stroll and Roll for Rett http://www.youtube.com/v/WBuSd7gKRSo http://s3.amazonaws.com/magnifythumbs/BGWMQF3RRG79D7XK-l.jpg <a href="http://rett.tv/video/Rachels-Stroll-and-Roll-for-Re-2"><img src="http://s3.amazonaws.com/magnifythumbs/BGWMQF3RRG79D7XK-l.jpg" align="right" border="0"></a> bnshdl wrote: Rett Syndrome Information and Strollathon Pictures ... Rett Syndrome Rachel Strollathon proshow rett, proshow, Rachel, Strollathon rett proshow Rachel Strollathon 2009-06-08T18:39:32+05:00 575 http://rett.tv/video/Samantha-Corpus-Bay-Area-NBC-Ma Samantha Corpus Bay Area NBC May 09 http://www.youtube.com/v/T92iEedp5Hs http://s3.amazonaws.com/magnifythumbs/7ZSYVSJWB0SXJV2X-l.jpg <a href="http://rett.tv/video/Samantha-Corpus-Bay-Area-NBC-Ma"><img src="http://s3.amazonaws.com/magnifythumbs/7ZSYVSJWB0SXJV2X-l.jpg" align="right" border="0"></a> draycroft wrote: A news piece about Rett Syndrome and the families that are living with it. ... "rett syndrome" causes rett, causes rett causes 2009-06-08T18:37:59+05:00 202 http://rett.tv/video/M-G-13-yr-old-Retts-Syndrome-us M.G 13 yr old Rett's Syndrome using CCDTherapy http://www.youtube.com/v/u9Nh2I9IYxo http://s3.amazonaws.com/magnifythumbs/CRZL6J8614K5Q2FM-l.jpg <a href="http://rett.tv/video/M-G-13-yr-old-Retts-Syndrome-us"><img src="http://s3.amazonaws.com/magnifythumbs/CRZL6J8614K5Q2FM-l.jpg" align="right" border="0"></a> ccdttherapy wrote: Mother's testimonial about CCDTherap to help her child with Rett' s Syndrome. rett rett 2009-06-08T18:37:16+05:00 114 http://rett.tv/video/M-G-13-yr-old-Retts-Syndrome-ch M.G 13 yr old Rett's Syndrome child using CCDTherapy http://www.youtube.com/v/a9F_tlWgXNM http://s3.amazonaws.com/magnifythumbs/FXSWLQC8T489LNX9-l.jpg <a href="http://rett.tv/video/M-G-13-yr-old-Retts-Syndrome-ch"><img src="http://s3.amazonaws.com/magnifythumbs/FXSWLQC8T489LNX9-l.jpg" align="right" border="0"></a> ccdttherapy wrote: MG is a 13 yr.old Rett's Syndrome child using CCDTherapy at Futures Unlimited. Chronologically Controlled Developmental Therapy has improved her mobility, reduce spascity, increase muscle strength, improved vision and communication skills. rett rett 2009-06-08T18:39:40+05:00 79 http://rett.tv/video/Mueve-tu-Corazn-Tema-Ganador-de Mueve tu Corazón | Tema Ganador del Radio Teletón 2007 http://www.youtube.com/v/D08p-L5_rag http://s3.amazonaws.com/magnifythumbs/YMVHKYN9DVLQYCS1-l.jpg <a href="http://rett.tv/video/Mueve-tu-Corazn-Tema-Ganador-de"><img src="http://s3.amazonaws.com/magnifythumbs/YMVHKYN9DVLQYCS1-l.jpg" align="right" border="0"></a> ch4rli3 wrote: Rett Syndrome Awareness L. y M. Carlos Gamboa Piano y Voz: Carlos Gamboa Drums: Freddy Manrique Bajo: Hugo Borges Guitarra Acústica: Hugo Borges Percuciones: Hugo Borges Programación de Loops: Freddy Manrique Arreglo y Producción: Carlos Gamboa Grabado en MixdownStudio.com.mx www.fugaband.com www.carlosgamboa.com www.mixdownstudio.com.mx ... rett syndrome teletón carlos gamboa fernanda discapacidad niños especiales rett, telet rett telet 2009-06-08T18:39:35+05:00 190 http://rett.tv/video/Hustle-for-a-Cure-2009-a-Rett-s Hustle for a Cure 2009 -- a Rett syndrome fundraiser http://www.youtube.com/v/t4UOWz76GGk http://s3.amazonaws.com/magnifythumbs/NP5TLDN2YBD1GG5V-l.jpg <a href="http://rett.tv/video/Hustle-for-a-Cure-2009-a-Rett-s"><img src="http://s3.amazonaws.com/magnifythumbs/NP5TLDN2YBD1GG5V-l.jpg" align="right" border="0"></a> CandlelightVideo wrote: This video slideshow is a tribute to girls living with the devastating disorder called Rett syndrome. It was shown at a fundraiser aimed at financing researching for a treatment or cure for the disorder. See: www.rettsyndrome.org Background music What a wonderful world / Over the Rainbow by Israel Kamakawiwo'ole, copyright EMI rett, Cure, buffalo, Hustle rett Cure buffalo Hustle 2009-06-08T18:39:38+05:00 330 http://rett.tv/video/Jess-at-The-Wiggles Jess at The Wiggles http://www.youtube.com/v/1vWTXEDMgu4 http://s3.amazonaws.com/magnifythumbs/TBQ9742LBCQ32414-l.jpg <a href="http://rett.tv/video/Jess-at-The-Wiggles"><img src="http://s3.amazonaws.com/magnifythumbs/TBQ9742LBCQ32414-l.jpg" align="right" border="0"></a> nevjay100 wrote: Jess (7yrs old Rett Syndrome) having a fantastic time watching the Wiggles in concert. She got to the meet them before the show and they were lovely. At the end of the concert Jeff called out "Goodbye Jess" and waved to her, he's our new favourite!! ... Rett Syndrome The Wiggles rett, Wiggles rett Wiggles 2009-06-08T18:41:17+05:00 83 http://rett.tv/video/Sndrome-de-Rett-5 Síndrome de Rett http://www.youtube.com/v/FtgpTGm_pRM http://s3.amazonaws.com/magnifythumbs/MJV59Y5JDCB3M62C-l.jpg <a href="http://rett.tv/video/Sndrome-de-Rett-5"><img src="http://s3.amazonaws.com/magnifythumbs/MJV59Y5JDCB3M62C-l.jpg" align="right" border="0"></a> petrelrett wrote: Paula Romero, con 2 años despues de diagnosticarla del Síndrome de Rett, empezaron las noches sin dormir, comenzó a gatear, comenzarón las estereotipias primero con el pelo, las pestallas etc... medicos, terapia, encuentro medicos terapia encuentro 2009-05-28T11:21:49+05:00 43 http://rett.tv/video/Cdkl5-Lo-Sguardo-di-Elena-Prom-2 Cdkl5 Lo Sguardo di Elena - Promo English version http://www.youtube.com/v/H-A0sPhzgSs http://s3.amazonaws.com/magnifythumbs/BFSH28RNXB1PFD5C-l.jpg <a href="http://rett.tv/video/Cdkl5-Lo-Sguardo-di-Elena-Prom-2"><img src="http://s3.amazonaws.com/magnifythumbs/BFSH28RNXB1PFD5C-l.jpg" align="right" border="0"></a> massimilianovalli wrote: Progetto di documentario a cura di Emanuela Defranceschi e Massimiliano Valli. Per effetto di una mutazione genetica da poco scoperta la mente di Elena si è fermata ai 10 mesi di vita. Assieme alla madre Emanuela entriamo nel mondo quotidiano delle malattie rare convinti che la ricerca può aiutare Elena e tanti altri a migliorare una difficile esistenza. 2009-05-28T11:25:00+05:00 388 http://rett.tv/video/Monica-CDKL5 Monica - CDKL5 http://www.youtube.com/v/idRLRDI-Rw4 http://s3.amazonaws.com/magnifythumbs/HXJSYH9VXFPD1NJH-l.jpg <a href="http://rett.tv/video/Monica-CDKL5"><img src="http://s3.amazonaws.com/magnifythumbs/HXJSYH9VXFPD1NJH-l.jpg" align="right" border="0"></a> umberto093 wrote: Testimonianza della mamma sulla malattia di sua figlia - www.cdkl5.org CDKL5, cdkl5.org CDKL5 cdkl5.org 2009-05-28T11:24:37+05:00 66 http://rett.tv/video/ABC-7-News-Two-Prom-Dates-first ABC 7 News: Two Prom Dates- first broadcast http://www.youtube.com/v/fCsGbq4mAU4 http://s3.amazonaws.com/magnifythumbs/LHN4B6N7VWCGJ99T-l.jpg <a href="http://rett.tv/video/ABC-7-News-Two-Prom-Dates-first"><img src="http://s3.amazonaws.com/magnifythumbs/LHN4B6N7VWCGJ99T-l.jpg" align="right" border="0"></a> hp21586 wrote: A girl with Rett Syndrome gets to go to prom with two people. ... ABC Chicago Rett Syndrome ABC, Chicago, rett ABC Chicago rett 2009-05-22T08:00:35+05:00 146 http://rett.tv/video/BCMs-Dr-Huda-Zoghbi-Receives-Ci BCM's Dr. Huda Zoghbi Receives Circle of Angels Research Award http://www.youtube.com/v/iiQVslI3DxQ http://s3.amazonaws.com/magnifythumbs/9Z4NF33Z0Q0MJYHX-l.jpg <a href="http://rett.tv/video/BCMs-Dr-Huda-Zoghbi-Receives-Ci"><img src="http://s3.amazonaws.com/magnifythumbs/9Z4NF33Z0Q0MJYHX-l.jpg" align="right" border="0"></a> BaylorVideo wrote: Kathryn Kissam, director International Rett Syndrome Foundation presents Dr. Zoghbi with the award at a surprise gathering in the conference room. Ashley Fries, Dr. Zoghbi's first Rett Syndrome patient is also in attendance. ... "Rett Syndrome" "Dr. Huda Zoghbi" rett, Zoghbi, Dr., Huda rett Zoghbi Dr. Huda 2009-05-22T08:00:45+05:00 121 http://rett.tv/video/CDKL5-BRENDA CDKL5 "BRENDA" http://www.youtube.com/v/xZBIhK2RHUs http://s3.amazonaws.com/magnifythumbs/F99TM7FPS73C18ZS.jpg <a href="http://rett.tv/video/CDKL5-BRENDA"><img src="http://s3.amazonaws.com/magnifythumbs/F99TM7FPS73C18ZS.jpg" align="right" border="0"></a> LUCABRENDA wrote: brenda, 2009, CDKL5 brenda 2009 CDKL5 2009-05-16T14:15:54+05:00 217 http://rett.tv/video/Cdkl5-Lo-sguardo-di-Elena-promo Cdkl5 Lo sguardo di Elena - promo http://www.youtube.com/v/LChvb_c2fBE http://s3.amazonaws.com/magnifythumbs/SM1BKGNCPGP3PQ89.jpg <a href="http://rett.tv/video/Cdkl5-Lo-sguardo-di-Elena-promo"><img src="http://s3.amazonaws.com/magnifythumbs/SM1BKGNCPGP3PQ89.jpg" align="right" border="0"></a> massimilianovalli wrote: Progetto di documentario a cura di Emanuela Defranceschi e Massimiliano Valli. Per effetto di una mutazione genetica da poco scoperta la mente di Elena si è fermata ai 10 mesi di vita. Assieme alla madre Emanuela entriamo nel mondo quotidiano delle malattie rare convinti che la ricerca può aiutare Elena e tanti altri a migliorare una difficile esistenza. 2009-05-16T14:16:23+05:00 319 http://rett.tv/video/ASSOCIAZIONE-CDKL5 ASSOCIAZIONE CDKL5 http://www.youtube.com/v/XYqCxcYOImA http://s3.amazonaws.com/magnifythumbs/XKSDHJ91V1K9K8ZF.jpg <a href="http://rett.tv/video/ASSOCIAZIONE-CDKL5"><img src="http://s3.amazonaws.com/magnifythumbs/XKSDHJ91V1K9K8ZF.jpg" align="right" border="0"></a> umberto093 wrote: Descrizione delle attività svolte dall'Associazione CDKL5 2009-05-16T14:16:25+05:00 261 http://rett.tv/video/conclusioni conclusioni http://www.youtube.com/v/yv2D6F9YTfA http://s3.amazonaws.com/magnifythumbs/KKV79MF4B7H3Y58B.jpg <a href="http://rett.tv/video/conclusioni"><img src="http://s3.amazonaws.com/magnifythumbs/KKV79MF4B7H3Y58B.jpg" align="right" border="0"></a> umberto093 wrote: ... Progetto CDKL5 Progetto, CDKL5 Progetto CDKL5 2009-05-16T14:17:01+05:00 342 http://rett.tv/video/Gunner-SeizurePart-2-CDKL5 Gunner SeizurePart 2 (CDKL5) http://www.youtube.com/v/XRP1-aKKWK4 http://s3.amazonaws.com/magnifythumbs/YJ73P4QWSRQLJ0FJ.jpg <a href="http://rett.tv/video/Gunner-SeizurePart-2-CDKL5"><img src="http://s3.amazonaws.com/magnifythumbs/YJ73P4QWSRQLJ0FJ.jpg" align="right" border="0"></a> Judyw2009 wrote: This is the Second part of the seizure Gunner was having. As I said This is my 22 month old old son, Gunner, having as He has CDKL5, a rare genetic disorder which causes him to have seizures and he is also develpmentally delayed. They started out as Infantile Spasms when he was just a few months old but have now gotten worse. He is on three different seizure meds right now but we will probably be changing that too because the seizures have gotten worse. THere is no cure for CDKL5 at this ... CDKL5.com CDKL5.com 2009-05-16T14:17:09+05:00 106 http://rett.tv/video/Gunner-Seizures-CDKL5 Gunner Seizures (CDKL5) http://www.youtube.com/v/ufhdyPyr6G0 http://s3.amazonaws.com/magnifythumbs/RJ1PYPMXMGPDFF4B.jpg <a href="http://rett.tv/video/Gunner-Seizures-CDKL5"><img src="http://s3.amazonaws.com/magnifythumbs/RJ1PYPMXMGPDFF4B.jpg" align="right" border="0"></a> Judyw2009 wrote: This is my 22 month old old son, Gunner, having a seizure. He has CDKL5, a rare genetic disorder which causes him to have seizures and he is also develpmentally delayed. They started out as Infantile Spasms when he was just a few months old but have now gotten worse. He is on three different seizure meds right now but we will probably be changing that too because the seizures have gotten worse. THere is no cure for CDKL5 at this time but we continue to pray that one day there will be. He is ... www.CDKL5.com www.CDKL5.com 2009-05-16T14:17:19+05:00 63 http://rett.tv/video/Silent-Angel-c-2009-Rick-and-Ka Silent Angel (c) 2009 Rick and Kathy Jamison http://www.youtube.com/v/8V9dTTshkHM http://s3.amazonaws.com/magnifythumbs/G9G16YHSGC3RNDK0.jpg <a href="http://rett.tv/video/Silent-Angel-c-2009-Rick-and-Ka"><img src="http://s3.amazonaws.com/magnifythumbs/G9G16YHSGC3RNDK0.jpg" align="right" border="0"></a> First recording of original song "Silent Angel" at Lobos Lodge, Carmel, CA, May 2, 2009. Co-written by Rick Jamison and Kathy Schmidt Silent Angel, Rick and Kathy Silent Angel Rick and Kathy 2009-05-09T23:04:18+05:00 http://rett.tv/video/Hollycare1 Hollycare1 http://www.youtube.com/v/qi73CRSjShY http://s3.amazonaws.com/magnifythumbs/B6RX0XD1NSDP91XV.jpg <a href="http://rett.tv/video/Hollycare1"><img src="http://s3.amazonaws.com/magnifythumbs/B6RX0XD1NSDP91XV.jpg" align="right" border="0"></a> owlydog wrote: Taking care of a qudraplegic ... quadraplegic stroke disabled bed wheelchair quad brain trauma damage CP Rett Syndrome special care disability helpless disease disorder handicapped sick illness Holly family God Christian faith prayer 2009-05-09T17:51:46+05:00 652 http://rett.tv/video/hollycare2 hollycare2 http://www.youtube.com/v/jC-Za_VjRaI http://s3.amazonaws.com/magnifythumbs/9ND6NZ9M1KG50LDT.jpg <a href="http://rett.tv/video/hollycare2"><img src="http://s3.amazonaws.com/magnifythumbs/9ND6NZ9M1KG50LDT.jpg" align="right" border="0"></a> owlydog wrote: quadraplegic home care Holly has Rett syndrome She is 33 years old ... quadraplegic stroke disabled bed wheelchair quad brain trauma damage CP Rett Syndrome special care disability helpless disease disorder handicapped sick illness Holly family God Christian faith prayer 2009-05-09T17:44:46+05:00 639 http://rett.tv/video/Sindrome-de-Rett-7 Sindrome de Rett http://www.youtube.com/v/B2yl05V4iEc http://s3.amazonaws.com/magnifythumbs/FXRNCS7QF8PKT9H5.jpg <a href="http://rett.tv/video/Sindrome-de-Rett-7"><img src="http://s3.amazonaws.com/magnifythumbs/FXRNCS7QF8PKT9H5.jpg" align="right" border="0"></a> talenthus wrote: Sindrome, de, rett Sindrome de rett 2009-05-09T17:48:12+05:00 238 http://rett.tv/video/Asociacin-Valenciana-Sndrome-d-2 Asociación Valenciana Síndrome de Rett, III Encuentro de Familias 2009, 2ª parte http://www.youtube.com/v/f9vsps7Ldwc http://s3.amazonaws.com/magnifythumbs/PVN6VP47G3SGKHK6.jpg <a href="http://rett.tv/video/Asociacin-Valenciana-Sndrome-d-2"><img src="http://s3.amazonaws.com/magnifythumbs/PVN6VP47G3SGKHK6.jpg" align="right" border="0"></a> petrelrett wrote: La asociación valenciana del Síndrome de Rett celebra su III Encuentro de Familias Rett España fantastico esta es la 2ª parte del Encuentro estubimos acompañados por la Asociación el Circo de Piruleto, FANTASTICOS S S 2009-05-09T17:48:41+05:00 608 http://rett.tv/video/Matteo-Setti-e-la-Ricerca-per-l Matteo Setti e la Ricerca per la Sindrome di Rett (Lestizza, 25-03-09) http://www.youtube.com/v/jFicnzxusuo http://s3.amazonaws.com/magnifythumbs/R35CC37MPDYH792B.jpg <a href="http://rett.tv/video/Matteo-Setti-e-la-Ricerca-per-l"><img src="http://s3.amazonaws.com/magnifythumbs/R35CC37MPDYH792B.jpg" align="right" border="0"></a> LallaEmera wrote: Da anni Matteo dedica molto tempo e molta energia alla ricerca scientifica per capire come la musica, la voce, il canto possano fare da ponte di comunicazione per arrivare le corde profonde di bambini con gravi forme autistiche (in particolare le affette da Sindrome di Rett, una patologia genetica con regressione neurologica e autismo, che colpisce quasi esclusivamente il sesso femminile, con frequenza di circa 1/10000). Ci scusiamo per la qualità del video e per l'audio, che in vari punti ... 2009-05-09T17:51:01+05:00 79 http://rett.tv/video/Rett-Syndrome-Hippotherapy Rett Syndrome..Hippotherapy http://www.youtube.com/v/3Zy_xmELvF0 http://s3.amazonaws.com/magnifythumbs/BBR4NKDPTMF0RQ9F.jpg <a href="http://rett.tv/video/Rett-Syndrome-Hippotherapy"><img src="http://s3.amazonaws.com/magnifythumbs/BBR4NKDPTMF0RQ9F.jpg" align="right" border="0"></a> judyturner316 wrote: Sarah Turner has Rett Syndrome.. she cannot eat, walk, talk or use her hands in any way..She is tube fed, epileptic and suffers with a scoliosis (curved spine). She was a 'normal baby until she was 2 years old when she went through a developmental regression. She has been horse riding since she was 3 years old and through this has maintained a straight spine and good posture. She loves these sessions and at the age of 16 can now ride for 30 minutes with someone just holding her foot. She ... 2009-05-07T09:09:44+05:00 229 http://rett.tv/video/Asociacin-Valenciana-Sndrome-de Asociación Valenciana Síndrome de Rett, III Encuentro de Familias 2009, 1ª parte http://www.youtube.com/v/rlQWRr5KyaY http://s3.amazonaws.com/magnifythumbs/HVX1X24RYXQFRHCN.jpg <a href="http://rett.tv/video/Asociacin-Valenciana-Sndrome-de"><img src="http://s3.amazonaws.com/magnifythumbs/HVX1X24RYXQFRHCN.jpg" align="right" border="0"></a> petrelrett wrote: La Asociación Valenciana del Síndrome de Rett, que es de ambito de todo el estado Español, organiza su III Encuentro de Familias Rett España, con la Presencia de las Dra. Mercedes Pineda, Judth Armstrong, Rocio Gonzalez y la Psicologa Mª José Navarro y como no, Con las Familias Rett. fue estupendo S S 2009-05-07T09:12:19+05:00 614 http://rett.tv/video/EL-SINDROME-DE-RETT EL SINDROME DE RETT http://www.youtube.com/v/0IPMs1AFufc http://s3.amazonaws.com/magnifythumbs/XRGCPMH1CVR1Z645.jpg <a href="http://rett.tv/video/EL-SINDROME-DE-RETT"><img src="http://s3.amazonaws.com/magnifythumbs/XRGCPMH1CVR1Z645.jpg" align="right" border="0"></a> talenthus wrote: EL, rett, SINDROME, DE EL rett SINDROME DE 2009-05-07T09:12:54+05:00 248 http://rett.tv/video/SINDROME-DI-RETT-MECP2 SINDROME DI RETT MECP2 http://www.youtube.com/v/CPNOWhBerPw http://s3.amazonaws.com/magnifythumbs/MF72GSGQZTXV1NL4.jpg <a href="http://rett.tv/video/SINDROME-DI-RETT-MECP2"><img src="http://s3.amazonaws.com/magnifythumbs/MF72GSGQZTXV1NL4.jpg" align="right" border="0"></a> angel1068 wrote: malatie, genetiche malatie genetiche 2009-05-07T09:14:58+05:00 193 http://rett.tv/video/Isabella-Video-AIR Isabella Video AIR http://www.youtube.com/v/0nP7l95cGN0 http://s3.amazonaws.com/magnifythumbs/GNL08QQQJGBBXR62.jpg <a href="http://rett.tv/video/Isabella-Video-AIR"><img src="http://s3.amazonaws.com/magnifythumbs/GNL08QQQJGBBXR62.jpg" align="right" border="0"></a> alpan71 wrote: alle famiglie, contribuisce alla diffusione di studi e conoscenze, organizza eventi e centri di raccolta fondi anche grazie al supporto di ViviRett, il periodico dellAIR, ma soprattutto si mobilita per sostenere, finanziandola, la ricerca genetica. Oggi, dopo decenni di ricerche, studi e raccolte fondi a livello internazionale, la qualità della loro vita è migliorata, le associazioni sono cresciute in tutta Europa allinsegna della solidarietà e degli aiuti alle famiglie, la ricerca ha ... album0 album0 2009-05-07T09:15:40+05:00 338 http://rett.tv/video/Rett-Syndrome-Video Rett Syndrome Video http://www.youtube.com/v/T7dMCezXGmU http://s3.amazonaws.com/magnifythumbs/WHF640XRVJBKX7V6.jpg <a href="http://rett.tv/video/Rett-Syndrome-Video"><img src="http://s3.amazonaws.com/magnifythumbs/WHF640XRVJBKX7V6.jpg" align="right" border="0"></a> jayfabunan wrote: rett, Video rett Video 2009-05-07T09:15:49+05:00 397 http://rett.tv/video/Alyssa-Moms-B-day-Gift Alyssa Moms B day Gift http://www.youtube.com/v/7bEdfNQv8uE http://s3.amazonaws.com/magnifythumbs/C6YXPZSHXJQ864CT.jpg <a href="http://rett.tv/video/Alyssa-Moms-B-day-Gift"><img src="http://s3.amazonaws.com/magnifythumbs/C6YXPZSHXJQ864CT.jpg" align="right" border="0"></a> familiacoronel246 wrote: Alyssa battling through Rett-Syndrome Our Angel 7yrs old ... Alyssa Moms B day Gift 2009-05-02T12:55:12+05:00 546 http://rett.tv/video/Angel-Wings-For-Jenny-2 Angel Wings For Jenny http://www.youtube.com/v/pd5403LO6pc http://s3.amazonaws.com/magnifythumbs/KBW7CDP50J0VD6VV.jpg <a href="http://rett.tv/video/Angel-Wings-For-Jenny-2"><img src="http://s3.amazonaws.com/magnifythumbs/KBW7CDP50J0VD6VV.jpg" align="right" border="0"></a> breaux6 wrote: hard battle for 17 years with Rett Syndrome, and severe seizures. She was a our sweet angel, we love and miss her. Ronald and Chrissy Breaux Jennifer Loraine Breaux 3/23/1983 - 6/15/2000 "Angel Wings for Jenny" jenniferbreaux.homes... In Memory Of web site Angels Too Soon CD Michael Peace with the song "Angel Wings for Jenny" http The Book: "Angel Wings For Jenny" By Chrissy Breaux www.publishamerica.com Jennifer Loraine Breaux 3/23/1983 - June 15, 2000 ... angel wings rett syndrome irsa julia ... 8.87 2009-05-02T12:55:18+05:00 272 http://rett.tv/video/Payback-time Payback time http://videos.cache.magnify.net/GWYXW5DYNX3N0WPY-MOV03742-07February2009_80_780_384x288.flv http://s3.amazonaws.com/magnifythumbs/GWYXW5DYNX3N0WPY-l.jpg <a href="http://rett.tv/video/Payback-time"><img src="http://s3.amazonaws.com/magnifythumbs/GWYXW5DYNX3N0WPY-l.jpg" align="right" border="0"></a> Juliet is 6 years old and has Rett Syndrome. Juliet drives her 3 year old sister, Mary, up the wall, so Mary drives Juliet around the back yard!! 10 rett rett 2009-04-28T08:38:58+05:00 http://rett.tv/video/Julianna-Vinnie-and-Elmo-D Julianna, Vinnie...and Elmo :D http://www.youtube.com/v/xC5gYgraCz8 http://s3.amazonaws.com/magnifythumbs/X1HZ52Y577KSC71X.jpg <a href="http://rett.tv/video/Julianna-Vinnie-and-Elmo-D"><img src="http://s3.amazonaws.com/magnifythumbs/X1HZ52Y577KSC71X.jpg" align="right" border="0"></a> MariaLuvzA7X wrote: I take you on a small visit to my home. This is just part of what goes on in my home. Vinnie steals food, Julie watches TV all day and...Elmo!!! **Julianna has Rett Syndrome and Vinnie has Autism sister, rett, brother, autism sister rett brother autism 2009-04-18T00:51:38+05:00 325 http://rett.tv/video/Angel-Wings-For-Jenny Angel Wings For Jenny http://www.youtube.com/v/_yO1Ox4uLAQ http://s3.amazonaws.com/magnifythumbs/6WDGSZ99FJQPBMXH.jpg <a href="http://rett.tv/video/Angel-Wings-For-Jenny"><img src="http://s3.amazonaws.com/magnifythumbs/6WDGSZ99FJQPBMXH.jpg" align="right" border="0"></a> In Memory of Jennifer Lorraine Breaux . She fought a hard battle for 17 years with Rett Syndrome, and severe seizures. She was a our sweet angel, we love and miss her. Ronald and Chrissy Breaux Jennifer Loraine Breaux 3/23/1983 - 6/15/2000 "Angel Wings for Jenny" http://jenniferbreaux.homestead.com/Jen.html In Memory Of web site Angels Too Soon CD Michael Peace with the song "Angel Wings for Jenny" http://www.soundclick.com/bands/default.cfm?bandID=126938&content=music The Book: "Angel Wings For Jenny" By Chrissy Breaux http://www.publishamerica.com/ rett, jenny, youtube rett jenny youtube 2009-04-18T00:39:40+05:00 225 http://rett.tv/video/Rett-Angel-On-Easter-Sunday Rett Angel On Easter Sunday http://www.youtube.com/v/EBNzdOepXLc http://s3.amazonaws.com/magnifythumbs/9TKQK1FM7RSXQ3FG.jpg <a href="http://rett.tv/video/Rett-Angel-On-Easter-Sunday"><img src="http://s3.amazonaws.com/magnifythumbs/9TKQK1FM7RSXQ3FG.jpg" align="right" border="0"></a> 24HourStore wrote: Carrie is our Rett Angel. She has Rett Syndrome which almost always only effects girls. She loves to eat. We got such a kick out of her on Easter Sunday. Each time she was ready for another bite of food she'd impatiently tap on the dining room table. She doesn't usually do that. Carrie is 16. rett, angel rett angel 2009-04-15T09:07:49+05:00 52 http://rett.tv/video/Lauras-24-BD2 Laura Battistone 24th Birthday - Part 2 http://www.youtube.com/v/e0PyUzuS8LI http://s3.amazonaws.com/magnifythumbs/XVYX2N1Z2YRHWMJQ.jpg <a href="http://rett.tv/video/Lauras-24-BD2"><img src="http://s3.amazonaws.com/magnifythumbs/XVYX2N1Z2YRHWMJQ.jpg" align="right" border="0"></a> This segment was taken during her celebration on November 18, 2008, after all 24 candles were blown out on her cake. Only then did we realize that the flames and light from that many candles must have startled her! Once we figured it out, then Laura started smiling. What a special event for all. She will be dearly missed. Laura Laura 2009-04-13T13:42:47+05:00 40 http://rett.tv/video/Laura-Battistone-24th-Birthday-2 Laura Battistone 24th Birthday http://www.youtube.com/v/1EmhktLn7Fg http://s3.amazonaws.com/magnifythumbs/5KK1F09VTWTQVNLM.jpg <a href="http://rett.tv/video/Laura-Battistone-24th-Birthday-2"><img src="http://s3.amazonaws.com/magnifythumbs/5KK1F09VTWTQVNLM.jpg" align="right" border="0"></a> Laura's 24th birthday celebration, November 18, 2008 rett, Laura, Battistone rett Laura Battistone 2009-04-13T13:27:19+05:00 60 http://rett.tv/item/4KGW90QDJVT8T63V ��って奈々ちゃん～�� http://www.youtube.com/v/zLcAXpZmxfA http://s3.amazonaws.com/magnifythumbs/SZQZ2PZYYPSZ8DX3.jpg <a href="http://rett.tv/item/4KGW90QDJVT8T63V"><img src="http://s3.amazonaws.com/magnifythumbs/SZQZ2PZYYPSZ8DX3.jpg" align="right" border="0"></a> Can anyone translate this to English? 2009-04-13T13:30:24+05:00 456 http://rett.tv/item/VRS91FXBZQJG0RXJ 笑って奈々ちゃん～� http://www.youtube.com/v/HArgsEa81jc http://s3.amazonaws.com/magnifythumbs/FR9Q4VG7PY6R0P9S.jpg <a href="http://rett.tv/item/VRS91FXBZQJG0RXJ"><img src="http://s3.amazonaws.com/magnifythumbs/FR9Q4VG7PY6R0P9S.jpg" align="right" border="0"></a> Can anyone translate this to English? 2009-04-13T13:31:03+05:00 525 http://rett.tv/video/When-You-Say-Nothing-At-All-Spe 'When You Say Nothing At All': Special Appeal Video by Laura Broad http://www.youtube.com/v/I8YhY4JDPUc http://s3.amazonaws.com/magnifythumbs/V02YQRD6H7S2JB0Y.jpg <a href="http://rett.tv/video/When-You-Say-Nothing-At-All-Spe"><img src="http://s3.amazonaws.com/magnifythumbs/V02YQRD6H7S2JB0Y.jpg" align="right" border="0"></a> blawah2000 wrote: This is a very special video to announce a special Dress Up To Cure fundraising day for a friend on mine on April 1st. My friends little girl, Melody has just been diagnosed with Retts Syndrome, a complex, neurological disorder. It means that loving, smiley little Melody cant talk, walk, crawl and has to be fed via a tube to her stomach. She will need constant specialist care throughout her life and is continually battling infection. The condition affects 1 in 10000 girls, which suprisingly ... 2009-04-06T15:15:06+05:00 238 http://rett.tv/video/Lets-All-Laugh-at-Rangers-ha-ha Lets All Laugh at Rangers ha ha ha ha http://www.youtube.com/v/HCpSrqaH43c http://s3.amazonaws.com/magnifythumbs/NBFPZZ5PTRVFZ9RP.jpg <a href="http://rett.tv/video/Lets-All-Laugh-at-Rangers-ha-ha"><img src="http://s3.amazonaws.com/magnifythumbs/NBFPZZ5PTRVFZ9RP.jpg" align="right" border="0"></a> Inter6721 wrote: My girlfriends daughter has Rhett Syndrome, this is her reaction to hearing Celtic have just beaten Rangers 2-0 in the Cup Final SDC10548 SDC10548 2009-04-06T15:15:43+05:00 35 http://rett.tv/video/Era-un-giorno-di-pioggia Era un giorno di pioggia http://www.youtube.com/v/E6BSRD_5eGw http://s3.amazonaws.com/magnifythumbs/L7QY6X8V8SV521WC.jpg <a href="http://rett.tv/video/Era-un-giorno-di-pioggia"><img src="http://s3.amazonaws.com/magnifythumbs/L7QY6X8V8SV521WC.jpg" align="right" border="0"></a> Telethonitalia wrote: E' una fredda mattina d'inverno. Piove incessantemente, come pioveva il giorno in cui i medici diagnosticarono alla piccola Giulia una terribile malattia genetica: la sindrome di Rett. Giulia, che ora ha sette anni, ha perso l'uso del linguaggio ed il controllo del proprio corpo. I suoi genitori, Barbara e Marcello, ricordano quel giorno piovoso ed i tragici momenti che seguirono la scoperta della malattia. Per saperne di più: http://www.telethon.it 2009-04-03T18:42:24+05:00 272 http://rett.tv/video/El-sndorme-de-Rett-Criaturas-de El síndorme de Rett. Criaturas de otro planeta, entrevista a Elisabet Pedrosa (redacción de noche) http://www.youtube.com/v/MX3oguJi64k http://s3.amazonaws.com/magnifythumbs/W4W32CBLQCW5TJX5.jpg <a href="http://rett.tv/video/El-sndorme-de-Rett-Criaturas-de"><img src="http://s3.amazonaws.com/magnifythumbs/W4W32CBLQCW5TJX5.jpg" align="right" border="0"></a> redacciondenoche wrote: ¿Qué es el síndrome de Rett? ¿Cómo es la vida de una madre en su día a día? La periodista catalana Elisabet Pedrosa nos habla de Criaturas de otro planeta, un año de su vida junto a Gina su hija con síndorme de Rett 2009-04-03T18:43:24+05:00 488 http://rett.tv/video/Lia-feeding-herself Lia feeding herself http://www.youtube.com/v/h8lIAwkFGNQ http://s3.amazonaws.com/magnifythumbs/TQP42LC4PZBB9WMH.jpg <a href="http://rett.tv/video/Lia-feeding-herself"><img src="http://s3.amazonaws.com/magnifythumbs/TQP42LC4PZBB9WMH.jpg" align="right" border="0"></a> LiaCanDoIt wrote: Lia is 5 and a half years old. She is a special needs child. She is considered severely retarded and autistic. We are very proud of her progress and are helping her the best we can. In this video, she is beginning to feed herself! She only uses her right hand, and you will see, she is still pretty shaky. But it is a great start! If you have a child who is on this same path, don&#39;t give up...Lia ate exclusively from a bottle until the age of 3 and 1/2. She began holding her bottle at the age ... 2009-03-31T08:50:04+05:00 212 http://rett.tv/video/abbyv2yrsoldot abbyv2yrsoldot http://www.youtube.com/v/Y8SnikJe_jc http://s3.amazonaws.com/magnifythumbs/6VT9PNX4794QM90J.jpg <a href="http://rett.tv/video/abbyv2yrsoldot"><img src="http://s3.amazonaws.com/magnifythumbs/6VT9PNX4794QM90J.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V. Rett Syndrome. This video was taken with Abby and her OT during the throws of regression in 2006. Still very healthy here and had just lost speech and hand function ... rett rett 2009-03-31T08:49:29+05:00 264 http://rett.tv/video/Rett-Syndrome-Coffee-Break-with Rett Syndrome - Coffee Break with Jenny n' Bezi http://www.youtube.com/v/c0TjrE-HK3w http://s3.amazonaws.com/magnifythumbs/W1S04675QRH10VSC.jpg <a href="http://rett.tv/video/Rett-Syndrome-Coffee-Break-with"><img src="http://s3.amazonaws.com/magnifythumbs/W1S04675QRH10VSC.jpg" align="right" border="0"></a> Crazy4Monkeys13 wrote: This is all about Rett Syndrome! I did this for a class assignment for my Molecular Biology course. The purpose of the assignment was to explain the process of the syndrome so that people not familiar with science would understand it. ... 7.75 rett, CpG, Rtt, mecp2 rett CpG Rtt mecp2 2009-03-31T08:52:47+05:00 599 http://rett.tv/video/abbyv2yrsoldpt abbyv2yrsoldpt http://www.youtube.com/v/tlNe6wY0DYY http://s3.amazonaws.com/magnifythumbs/CBKG59W5KDKC8KSX.jpg <a href="http://rett.tv/video/abbyv2yrsoldpt"><img src="http://s3.amazonaws.com/magnifythumbs/CBKG59W5KDKC8KSX.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V. Rett Syndrome. This video was taken with Abby and her PT shortly after her diagnosis during the throws of regression in 2006. Trying very hard her to fight her Apraxia. ... rett rett 2009-03-31T08:50:50+05:00 178 http://rett.tv/video/Abby-gigle-fit Abby gigle fit http://www.youtube.com/v/Gs2FjMQCv7A http://s3.amazonaws.com/magnifythumbs/PC9TYW02XG29XWQL.jpg <a href="http://rett.tv/video/Abby-gigle-fit"><img src="http://s3.amazonaws.com/magnifythumbs/PC9TYW02XG29XWQL.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V Rett Syndrome. 4 years old. Having a party with her pediasure. Hilarious ... rett rett 2009-03-31T08:50:22+05:00 398 http://rett.tv/video/Tara-David-Radio-Interview-Par-2 Tara & David Radio Interview Part 2 http://www.youtube.com/v/0RUoFn-eMxU http://s3.amazonaws.com/magnifythumbs/B3Z68VKF71QFLCX8.jpg <a href="http://rett.tv/video/Tara-David-Radio-Interview-Par-2"><img src="http://s3.amazonaws.com/magnifythumbs/B3Z68VKF71QFLCX8.jpg" align="right" border="0"></a> RaceForGrace wrote: www.theRaceforGrace.com 27th March 2009 Tara &amp; David Reddington Interviewed by Dan Yorke for Radio WPRO 630am 99.7fm Annual Hasbro Childrens Hospital Radiothon www.630wpro.com www.lifespan.org/hch ... 2009-03-31T08:49:59+05:00 428 http://rett.tv/video/Tara-David-Radio-Interview-Part Tara & David Radio Interview Part 1 http://www.youtube.com/v/zdEWJAeXVtw http://s3.amazonaws.com/magnifythumbs/CRF6YXJRCLV866WV.jpg <a href="http://rett.tv/video/Tara-David-Radio-Interview-Part"><img src="http://s3.amazonaws.com/magnifythumbs/CRF6YXJRCLV866WV.jpg" align="right" border="0"></a> RaceForGrace wrote: www.theRaceforGrace.com 27th March 2009 Tara &amp; David Reddington Interviewed by Dan Yorke for Radio WPRO 630am 99.7fm Annual Hasbro Childrens Hospital Radiothon www.630wpro.com www.lifespan.org/hch ... 2009-03-31T08:49:52+05:00 387 http://rett.tv/video/colors-and-shapes colors and shapes http://www.youtube.com/v/1RTdmqfW6eo http://s3.amazonaws.com/magnifythumbs/Y7CSVJ8P6FPPP4ZT.jpg <a href="http://rett.tv/video/colors-and-shapes"><img src="http://s3.amazonaws.com/magnifythumbs/Y7CSVJ8P6FPPP4ZT.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V. Rett Syndrome. Choosing shapes and colors through work at home with store bought flashcards. ... rett rett 2009-03-31T08:50:55+05:00 171 http://rett.tv/video/Laura-just-being-cute Laura just being cute. http://www.youtube.com/v/l8OICl-kFNg http://s3.amazonaws.com/magnifythumbs/HK7MWTWLFCRQHHKP.jpg <a href="http://rett.tv/video/Laura-just-being-cute"><img src="http://s3.amazonaws.com/magnifythumbs/HK7MWTWLFCRQHHKP.jpg" align="right" border="0"></a> stellachops wrote: rett rett 2009-03-22T07:13:47+05:00 16 http://rett.tv/video/Laura-and-Mummy-walking-outside Laura and Mummy walking outside http://www.youtube.com/v/9Ad0pScyR7c http://s3.amazonaws.com/magnifythumbs/6VV4YZJZX4LXMWQY.jpg <a href="http://rett.tv/video/Laura-and-Mummy-walking-outside"><img src="http://s3.amazonaws.com/magnifythumbs/6VV4YZJZX4LXMWQY.jpg" align="right" border="0"></a> stellachops wrote: It's a sunny day - Let's go for a walk! rett rett 2009-03-22T07:14:37+05:00 42 http://rett.tv/video/Making-Choices-with-Rett-Syndro Making Choices with Rett Syndrome http://www.youtube.com/v/wprwUxXpMw0 http://s3.amazonaws.com/magnifythumbs/MCYTZPY8YFD6DM3S.jpg <a href="http://rett.tv/video/Making-Choices-with-Rett-Syndro"><img src="http://s3.amazonaws.com/magnifythumbs/MCYTZPY8YFD6DM3S.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V . 4 year old with Rett Syndrome. Non Verbal. Making choices from home made flash card book. Working through her Apraxia to choose the answers. She is working on which one is like this. We are attempting to show the patience it takes to see that these girls are there and are aware. More to come. rett, Syndrome-Education rett Syndrome-Education 2009-03-22T07:16:45+05:00 200 http://rett.tv/video/Rachels-Stroll-and-Roll-for-Ret Rachel's Stroll and Roll for Rett Syndrome http://www.youtube.com/v/9pDeTKbJNwM http://s3.amazonaws.com/magnifythumbs/VX3SYVPJM8D6C16J.jpg <a href="http://rett.tv/video/Rachels-Stroll-and-Roll-for-Ret"><img src="http://s3.amazonaws.com/magnifythumbs/VX3SYVPJM8D6C16J.jpg" align="right" border="0"></a> bnshdl wrote: A short slideshow rett, proshow rett proshow 2009-03-19T16:38:32+05:00 264 http://rett.tv/video/storytime storytime http://www.youtube.com/v/-dGxGCzJoLY http://s3.amazonaws.com/magnifythumbs/WL1KJZFZBTPZWCR6.jpg <a href="http://rett.tv/video/storytime"><img src="http://s3.amazonaws.com/magnifythumbs/WL1KJZFZBTPZWCR6.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby V. 4 year old with Rett Syndrome. Participating with back and forth interaction and communication during story time. rett, Syndrome-education rett Syndrome-education 2009-03-19T16:36:18+05:00 160 http://rett.tv/video/Harlem-Children-Society-2008-Le Harlem Children Society 2008 Lecture Series 8: Thahmina Ali and Viktoria Curbelo http://www.youtube.com/v/8owCMrQ1qys http://s3.amazonaws.com/magnifythumbs/PC19J27M16KHXSYZ.jpg <a href="http://rett.tv/video/Harlem-Children-Society-2008-Le"><img src="http://s3.amazonaws.com/magnifythumbs/PC19J27M16KHXSYZ.jpg" align="right" border="0"></a> hcsnyc wrote: Thahmina Ali, HCS Student Class of 2008; Viktoria Curbelo, HCS Student Class of 2008. Rett Syndrome 2009-03-19T16:39:45+05:00 430 http://rett.tv/video/Holly-Dance Holly Dance http://www.youtube.com/v/rrU8j7pHeCQ http://s3.amazonaws.com/magnifythumbs/QSH7Z04HFJB1CR7C.jpg <a href="http://rett.tv/video/Holly-Dance"><img src="http://s3.amazonaws.com/magnifythumbs/QSH7Z04HFJB1CR7C.jpg" align="right" border="0"></a> owlydog wrote: Whilst waiting for Holly's stinky bus today, we were listening to some tunes from YT, and this one was one of my subbers. So I turned on the Logitech webcam to capture this little dance with Holly. I did not have the mic live, sp you can not hear us clapping and talking, but she sure enjoyed the dancing and tunes. handicapped, rett, autism, disabled handicapped rett autism disabled 2009-03-19T16:37:38+05:00 188 http://rett.tv/video/Laura-and-Daddy Laura and Daddy http://www.youtube.com/v/XrhpK4iuVX4 http://s3.amazonaws.com/magnifythumbs/9NJMCD0CN59Y79LP.jpg <a href="http://rett.tv/video/Laura-and-Daddy"><img src="http://s3.amazonaws.com/magnifythumbs/9NJMCD0CN59Y79LP.jpg" align="right" border="0"></a> stellachops wrote: rett rett 2009-03-19T16:40:09+05:00 44 http://rett.tv/video/Paddle-for-Hope-Rett-Syndrome-N Paddle for Hope - Rett Syndrome News Story http://www.youtube.com/v/ib3f9iLEFlI http://s3.amazonaws.com/magnifythumbs/7N5Z44VWCQKZ3T78.jpg <a href="http://rett.tv/video/Paddle-for-Hope-Rett-Syndrome-N"><img src="http://s3.amazonaws.com/magnifythumbs/7N5Z44VWCQKZ3T78.jpg" align="right" border="0"></a> paddleforhope wrote: In late February 2009, eight mates from Brisbane paddled in kayaks. They raised over $34000 to support Rett Syndrome research in Australia! For more info see http://rettsyndromeaust.org.au Hope, rett, Paddle Hope rett Paddle 2009-03-10T10:21:33+05:00 51 http://rett.tv/video/Abbys-Diego-Dance Abby's Diego Dance http://www.youtube.com/v/PCGyPQ185VA http://s3.amazonaws.com/magnifythumbs/P0X0R2KGCG6DY9MP.jpg <a href="http://rett.tv/video/Abbys-Diego-Dance"><img src="http://s3.amazonaws.com/magnifythumbs/P0X0R2KGCG6DY9MP.jpg" align="right" border="0"></a> VejrostaFamily wrote: Abby has Rett Syndrome and is recovering from Failure to thrive and gtube surgery. She is 4 years old dance, Abby, rett dance Abby rett 2009-03-10T10:24:32+05:00 57 http://rett.tv/video/Willemijn-5-jaar Willemijn 5 jaar http://www.youtube.com/v/54yEAE6uHQQ http://s3.amazonaws.com/magnifythumbs/BZX1DNT1WVG5MXRH.jpg <a href="http://rett.tv/video/Willemijn-5-jaar"><img src="http://s3.amazonaws.com/magnifythumbs/BZX1DNT1WVG5MXRH.jpg" align="right" border="0"></a> ericmirjam wrote: 2 februari vieren we de 5e verjaardag van onze <b>Rett</b>-topper Willemijn! rett, willemijn rett willemijn 2009-03-10T10:26:59+05:00 164 http://rett.tv/video/Rachel-Lynn-Kopelman Rachel Lynn Kopelman http://www.youtube.com/v/txSAaQOSWaE http://s3.amazonaws.com/magnifythumbs/7P41Y9NBD2C8KSDP.jpg <a href="http://rett.tv/video/Rachel-Lynn-Kopelman"><img src="http://s3.amazonaws.com/magnifythumbs/7P41Y9NBD2C8KSDP.jpg" align="right" border="0"></a> I found this video on YouTube so I thought I'd share it on here because it's about a girl with Rett Syndrome and it hasn't been on here. rett, youtube rett youtube 2009-03-10T01:56:22+05:00 138 http://rett.tv/video/Gaat-het-toch-gebeuren-Fleurtje Gaat het toch gebeuren? Fleurtje's eerste stappen!!! http://www.youtube.com/v/T8D3AYnggbY http://s3.amazonaws.com/magnifythumbs/BWLRQG230L21F9GY.jpg <a href="http://rett.tv/video/Gaat-het-toch-gebeuren-Fleurtje"><img src="http://s3.amazonaws.com/magnifythumbs/BWLRQG230L21F9GY.jpg" align="right" border="0"></a> MARTINEFLEUR wrote: Fleur is een prachtig meisje met het Rett Syndroom en ruim 5,5 jaar oud. Op 11 december zette zij haar eerste echte stapjes alleen. Wij zijn dan ook apetrots op onze meid! Op 13 december liep ze al langere stukjes alleen. 001, Fleurtje, loopt!!! 001 Fleurtje loopt!!! 2009-02-27T17:34:10+05:00 30 http://rett.tv/video/Pipofeest-tbv-stichting-Rett-Pi Pipofeest tbv stichting Rett - Pipowagendeluxe http://www.youtube.com/v/a63-Xk1zRLQ http://s3.amazonaws.com/magnifythumbs/W8LTMBJDQ2ZDSJ78.jpg <a href="http://rett.tv/video/Pipofeest-tbv-stichting-Rett-Pi"><img src="http://s3.amazonaws.com/magnifythumbs/W8LTMBJDQ2ZDSJ78.jpg" align="right" border="0"></a> vakantieverblijf wrote: Pipodag tbv Stichting Rett Syndroom met Belinda Meuldijk 2009-02-27T17:35:11+05:00 301 http://rett.tv/video/Nathalie-ademhaling Nathalie ademhaling http://www.youtube.com/v/x8yajv479Zg http://s3.amazonaws.com/magnifythumbs/6N76KLY64PZPDKHC.jpg <a href="http://rett.tv/video/Nathalie-ademhaling"><img src="http://s3.amazonaws.com/magnifythumbs/6N76KLY64PZPDKHC.jpg" align="right" border="0"></a> hvdkraats1964 wrote: Video van problemen met ademhaling van Nathalie, een meisje met het syndroom van Rett. Nathalie, ademhaling Nathalie ademhaling 2009-02-27T18:47:10+05:00 209 http://rett.tv/video/entrevista-canal-9-EN-CONEXIO-2 entrevista canal 9 " EN CONEXIO" 21 ene 09 http://www.youtube.com/v/txRprlxFVjk http://s3.amazonaws.com/magnifythumbs/81V7V0M8N89M791P.jpg <a href="http://rett.tv/video/entrevista-canal-9-EN-CONEXIO-2"><img src="http://s3.amazonaws.com/magnifythumbs/81V7V0M8N89M791P.jpg" align="right" border="0"></a> joselefp wrote: ENTREVISTA REALIZADA POR EL PROGRAMA EN CONEXIO. FUE EMITIDO EL DIA 21 ENERO 2009. SI QUIERES CONOCER A MARIA, ENTRA EN http://www.mimundorett.com/ 2009-02-15T07:48:41+05:00 177 http://rett.tv/video/Criaturas-de-otro-planeta-subtt Criaturas de otro planeta (subtítulos en español) http://www.youtube.com/v/tweWE44CwF8 http://s3.amazonaws.com/magnifythumbs/HDQQNPHN1TKPF95B.jpg <a href="http://rett.tv/video/Criaturas-de-otro-planeta-subtt"><img src="http://s3.amazonaws.com/magnifythumbs/HDQQNPHN1TKPF95B.jpg" align="right" border="0"></a> Planetarett wrote: El 12 de febrero sale la edición en castellano del libro Criaturas de otro planeta de Elisabet Pedrosa! Gina es la protagonista del libro, Criaturas de otro planeta, una especie de dietario que publicó hace un año su madre Elisabet Pedrosa. Es esta preciosa niña de cabellos rubios rizados y ojos azules turquesa que aparece a la portada. Nació en Barcelona el 9 de diciembre del 2002. Ahora hace cinco años le diagnosticaron el síndrome de Rett, en uno de los grados más incapacitantes. No anda, no habla, no puede usar las manos, no come sola, no mastica y lo tiene que comer todo triturado. Ni siquiera puede beber agua, le dan con jeringuilla porque le cae de la boca. A pesar de la esclavitud de la enfermedad, la Gigi, tal y como le dicen a casa, aprecia mucho los besos y los abrazos. Tiene una mirada luminosa y un sonreir generoso que contagia ganas de vivir. Vive en Barcelona con su hermano Pol, y su madre, Elisabet. 2009-02-15T07:47:20+05:00 441 http://rett.tv/video/Information-On-Monas-Case-Of-Re Information On Monas Case Of Rett Syndrome http://magvid.cache.magnify.net/BQBC0XY1S79FWL0J/video.flv http://s3.amazonaws.com/magnifythumbs/BQBC0XY1S79FWL0J-l.jpg <a href="http://rett.tv/video/Information-On-Monas-Case-Of-Re"><img src="http://s3.amazonaws.com/magnifythumbs/BQBC0XY1S79FWL0J-l.jpg" align="right" border="0"></a> rett, mecp2 rett mecp2 2009-02-15T01:46:28+05:00 http://rett.tv/video/Brooklyn-ironing-with-Grammy Brooklyn ironing with Grammy http://www.youtube.com/v/ZN0kDsDJwwI http://s3.amazonaws.com/magnifythumbs/C962LYQ6XLH49FS0.jpg <a href="http://rett.tv/video/Brooklyn-ironing-with-Grammy"><img src="http://s3.amazonaws.com/magnifythumbs/C962LYQ6XLH49FS0.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn kept watching Grammy iron se we decided to let her help - she loved it - way more than I like ironing! We pulled her tumbleform High/Lo charlie right up to the ironing board! rett rett 2009-02-12T07:59:05+05:00 52 http://rett.tv/video/Dress-Up-2-Cure-Girl-Authority-2 Dress Up 2 Cure / Girl Authority Contest 2009! http://www.youtube.com/v/CJTBobwqnNw http://s3.amazonaws.com/magnifythumbs/XWTVJVL9375ZZT2Q.jpg <a href="http://rett.tv/video/Dress-Up-2-Cure-Girl-Authority-2"><img src="http://s3.amazonaws.com/magnifythumbs/XWTVJVL9375ZZT2Q.jpg" align="right" border="0"></a> dressup2cure wrote: Get Silly for a Cause! Win a Girl Authority Contest! Girls ages 7-14 will want to check out this great opportunity to volunteer for a great cause as well as enter for the chance to win a Girl Authority contest. This is event is sponsored by Girl Power 2 Cure, Inc. to raise awareness for Rett Syndrome, a devastating neurological disorder that only affects girls. 2009-01-26T10:14:42+05:00 82 http://rett.tv/video/Walk-A-Thon-for-Laila Walk-A-Thon for Laila http://www.youtube.com/v/XHgBwI_TCYE http://s3.amazonaws.com/magnifythumbs/4P2ZH9JQJ1MPSC9M.jpg <a href="http://rett.tv/video/Walk-A-Thon-for-Laila"><img src="http://s3.amazonaws.com/magnifythumbs/4P2ZH9JQJ1MPSC9M.jpg" align="right" border="0"></a> rettmom08 wrote: Walk-A-Thon For Laila's Hope is held every October at Dan Nicholas Park Salisbury,NC. It is to raise money for a cure all money raised goes to the Tnternational Rett Syndrome Foundation. Laila's, Walk Laila's Walk 2009-01-26T10:15:16+05:00 70 http://rett.tv/video/Paula-Pacheco-mecedora-Ikea-26 Paula Pacheco mecedora Ikea 26-01-09 http://magvid.cache.magnify.net/BXFK8R38NGGBHMH9/video.flv http://s3.amazonaws.com/magnifythumbs/BXFK8R38NGGBHMH9-l.jpg <a href="http://rett.tv/video/Paula-Pacheco-mecedora-Ikea-26"><img src="http://s3.amazonaws.com/magnifythumbs/BXFK8R38NGGBHMH9-l.jpg" align="right" border="0"></a> Paula tiene 5 a�os y medio y rett r-255-x, le encanta balancearse y he encontrado esta mecedora en Ikea mas un apa�ito en el asiento, esta ideal. Un beso alas familias rett 2009-01-26T07:43:25+05:00 180 http://rett.tv/video/sindrome-di-rett-denise-2 sindrome di rett denise 2 http://www.youtube.com/v/nsRc28Ufwmg http://s3.amazonaws.com/magnifythumbs/R3Y73LWDWDWLY4CF.jpg <a href="http://rett.tv/video/sindrome-di-rett-denise-2"><img src="http://s3.amazonaws.com/magnifythumbs/R3Y73LWDWDWLY4CF.jpg" align="right" border="0"></a> TITTY630 wrote: denise, ridotto denise ridotto 2009-01-14T08:19:52+05:00 618 http://rett.tv/video/Dress-Up-2-Cure-Girl-Authority Dress Up 2 Cure / Girl Authority Contest! http://e.blip.tv/scripts/flash/showplayer.swf?file=1634123 http://s3.amazonaws.com/magnifythumbs/P2TMBR3249X4NNW6.jpg <a href="http://rett.tv/video/Dress-Up-2-Cure-Girl-Authority"><img src="http://s3.amazonaws.com/magnifythumbs/P2TMBR3249X4NNW6.jpg" align="right" border="0"></a> <a href="http://dressup2cure.blip.tv/" target="_blank">Rett Syndrome</a> wrote: Get your school involved with Dress Up 2 Cure on April 1st! Enter our video contest and win a Girl Authority contest! Visit www.dressup2cure.org to learn more! 2009-01-12T15:04:22+05:00 86 http://rett.tv/video/Friends-of-Willemijn-beter Friends of Willemijn beter http://www.youtube.com/v/dpkidsQqxiE http://s3.amazonaws.com/magnifythumbs/C1QCTKZ1ZGX5GKFV.jpg <a href="http://rett.tv/video/Friends-of-Willemijn-beter"><img src="http://s3.amazonaws.com/magnifythumbs/C1QCTKZ1ZGX5GKFV.jpg" align="right" border="0"></a> ericmirjam wrote: Willemijn heeft Rett Syndroom en is daardoor bij alle afhankelijk van anderen. Ouders, zussen, familie, kennissen, hulpverleners. En dat gaat geweldig! Wat fijn dat zoveel mensen zich zo inspannen voor het welzijn van Willemijn: THATS WHAT FRIENDS ARE FOR!!! 2008-12-23T17:39:33+05:00 253 http://rett.tv/video/Sarah-walking-12-15-08 Sarah walking 12-15-08 http://www.youtube.com/v/k6AEkeLDB04 http://s3.amazonaws.com/magnifythumbs/5GGRPPCK3B1LJVK1.jpg <a href="http://rett.tv/video/Sarah-walking-12-15-08"><img src="http://s3.amazonaws.com/magnifythumbs/5GGRPPCK3B1LJVK1.jpg" align="right" border="0"></a> hardingharoo wrote: Look how good she is doing! Oh, the ups and downs of Rett Syndrome! I think finally getting her a walker made her want to walk on her own! Soon she won't even need my hand! rett rett 2008-12-18T14:35:28+05:00 78 http://rett.tv/video/entiende-una-nia-rett ¿entiende una niña rett? http://www.youtube.com/v/26h1SigjKgc http://s3.amazonaws.com/magnifythumbs/X603G735WGWZ1QQ9.jpg <a href="http://rett.tv/video/entiende-una-nia-rett"><img src="http://s3.amazonaws.com/magnifythumbs/X603G735WGWZ1QQ9.jpg" align="right" border="0"></a> joselefp wrote: SI QUIERES CONOCER A MARIA ENTRA EN http://www.mimundorett.com/ 2008-12-18T14:38:39+05:00 127 http://rett.tv/video/Introduccin-al-sindrome-de-Rett Introducci�n al sindrome de Rett http://www.youtube.com/v/7h4-mx8KkWU http://s3.amazonaws.com/magnifythumbs/RM21QXB9SVB97GB9.jpg <a href="http://rett.tv/video/Introduccin-al-sindrome-de-Rett"><img src="http://s3.amazonaws.com/magnifythumbs/RM21QXB9SVB97GB9.jpg" align="right" border="0"></a> nazatorinensa wrote: Video llevado a cabo para la exposici�n de un trabajo en la universidad de Almer�a uni uni 2008-12-18T14:39:57+05:00 154 http://rett.tv/video/Texas-Childrens-Hospital-An-Int Texas Children's Hospital - An Introduction http://e.blip.tv/scripts/flash/showplayer.swf?file=856436 http://s3.amazonaws.com/magnifythumbs/LL5ZQG0LNSF55YNR.jpg <a href="http://rett.tv/video/Texas-Childrens-Hospital-An-Int"><img src="http://s3.amazonaws.com/magnifythumbs/LL5ZQG0LNSF55YNR.jpg" align="right" border="0"></a> The Campaign for Texas Childrens Hospital. At Texas Children's, our purpose is simple: to heal sick children. This is an invitation to join us. 2008-12-14T16:44:30+05:00 167 http://rett.tv/video/Giving-Hope-Texas-Childrens-Hos Giving Hope - Texas Children's Hospital http://www.youtube.com/v/EclVh5ctCGI http://s3.amazonaws.com/magnifythumbs/9Q3Q0SN58C7VWB29.jpg <a href="http://rett.tv/video/Giving-Hope-Texas-Childrens-Hos"><img src="http://s3.amazonaws.com/magnifythumbs/9Q3Q0SN58C7VWB29.jpg" align="right" border="0"></a> With a tremendous $50 million gift, Jan and Dan Duncan are helping create and launch the worlds preeminent collaborative institute to study and treat neurological disorders. 2008-12-14T16:45:09+05:00 33 http://rett.tv/video/Caitlyn-in-Kindergarten-2008 Caitlyn in Kindergarten 2008 http://www.youtube.com/v/tqEehVqMDmY http://s3.amazonaws.com/magnifythumbs/MQY5XSPC3DXPGM78.jpg <a href="http://rett.tv/video/Caitlyn-in-Kindergarten-2008"><img src="http://s3.amazonaws.com/magnifythumbs/MQY5XSPC3DXPGM78.jpg" align="right" border="0"></a> caitlynsmomma wrote: Video of Caitlyn during the beginning of Kindergarten, put together by her Life Skills teacher. Syndrome", "Rett, Inclusion Syndrome" "Rett Inclusion 2008-12-11T20:01:25+05:00 488 http://rett.tv/video/Driven-To-Research Driven To Research http://www.youtube.com/v/KQwz8pqsfnQ http://s3.amazonaws.com/magnifythumbs/K943BZ7XNZL7407T.jpg <a href="http://rett.tv/video/Driven-To-Research"><img src="http://s3.amazonaws.com/magnifythumbs/K943BZ7XNZL7407T.jpg" align="right" border="0"></a> healsickchildren wrote: Tired of giving bad news to parents of children with neurological disorders, Dr. Huda Zoghbi set her sights on unlocking the answers to these diseases. By leading Texas Childrens new neurological research institute, she intends to do just that. 2008-12-09T07:52:54+05:00 33 http://rett.tv/video/Sindrome-Rett-Autismo Sindrome Rett, Autismo http://www.youtube.com/v/yQE6nKToacU http://s3.amazonaws.com/magnifythumbs/J7KV8R0SFGG5TPKB.jpg <a href="http://rett.tv/video/Sindrome-Rett-Autismo"><img src="http://s3.amazonaws.com/magnifythumbs/J7KV8R0SFGG5TPKB.jpg" align="right" border="0"></a> drgrimaldo wrote: El Síndrome de Rett se define actualmente, como un conjunto de síntomas y signos que aparecen durante la infancia conduciendo a una severa y compleja discapacidad en contraste con el desarrollo normal temprano sin una explicación etiológica. Se puede considerar como un "Trastorno secundario del movimiento" debido a que no hay debilidad o daño en las áreas motoras primarias, pero sí de los mecanismos usados para el control final de la información de la corteza cerebral. Se considera también como un trastorno del desarrollo, al igual que el autismo, que en forma secuencial involucra mecanismos neurales selectivos cruciales para el desarrollo del Iactante y el niño. El Síndrome de Rett debe ser visto como un "Trastorno Neurológico Complejo" 2008-12-07T10:24:34+05:00 12 http://rett.tv/video/Sindrome-de-Rett-con-Lipofusino Sindrome de Rett con Lipofusinosis http://www.youtube.com/v/b3ypLdtEW7M http://s3.amazonaws.com/magnifythumbs/Y1V6LHD0S4FZT9H0.jpg <a href="http://rett.tv/video/Sindrome-de-Rett-con-Lipofusino"><img src="http://s3.amazonaws.com/magnifythumbs/Y1V6LHD0S4FZT9H0.jpg" align="right" border="0"></a> drgrimaldo wrote: El Síndrome de Rett se define actualmente, como un conjunto de síntomas y signos que aparecen durante la infancia conduciendo a una severa y compleja discapacidad en contraste con el desarrollo normal temprano sin una explicación etiológica. Se puede considerar como un "Trastorno secundario del movimiento" debido a que no hay debilidad o daño en las áreas motoras primarias, pero sí de los mecanismos usados para el control final de la información de la corteza cerebral. Se considera también como un trastorno del desarrollo, al igual que el autismo, que en forma secuencial involucra mecanismos neurales selectivos cruciales para el desarrollo del Iactante y el niño. El Síndrome de Rett debe ser visto como un "Trastorno Neurológico Complejo" 2008-12-07T10:24:35+05:00 14 http://rett.tv/video/Grace-has-the-giggles Grace has the giggles http://www.youtube.com/v/XD32e7CFZzE http://s3.amazonaws.com/magnifythumbs/9HGQTTTBLK794RJV.jpg <a href="http://rett.tv/video/Grace-has-the-giggles"><img src="http://s3.amazonaws.com/magnifythumbs/9HGQTTTBLK794RJV.jpg" align="right" border="0"></a> 8.2 rett, giggles, Grace rett giggles Grace 2008-12-01T08:51:13+05:00 44 http://rett.tv/video/Texas-Childrens-Hospital-Commer Texas Children's Hospital Commercial - "Sunshine" http://www.youtube.com/v/b-gBJp5QciA http://s3.amazonaws.com/magnifythumbs/HRTV9XNK4FSQL902.jpg <a href="http://rett.tv/video/Texas-Childrens-Hospital-Commer"><img src="http://s3.amazonaws.com/magnifythumbs/HRTV9XNK4FSQL902.jpg" align="right" border="0"></a> healsickchildren wrote: www.healsickchildren.org 2008-11-24T14:56:41+05:00 33 http://rett.tv/video/Laila-Schmeltzer-2 Laila Schmeltzer http://www.youtube.com/v/PPPsUioqdw4 http://s3.amazonaws.com/magnifythumbs/QCGTRFQSC09Y6NNC.jpg <a href="http://rett.tv/video/Laila-Schmeltzer-2"><img src="http://s3.amazonaws.com/magnifythumbs/QCGTRFQSC09Y6NNC.jpg" align="right" border="0"></a> rettmom08 wrote: Laila is a two and half year old girl with Rett Syndrome this is her slideshow. Her website is www.caringbridge.org/visit/lailaschmeltzer. Laila's, slideshow Laila's slideshow 2008-11-23T11:34:28+05:00 162 http://rett.tv/video/Jedlie-and-Jennifer-Magic-Trick Jedlie and Jennifer Magic Trick http://www.youtube.com/v/fEU2sVIXeSY http://s3.amazonaws.com/magnifythumbs/XY57H059BCTZ339P.jpg <a href="http://rett.tv/video/Jedlie-and-Jennifer-Magic-Trick"><img src="http://s3.amazonaws.com/magnifythumbs/XY57H059BCTZ339P.jpg" align="right" border="0"></a> jedlie wrote: From the live disabilities awareness video MELTDOWN!!! This segment features a magic trick peformed by Jedlie and his assistant Jennifer, a 10 year old girl with Rett Syndrome. 2008-11-23T13:28:09+05:00 219 http://rett.tv/video/Rett-Syndrome-14 Rett Syndrome http://www.youtube.com/v/9altJKzc4tA http://s3.amazonaws.com/magnifythumbs/5FNTWCL2DZTBGSJP.jpg <a href="http://rett.tv/video/Rett-Syndrome-14"><img src="http://s3.amazonaws.com/magnifythumbs/5FNTWCL2DZTBGSJP.jpg" align="right" border="0"></a> grzegorzlondon wrote: Moja siostrzenica jest chora na zaspol retta retta, zespol retta zespol 2008-11-21T09:58:43+05:00 45 http://rett.tv/video/Sindrome-de-Rett-5 Sindrome de Rett 5 http://www.youtube.com/v/9sk_1P8dxPk http://s3.amazonaws.com/magnifythumbs/HP6KF0F6V8P9PCYQ.jpg <a href="http://rett.tv/video/Sindrome-de-Rett-5"><img src="http://s3.amazonaws.com/magnifythumbs/HP6KF0F6V8P9PCYQ.jpg" align="right" border="0"></a> ppacey11 wrote: pessoa portadora da Sindrome de Rett 2008-11-16T10:35:22+05:00 419 http://rett.tv/video/Meagan-Riding-a-Horse-2 Meagan Riding a Horse 2 http://www.youtube.com/v/jJoDbNuvBfQ http://s3.amazonaws.com/magnifythumbs/8KB69F6B5B6M0WMY.jpg <a href="http://rett.tv/video/Meagan-Riding-a-Horse-2"><img src="http://s3.amazonaws.com/magnifythumbs/8KB69F6B5B6M0WMY.jpg" align="right" border="0"></a> lncrowe wrote: Meagan trotting on a horse 2008-11-15T08:15:08+05:00 20 http://rett.tv/video/Meagan-Riding-a-Horse-1 Meagan Riding a Horse 1 http://www.youtube.com/v/o_j_7NNy9XQ http://s3.amazonaws.com/magnifythumbs/CGNTFQYK2BYJD6BN.jpg <a href="http://rett.tv/video/Meagan-Riding-a-Horse-1"><img src="http://s3.amazonaws.com/magnifythumbs/CGNTFQYK2BYJD6BN.jpg" align="right" border="0"></a> lncrowe wrote: Meagan horseback riding. 2008-11-15T08:15:10+05:00 108 http://rett.tv/video/Sindrome-de-Rett-4 Sindrome de Rett 4 http://www.youtube.com/v/fuAgzyoc3mM http://s3.amazonaws.com/magnifythumbs/RXKYDB3ML01M8HBL.jpg <a href="http://rett.tv/video/Sindrome-de-Rett-4"><img src="http://s3.amazonaws.com/magnifythumbs/RXKYDB3ML01M8HBL.jpg" align="right" border="0"></a> ppacey11 wrote: pessoa portadora da Sindrome de Rett 2008-11-15T08:05:53+05:00 419 http://rett.tv/video/Sindrome-de-Rett-3 Sindrome de Rett 3 http://www.youtube.com/v/BIaLJwKRKdo http://s3.amazonaws.com/magnifythumbs/XJCF67KCJD9WT9YY.jpg <a href="http://rett.tv/video/Sindrome-de-Rett-3"><img src="http://s3.amazonaws.com/magnifythumbs/XJCF67KCJD9WT9YY.jpg" align="right" border="0"></a> ppacey11 wrote: pessoa portadora da Sindrome de Rett 2008-11-15T08:05:55+05:00 480 http://rett.tv/video/Sindrome-de-Rett-2 Sindrome de Rett 2 http://www.youtube.com/v/um2y4L9AlDI http://s3.amazonaws.com/magnifythumbs/KZQJMCZMLT377ZPC.jpg <a href="http://rett.tv/video/Sindrome-de-Rett-2"><img src="http://s3.amazonaws.com/magnifythumbs/KZQJMCZMLT377ZPC.jpg" align="right" border="0"></a> ppacey11 wrote: pessoa portadora da Sindrome de Rett 2008-11-15T08:05:57+05:00 480 http://rett.tv/video/Sindrome-de-Rett-1 Sindrome de Rett 1 http://www.youtube.com/v/smAaKczEMC8 http://s3.amazonaws.com/magnifythumbs/BL1ZG0ZY2X1J7MZ2.jpg <a href="http://rett.tv/video/Sindrome-de-Rett-1"><img src="http://s3.amazonaws.com/magnifythumbs/BL1ZG0ZY2X1J7MZ2.jpg" align="right" border="0"></a> ppacey11 wrote: pessoa portadora da Sindrome de Rett 2008-11-15T08:05:59+05:00 15 http://rett.tv/video/Annette3min-wmv Brain Wave Vibration Gives Hope for Daughter with Rett Syndrome http://magvid.cache.magnify.net/5CJHJ105NC0GXYCL/video.flv http://s3.amazonaws.com/magnifythumbs/5CJHJ105NC0GXYCL-l.jpg <a href="http://rett.tv/video/Annette3min-wmv"><img src="http://s3.amazonaws.com/magnifythumbs/5CJHJ105NC0GXYCL-l.jpg" align="right" border="0"></a> Ana, whose 19-year old daughter Annette has Rett Syndrome, read the book Brain Wave Vibration and benefited a lot from practicing the technique for a while when she decided to try it with her daughter. Since Annette could not practice on her own, the mother decided to take things into her own hands. She literally just placed her hands on Annette and started to shake. Her daughter loved it, and soon she began to improve. She can now walk with assistance, her health has improved, she talks more, and, best of all, she smiles a whole lot more often. This video clip is about a mother, her daughter, and hope. For more information about Brain Wave Vibration, please visit www.brainwavevibration.com. 2008-11-13T01:06:47+05:00 194 http://rett.tv/video/Silent-Angel-Kaylah Silent Angel Kaylah http://www.youtube.com/v/0oZit5jT8tk http://s3.amazonaws.com/magnifythumbs/Y0NS51MBPVZ0JJYD.jpg <a href="http://rett.tv/video/Silent-Angel-Kaylah"><img src="http://s3.amazonaws.com/magnifythumbs/Y0NS51MBPVZ0JJYD.jpg" align="right" border="0"></a> DiamondDijana85 wrote: Kaylah is a 3 year old girl and will be 4 in March, She cannot Walk or talk (only mumble), she cant even stand even whilst holding her up. She has been recently Diagnosed with a horrible disorder called Rett Syndrome on October the 26th 2007. It's a very long story how everything started but we were at our local GP for a checkup and she noticed that something wasn't quite right about Kaylahs head so she assessed her thoroughly and discovered that her fontanel was almost closed which it shouldn't be. Since then we have been through a bunch of tests, doctors physios, specialists etc and her condition was always unknown or the tests were normal but she wasn't. So back and forth we still went studying, testing etc until last year 2006 Kaylahs Grandmother came to find a Organisation whom specialise with Special needs children called PECAT- Parramatta Early Children Assessment Team and there discovered after more testing and assessments Kaylah had "Profound Development Delays" which... Rett Rett 2008-04-18T06:35:33+05:00 218 http://rett.tv/video/Silent-angel-Kaylah-playing-w Silent angel Kaylah (playing with Care bear) http://www.youtube.com/v/eqe6AoMdsws http://s3.amazonaws.com/magnifythumbs/751LST5YGPCWQ25F.jpg <a href="http://rett.tv/video/Silent-angel-Kaylah-playing-w"><img src="http://s3.amazonaws.com/magnifythumbs/751LST5YGPCWQ25F.jpg" align="right" border="0"></a> DiamondDijana85 wrote: This video was taken when Kaylah just turned one... Shes so so cute playing on the floor talking to her care bear, trying to do all these things and even trying to copy some things i was saying... She was doing so well until suddenly everything Kaylah was doing or tried to do it all Stopped and then reversed.... When she was 3 (oct 26th 2007) she was diagnosed with Rett Syndrome so now we all know why it everything Kaylah did just suddenly reversed... 2008-05-19T14:33:25+05:00 210 http://rett.tv/video/Silent-Angel-Kaylah-Playing-o Silent Angel Kaylah (Playing on mummy's bed) http://www.youtube.com/v/0E45HrMY1Qg http://s3.amazonaws.com/magnifythumbs/LLB849CXW6RRMCYK.jpg <a href="http://rett.tv/video/Silent-Angel-Kaylah-Playing-o"><img src="http://s3.amazonaws.com/magnifythumbs/LLB849CXW6RRMCYK.jpg" align="right" border="0"></a> DiamondDijana85 wrote: This video was taken when Kaylah was about 11 months old... She was so happy playing on the bed making all her cute noises... Yet she could not roll over even though she tried! Rett, angel, silent, kaylah Rett angel silent kaylah 2008-05-19T14:35:44+05:00 84 http://rett.tv/video/Silent-Angel-Kaylah-Christmas "Silent Angel Kaylah"...Christmas memories... http://www.youtube.com/v/Le8XPqDdwdY http://s3.amazonaws.com/magnifythumbs/C3Q6BDYF86BK0ZH0.jpg <a href="http://rett.tv/video/Silent-Angel-Kaylah-Christmas"><img src="http://s3.amazonaws.com/magnifythumbs/C3Q6BDYF86BK0ZH0.jpg" align="right" border="0"></a> DiamondDijana85 wrote: I Only put a few pictures together for this video... It starts from christmas 2004-2007... Christmas, Rett Christmas Rett 2008-05-19T14:36:15+05:00 169 http://rett.tv/video/silent-Angel-Kaylah-sitting-u "silent Angel Kaylah" (sitting up) http://www.youtube.com/v/HKWx9M2aS3k http://s3.amazonaws.com/magnifythumbs/L8BZPSNQDTBGC2W9.jpg <a href="http://rett.tv/video/silent-Angel-Kaylah-sitting-u"><img src="http://s3.amazonaws.com/magnifythumbs/L8BZPSNQDTBGC2W9.jpg" align="right" border="0"></a> DiamondDijana85 wrote: This video was taken when Kaylah was about 9 months old... Shes trying so hard to keep her balance.... Rett, Angel, Silent, Kaylah Rett Angel Silent Kaylah 2008-05-19T14:36:30+05:00 35 http://rett.tv/video/Airaglins-Angels-at-the-Strolla Airaglins Angels at the Strollathon in Cincinnati 2008 http://www.youtube.com/v/n8_YC9ohROE http://s3.amazonaws.com/magnifythumbs/BKRJ1ZPS5JBZ97LW.jpg <a href="http://rett.tv/video/Airaglins-Angels-at-the-Strolla"><img src="http://s3.amazonaws.com/magnifythumbs/BKRJ1ZPS5JBZ97LW.jpg" align="right" border="0"></a> airaglin1 wrote: Airaglin has a wonderful time walking that the long mile. Her ... Watch this video on video.google.com Video from video.google.com View thumbnails | Watch video here telesz, Airaglin, strollathon telesz Airaglin strollathon 2008-11-11T08:49:24+05:00 194 http://rett.tv/video/Sierras-battle-with-Rett-Syndro Sierra's battle with Rett Syndrome http://www.youtube.com/v/KaSXIWuJlWk http://s3.amazonaws.com/magnifythumbs/NBZM0CT37DPJFY4C.jpg <a href="http://rett.tv/video/Sierras-battle-with-Rett-Syndro"><img src="http://s3.amazonaws.com/magnifythumbs/NBZM0CT37DPJFY4C.jpg" align="right" border="0"></a> laineyful wrote: Sierra just turned 5 so I thought I would create this montage to document her struggle with Rett Syndrome. She is the sweetest little girl and has brought us so much joy! Please spread the word about Rett Syndrome! palsy, cerebral, rett, hypotonia palsy cerebral rett hypotonia 2008-11-09T09:38:56+05:00 380 http://rett.tv/video/Jess-meets-her-Baby-Sister Jess meets her Baby Sister http://www.youtube.com/v/gKXTH4V3jUk http://s3.amazonaws.com/magnifythumbs/KDWJVGCJ836256WX.jpg <a href="http://rett.tv/video/Jess-meets-her-Baby-Sister"><img src="http://s3.amazonaws.com/magnifythumbs/KDWJVGCJ836256WX.jpg" align="right" border="0"></a> nevjay100 wrote: Jess' 1st meeting of her sister - Evelyn Elizabeth, born on 30th May 2008, weighing in at a whopping 10lbs 5oz! Jess is 2 months off her 7th birthday and has Rett Syndrome. Rett Rett 2008-11-09T09:40:10+05:00 46 http://rett.tv/video/El-Principe-y-la-Princesa El Principe y la Princesa http://www.youtube.com/v/fOujZx8IkNM http://s3.amazonaws.com/magnifythumbs/P2SVCVKNC9TTRF7J.jpg <a href="http://rett.tv/video/El-Principe-y-la-Princesa"><img src="http://s3.amazonaws.com/magnifythumbs/P2SVCVKNC9TTRF7J.jpg" align="right" border="0"></a> djavrf wrote: A mis sobrinos....Porque cada día me demuestran lo divertida que puede ser la vida. Rett Rett 2008-11-09T09:40:43+05:00 142 http://rett.tv/video/MA-FILLE-DE-SA-NAISSANCE-A-MAIN MA FILLE DE SA NAISSANCE A MAINTENANT http://www.dailymotion.com/swf/x7b0ip http://s3.amazonaws.com/magnifythumbs/FJRLDDDJSHRYP9J1.jpg <a href="http://rett.tv/video/MA-FILLE-DE-SA-NAISSANCE-A-MAIN"><img src="http://s3.amazonaws.com/magnifythumbs/FJRLDDDJSHRYP9J1.jpg" align="right" border="0"></a> magloniki wrote: RETT, LE, DE RETT LE DE 2008-11-07T12:36:12+05:00 394 http://rett.tv/video/Laura-the-Woodland-Fairy Laura the Woodland Fairy http://www.youtube.com/v/bsadW8o6nPw http://s3.amazonaws.com/magnifythumbs/6WC2RQ8G4VPG2DGJ.jpg <a href="http://rett.tv/video/Laura-the-Woodland-Fairy"><img src="http://s3.amazonaws.com/magnifythumbs/6WC2RQ8G4VPG2DGJ.jpg" align="right" border="0"></a> stellachops wrote: Laura walking with support! 10 Rett Rett 2008-11-03T11:49:37+05:00 92 http://rett.tv/video/Ride-for-Rett Ride for Rett http://eplayer.clipsyndicate.com/cs_api/get_swf?swfHome=eplayer.clipsyndicate.com&va_id=717619 http://s3.amazonaws.com/magnifythumbs/LTLH78CK7W11B657.jpg <a href="http://rett.tv/video/Ride-for-Rett"><img src="http://s3.amazonaws.com/magnifythumbs/LTLH78CK7W11B657.jpg" align="right" border="0"></a> FOX WBRC Birmingham, AL wrote: 2008-10-28T10:14:55+05:00 http://rett.tv/video/Lydias-13th-Birthday-Cake Lydia's 13th Birthday Cake http://www.youtube.com/v/xIdXzo7Uwdc http://s3.amazonaws.com/magnifythumbs/Q7BXZ82GGHQXW53X.jpg <a href="http://rett.tv/video/Lydias-13th-Birthday-Cake"><img src="http://s3.amazonaws.com/magnifythumbs/Q7BXZ82GGHQXW53X.jpg" align="right" border="0"></a> arjeel wrote: Lydia's 13th birthday celebration. 8.64 Rett, Lydia, Miss Rett Lydia Miss 2008-10-28T03:59:28+05:00 242 http://rett.tv/video/Rett-Picnic-Oct-25-2008 Rett Picnic Oct 25 2008 http://www.youtube.com/v/L5wpVyplM4k http://s3.amazonaws.com/magnifythumbs/GGS8Y22NP4LW50JN.jpg <a href="http://rett.tv/video/Rett-Picnic-Oct-25-2008"><img src="http://s3.amazonaws.com/magnifythumbs/GGS8Y22NP4LW50JN.jpg" align="right" border="0"></a> bookm4n wrote: Here is a video early in set up of the Rett Picnic. You did another great job, Sherry Brady in organizing it and thanks to all who participated and sponsored! You all rock and the proceeds go to finding a cure for Rett Syndrome and making life easier for girls who have Rett. for Sherri Brady and thank you Rett, Needs, Special, picnic Rett Needs Special picnic 2008-10-26T15:58:49+05:00 30 http://rett.tv/video/More-Rett-video More Rett video http://www.youtube.com/v/s017pM8XyNs http://s3.amazonaws.com/magnifythumbs/FK25JQVXJB3TCZ5K.jpg <a href="http://rett.tv/video/More-Rett-video"><img src="http://s3.amazonaws.com/magnifythumbs/FK25JQVXJB3TCZ5K.jpg" align="right" border="0"></a> bookm4n wrote: Another small piece from the Rett Syndrome picnic picnic, Rett picnic Rett 2008-10-26T07:28:43+05:00 24 http://rett.tv/video/Arianna-at-Rett-Picnic Arianna at Rett Picnic http://www.youtube.com/v/7ILpS2nGaps http://s3.amazonaws.com/magnifythumbs/DBRCLXWHMFL87JRK.jpg <a href="http://rett.tv/video/Arianna-at-Rett-Picnic"><img src="http://s3.amazonaws.com/magnifythumbs/DBRCLXWHMFL87JRK.jpg" align="right" border="0"></a> bookm4n wrote: Arianna at the Rett Picnic Oct 25 2008 picnic, Arianna, Rett, Greenblatt picnic Arianna Rett Greenblatt 2008-10-26T07:29:07+05:00 21 http://rett.tv/video/More-Rett-Picnic-Oct-2008 More Rett Picnic Oct 2008 http://www.youtube.com/v/k6nG7kYRxrk http://s3.amazonaws.com/magnifythumbs/V81X2DHLK2MB1L6W.jpg <a href="http://rett.tv/video/More-Rett-Picnic-Oct-2008"><img src="http://s3.amazonaws.com/magnifythumbs/V81X2DHLK2MB1L6W.jpg" align="right" border="0"></a> bookm4n wrote: Here is a snippet of Sherri thanking people and sponsors. Thanks again to all participants and all sponsors for making this event a success! The girls and their families had fun and we raised money for Rett Syndrome research and care. 2008-10-26T07:29:28+05:00 154 http://rett.tv/video/Laila-Schmeltzer Laila Schmeltzer http://www.youtube.com/v/gSXIUHZ-H5A http://s3.amazonaws.com/magnifythumbs/D9M7PN1GKS62FFY4.jpg <a href="http://rett.tv/video/Laila-Schmeltzer"><img src="http://s3.amazonaws.com/magnifythumbs/D9M7PN1GKS62FFY4.jpg" align="right" border="0"></a> DMACVL wrote: Rett Syndrome Rett Rett 2008-10-22T08:57:21+05:00 152 http://rett.tv/video/rett-syndrome-fundraiser rett syndrome fundraiser http://www.youtube.com/v/zl8Nm1knBCo http://s3.amazonaws.com/magnifythumbs/H6X8XP4N8VVWCWSV.jpg <a href="http://rett.tv/video/rett-syndrome-fundraiser"><img src="http://s3.amazonaws.com/magnifythumbs/H6X8XP4N8VVWCWSV.jpg" align="right" border="0"></a> jenntwix wrote: rett syndrome fundraiser hannah hannah 2008-10-22T08:55:47+05:00 136 http://rett.tv/video/CDKL5-Elena-Grella CDKL5 Elena Grella http://www.youtube.com/v/Ws_Q7-lXH0s http://s3.amazonaws.com/magnifythumbs/NV3S21M42FJT6BFQ.jpg <a href="http://rett.tv/video/CDKL5-Elena-Grella"><img src="http://s3.amazonaws.com/magnifythumbs/NV3S21M42FJT6BFQ.jpg" align="right" border="0"></a> umberto093 wrote: intervista ricercatori CDKL5 sindrome di Rett 2008-10-22T09:00:59+05:00 136 http://rett.tv/video/Emily-Swimming-2 Emily Swimming http://magvid.cache.magnify.net/LDLN0XX66466C131/video.flv http://s3.amazonaws.com/magnifythumbs/LDLN0XX66466C131-l.jpg <a href="http://rett.tv/video/Emily-Swimming-2"><img src="http://s3.amazonaws.com/magnifythumbs/LDLN0XX66466C131-l.jpg" align="right" border="0"></a> Emily, 5, with her twin brother Thomas. 2008-10-19T13:14:41+05:00 http://rett.tv/video/Emily-horse-riding Emily horse riding http://magvid.cache.magnify.net/QQPSRVB7M00K95D5/video.flv http://s3.amazonaws.com/magnifythumbs/QQPSRVB7M00K95D5-l.jpg <a href="http://rett.tv/video/Emily-horse-riding"><img src="http://s3.amazonaws.com/magnifythumbs/QQPSRVB7M00K95D5-l.jpg" align="right" border="0"></a> Emily is 5 and has recently started riding without a saddle to make her work harder. 2008-10-19T13:24:01+05:00 http://rett.tv/video/hannah-in-stander-101508 hannah in stander 10/15/08 http://www.youtube.com/v/_MMIrLL_wPM http://s3.amazonaws.com/magnifythumbs/CGCBM8V5B1T0Q44G.jpg <a href="http://rett.tv/video/hannah-in-stander-101508"><img src="http://s3.amazonaws.com/magnifythumbs/CGCBM8V5B1T0Q44G.jpg" align="right" border="0"></a> jenntwix wrote: rett syndrome hannah hannah 2008-10-17T23:54:36+05:00 160 http://rett.tv/video/La-convivncia-amb-la-sndrome-de La convivència amb la síndrome de Rett http://www.youtube.com/v/tG4wEUJJYx4 http://s3.amazonaws.com/magnifythumbs/XS48K5WXQ6TL3PD4.jpg <a href="http://rett.tv/video/La-convivncia-amb-la-sndrome-de"><img src="http://s3.amazonaws.com/magnifythumbs/XS48K5WXQ6TL3PD4.jpg" align="right" border="0"></a> siestv wrote: Elisabet Pedrosa explica la seva experiència en un llibre. Criatures d'un altre planeta (La Magrana) és el títol del llibre amb què Elisabet Pedrosa, mare d'una nena amb la síndrome de Rett, ha volgut donar a conèixer l'experiència personal i la lluita diària contra la malaltia. La Gina no camina, no parla i no té cap mena d'autonomia, però la seva mare dóna el màxim per tal de fer-la feliç. Cada llibre aporta un euro i mig a la investigació d'aquesta síndrome, que afecta 350 nenes catalanes. 2008-10-06T19:38:10+05:00 239 http://rett.tv/video/sindrome-de-rett sindrome de rett http://www.youtube.com/v/3vxQupfuuXw http://s3.amazonaws.com/magnifythumbs/K8VD537BGK9XL014.jpg <a href="http://rett.tv/video/sindrome-de-rett"><img src="http://s3.amazonaws.com/magnifythumbs/K8VD537BGK9XL014.jpg" align="right" border="0"></a> petrelrett wrote: Paula sigue andando 2008-10-06T19:38:20+05:00 26 http://rett.tv/video/El-llibre-dElisabet-Pedrosa El llibre d'Elisabet Pedrosa http://www.youtube.com/v/KbJn51bVJms http://s3.amazonaws.com/magnifythumbs/LYHHNL019MV6YMBS.jpg <a href="http://rett.tv/video/El-llibre-dElisabet-Pedrosa"><img src="http://s3.amazonaws.com/magnifythumbs/LYHHNL019MV6YMBS.jpg" align="right" border="0"></a> Kapsup15 wrote: La periodista Elisabet Pedrosa, guionista del programa L'ofici de viure de Catalunya Ràdio, és la mare de la Gina, una nena de 5 anys que pateix la síndrome de Rett. La seva malaltia és molt desconeguda, malgrat ser la primera causa de retard en nenes després de la síndrome de Down. És per aquesta raó que hi ha una investigació de l'Hospital Sant Joan de Déu de Barcelona aturada per falta de finançament. L'Elisabet ha escrit un llibre per donar a conèixer la síndrome de Rett. Es diu "Criatures d'un altre planeta" (La Magrana/Dèria Editors) i el 100% dels drets d'autor aniran a la investigació. De moment ha tingut molt bona acollida i ja va per la tercera edició. 2008-10-06T19:39:12+05:00 91 http://rett.tv/video/Criaturas-de-otro-planeta-de-El Criaturas de otro planeta de Elisabet Pedrosa http://www.youtube.com/v/_3q75HIT6n4 http://s3.amazonaws.com/magnifythumbs/KJS0YYXTW5ZHT0JF.jpg <a href="http://rett.tv/video/Criaturas-de-otro-planeta-de-El"><img src="http://s3.amazonaws.com/magnifythumbs/KJS0YYXTW5ZHT0JF.jpg" align="right" border="0"></a> Planetarett wrote: Gina es la protagonista del libro, Criaturas de otro planeta. Es esta preciosa niña de cabellos rubios rizados y ojos azules turquesa que aparece a la portada. Nació en Barcelona el 9 de diciembre del 2002. Ahora hace cuatro años le diagnosticaron el síndrome de Rett, en uno de los grados más incapacitantes. No anda, no habla, no puede usar las manos, no come sola, no mastica y lo tiene que comer todo triturado. Ni siquiera puede beber agua, le dan con jeringuilla porque le cae de la boca. Encima tiene crisis parciales y en algunos casos se autolesiona. A pesar de la esclavitud de la enfermedad, la Gigi, tal y como le dicen a casa, aprecia mucho los besos y los abrazos. Tiene una mirada luminosa y un sonreír generoso que contagia ganas de vivir. Vive en Barcelona con su hermano Pol, y sus padres, Elisabet y Roger. 2008-10-06T19:39:56+05:00 529 http://rett.tv/video/granangularcat-La-mare-de-la-Gi granangular·cat - 'La mare de la Gina' http://www.youtube.com/v/tJJ6SSSk8z0 http://s3.amazonaws.com/magnifythumbs/CH8KB8P1X3LMWFTN.jpg <a href="http://rett.tv/video/granangularcat-La-mare-de-la-Gi"><img src="http://s3.amazonaws.com/magnifythumbs/CH8KB8P1X3LMWFTN.jpg" align="right" border="0"></a> rtve wrote: http://www.granangular.cat 'La mare de la Gina', documental. Una niña enferma y una madre dispuesta a acompañarla de por vida. Granangular.cat, todos los sábados a las 23h. por La 2 de TVE Cataluña. El documental podrá verse completo tras la emisión aquí: http://www.granangular.cat/fitxadocu.php?ID=444 2008-10-06T19:41:06+05:00 57 http://rett.tv/video/Sarah-loves-this-walker Sarah loves this walker! http://www.youtube.com/v/_UwCXZ9sNUc http://s3.amazonaws.com/magnifythumbs/637D8T84WPXLZLQM.jpg <a href="http://rett.tv/video/Sarah-loves-this-walker"><img src="http://s3.amazonaws.com/magnifythumbs/637D8T84WPXLZLQM.jpg" align="right" border="0"></a> hardingharoo wrote: Sarah just got a new walker! She loves it. It's called an Up 'N Go -- check it out at www.easy-walking.com! 2008-10-06T19:46:20+05:00 68 http://rett.tv/video/Gabriella Gabriella http://www.youtube.com/v/LF92WX4-H8o http://s3.amazonaws.com/magnifythumbs/DQYPV1PB43RVLT8W.jpg <a href="http://rett.tv/video/Gabriella"><img src="http://s3.amazonaws.com/magnifythumbs/DQYPV1PB43RVLT8W.jpg" align="right" border="0"></a> lbmorris22 wrote: Gabriella Retts, Angel, Gabriella Retts Angel Gabriella 2008-10-06T19:48:10+05:00 97 http://rett.tv/video/SINDROME-DI-RETT-MUTAZIONE-CDKL SINDROME DI RETT MUTAZIONE CDKL5 "BRENDA" http://www.youtube.com/v/0vVR0sw26X4 http://s3.amazonaws.com/magnifythumbs/SLT0995T9VQJGVSR.jpg <a href="http://rett.tv/video/SINDROME-DI-RETT-MUTAZIONE-CDKL"><img src="http://s3.amazonaws.com/magnifythumbs/SLT0995T9VQJGVSR.jpg" align="right" border="0"></a> LUCABRENDA wrote: ALLA MIA BAMBINA DAGLI OCCHI BELLI medicine medicine 2008-10-06T19:48:44+05:00 255 http://rett.tv/video/sindrome-di-rett sindrome di rett http://www.youtube.com/v/fwmN9ZRehOU http://s3.amazonaws.com/magnifythumbs/MJGCNV6SR09FL721.jpg <a href="http://rett.tv/video/sindrome-di-rett"><img src="http://s3.amazonaws.com/magnifythumbs/MJGCNV6SR09FL721.jpg" align="right" border="0"></a> TITTY630 wrote: denise blog, video blog video 2008-10-06T19:48:54+05:00 297 http://rett.tv/video/retts-syndrome-nilay-toca retts syndrome nilay toca http://www.youtube.com/v/zGnnYVyH62I http://s3.amazonaws.com/magnifythumbs/R84X59HNVWW8B6P9.jpg <a href="http://rett.tv/video/retts-syndrome-nilay-toca"><img src="http://s3.amazonaws.com/magnifythumbs/R84X59HNVWW8B6P9.jpg" align="right" border="0"></a> kuzucuk86 wrote: diger retts aılelerıyle tanısmak ısterız retts retts 2008-10-06T19:50:14+05:00 53 http://rett.tv/video/Face-to-Face-with-Rett-Syndrome Face to Face with Rett Syndrome http://www.youtube.com/v/aaRpbWkkwC4 http://s3.amazonaws.com/magnifythumbs/T62ML99S5QT20R33.jpg <a href="http://rett.tv/video/Face-to-Face-with-Rett-Syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/T62ML99S5QT20R33.jpg" align="right" border="0"></a> FlyDutch61 wrote: Our 11 year old daughter Chelsea is afflicted with Rett Syndrome. This video is a slide show of her life so far, dovetailing into Monica's new organization, Rett Syndrome Research Trust, with a very singular goal: finding a cure. More information at www.rsrt.org Chelsea, Rett Chelsea Rett 2008-10-02T19:14:56+05:00 273 http://rett.tv/video/Ellas-Summer-08 Ella's Summer 08 http://www.youtube.com/v/O0vg344VNdQ http://s3.amazonaws.com/magnifythumbs/BC14P48DPXTVVBHJ.jpg <a href="http://rett.tv/video/Ellas-Summer-08"><img src="http://s3.amazonaws.com/magnifythumbs/BC14P48DPXTVVBHJ.jpg" align="right" border="0"></a> bfarnu wrote: Ella's summer was full of new friends, adventure and some hard work (for everybody). Fundraising for various Rett syndrome organizations played a central part in the summer and we have made so many great new friends because of it. We are so thankful for everyone's efforts on our behalf, as well as that of all the other Rett families out there. Ella is also working REALLY hard on all her therapies, thanks to the help of Donna and Shannon. Her newest venture is spending time with Bretta, a fabulous Norwegian Fjorde horse who helps her with her balance and core strength. Looking forward to many more great summers with her leading the charge! Rett, Ella, Farnum Rett Ella Farnum 2008-10-02T19:16:03+05:00 257 http://rett.tv/video/ride-for-rett-2009 ride for rett 2009 http://www.youtube.com/v/FddqnOraeII http://s3.amazonaws.com/magnifythumbs/G20V04CGY975749Z.jpg <a href="http://rett.tv/video/ride-for-rett-2009"><img src="http://s3.amazonaws.com/magnifythumbs/G20V04CGY975749Z.jpg" align="right" border="0"></a> jenntwix wrote: ride for rett syndrome rett, ride rett ride 2008-10-02T19:16:56+05:00 61 http://rett.tv/video/hannah-eating-spaghetti hannah eating spaghetti http://www.youtube.com/v/xXtZYHdcnUc http://s3.amazonaws.com/magnifythumbs/6LLJ9ZLNZZJHMLTK.jpg <a href="http://rett.tv/video/hannah-eating-spaghetti"><img src="http://s3.amazonaws.com/magnifythumbs/6LLJ9ZLNZZJHMLTK.jpg" align="right" border="0"></a> jenntwix wrote: hannah rett rett 2008-10-02T19:18:05+05:00 179 http://rett.tv/video/Which-one-is-different "Which one is different?" http://www.youtube.com/v/93waQAeK_30 http://s3.amazonaws.com/magnifythumbs/NWBVKV58LHNMR2Z9.jpg <a href="http://rett.tv/video/Which-one-is-different"><img src="http://s3.amazonaws.com/magnifythumbs/NWBVKV58LHNMR2Z9.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn is working with her Grammy on making a choice between three objects....finding the one that is different from the other two. autism, rett autism rett 2008-10-02T19:18:48+05:00 68 http://rett.tv/video/Rett-Syndrome-Australian-Resear Rett Syndrome Australian Research Fund http://www.youtube.com/v/4uGGTPVrREU http://s3.amazonaws.com/magnifythumbs/J8FD8PG6LRTSYTH9.jpg <a href="http://rett.tv/video/Rett-Syndrome-Australian-Resear"><img src="http://s3.amazonaws.com/magnifythumbs/J8FD8PG6LRTSYTH9.jpg" align="right" border="0"></a> muppet2121 wrote: The Rett Syndrome Australian Research Fund is a voluntary organisation and all money donated is spent directly on Rett Syndrome research. Professor John Christodoulou from the Childrens Hospital at Westmead in Sydney who is head of the Australian Research Team is doing some amazing research to find a cure for my daughter and her friends. As a parent it is so exciting and something we have only been able to dream of. Thank you for taking the time to watch this video. (the website is a little out of date but is in the process of being updated) 2008-09-28T09:47:15+05:00 30 http://rett.tv/video/Playing-with-Horses Playing with Horses http://www.youtube.com/v/aCP5mF6j8SI http://s3.amazonaws.com/magnifythumbs/R3VB9YKR1BRR9ZC0.jpg <a href="http://rett.tv/video/Playing-with-Horses"><img src="http://s3.amazonaws.com/magnifythumbs/R3VB9YKR1BRR9ZC0.jpg" align="right" border="0"></a> lncrowe wrote: Meagan got new horses for her 5th birthday. Here are Mommy and Meagan playing quitely with them. Meagan has Rett Syndrome and doesn't know how to pretend-play. She doesn't typically attend to an activity for more than a minute or two, but here we played for more than 20 minutes. Play, Autism, Rett, Horses Play Autism Rett Horses 2008-09-28T09:50:21+05:00 366 http://rett.tv/video/My-SIS My SIS http://www.youtube.com/v/FV-L4ewH8V0 http://s3.amazonaws.com/magnifythumbs/WWSB2545WKN7MC8W.jpg <a href="http://rett.tv/video/My-SIS"><img src="http://s3.amazonaws.com/magnifythumbs/WWSB2545WKN7MC8W.jpg" align="right" border="0"></a> GstGymnast wrote: A Tribute to my little sister Maria who has Rett Syndrome Tribute Tribute 2008-09-28T10:20:23+05:00 94 http://rett.tv/video/Race-For-Grace Race For Grace http://www.youtube.com/v/uC0urcqad_g http://s3.amazonaws.com/magnifythumbs/YJV2Z0Q8FFR6QQMK.jpg <a href="http://rett.tv/video/Race-For-Grace"><img src="http://s3.amazonaws.com/magnifythumbs/YJV2Z0Q8FFR6QQMK.jpg" align="right" border="0"></a> wadddupabbs wrote: This is a VERY MEANING and important video. This little beautiful amazing girl, Grace-- only 3 years old has Rett Syndrome. I do not own any of these pictures, they belong to the Reddington family. Please do not leave any rude/disrespectful comments; or they WILL be blocked/deleted. Grace and her family, do live near by. In the same state, same town(that I'm not going to tell you) These pictures contain at home pictures, private-life, events, the race and more! Please enjoy. & comment. Subscribe! If you have any questions please feel free to ask and I will try to answer them! Please visit: http://www.theraceforgrace.com Thank you. God Bless the Reddington Family- your in our prayers 2008-09-28T10:20:54+05:00 318 http://rett.tv/video/Brooklyn-riding-her-new-adaptiv Brooklyn riding her new adaptive tricycle http://www.youtube.com/v/Zq97LHhcdxg http://s3.amazonaws.com/magnifythumbs/SWLK6KDSX1GJP2XN.jpg <a href="http://rett.tv/video/Brooklyn-riding-her-new-adaptiv"><img src="http://s3.amazonaws.com/magnifythumbs/SWLK6KDSX1GJP2XN.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn loves her new tricycle and we love the huge smile that it puts on her face! I see lots of bike rides in our future! autism, rett autism rett 2008-09-28T10:20:59+05:00 48 http://rett.tv/video/Casting-4-A-Cure-2008 Casting 4 A Cure 2008 http://www.youtube.com/v/brFbD1u7XRM http://s3.amazonaws.com/magnifythumbs/F8K2H8R82CWXYP02.jpg <a href="http://rett.tv/video/Casting-4-A-Cure-2008"><img src="http://s3.amazonaws.com/magnifythumbs/F8K2H8R82CWXYP02.jpg" align="right" border="0"></a> bfarnu wrote: This is a movie that documents the 1st Annual Casting 4 A Cure Flyfishing Tournament, which we organized as a fundraiser to help find a cure for Rett Syndrome. Our 4 year old daughter Ella, whom you see in the first scene, is one of the young victims of this horrible genetic disorder. Rett Syndrome is a rare and devastating neurological disorder that strikes mostly girls and robs them of their motor skills, speech and many of the things we all take for granted on a day to day basis. Thanks so much to our sponsors who helped us raise over $16,000 for Rett Syndrome research. ... For more information you can log onto www.casting4acure.com and www.rettsyndrome.org. 8.19 2008-09-16T07:18:37+05:00 455 http://rett.tv/video/Rett-Syndrome-Campaign Rett Syndrome Campaign http://www.youtube.com/v/z_MO7FlMtdM http://s3.amazonaws.com/magnifythumbs/BV90VMJ7F90F8QVG.jpg <a href="http://rett.tv/video/Rett-Syndrome-Campaign"><img src="http://s3.amazonaws.com/magnifythumbs/BV90VMJ7F90F8QVG.jpg" align="right" border="0"></a> GITAMSBUM wrote: Rett Syndrome] תסמונת רט היא "קרובת משפחה" של האוטיזם. היא נגרמת על ידי פגיעה גנטית לא תורשתית, ומופיעה בעיקר בבנות, בשנות חייהן הראשונות. לאחר הלידה ובמשך כמה חודשים התינוקת בריאה, פעילה וחייכנית, ואז מתחילה ההידרדרות. תסמונת רט היא הקשה ביותר מבין משפחת האוטיזם: רוב הילדות סובלות מנכות של מאה אחוזים, אינן מסוגלות ללכת, לאכול לבד, לדבר או להשתמש בידיהן. הן זקוקות לעזרה 24 שעות ביממה. למרות זאת הן יוצרות קשר עין עם הסביבה, פעילות ומלאות שמחת חיים. מכונות בחיבה "מלאכיות הדממה". 2008-09-16T07:19:24+05:00 30 http://rett.tv/video/Honoka Honoka http://www.youtube.com/v/qXRLZNJQQas http://s3.amazonaws.com/magnifythumbs/Y3TKRRZCNT8SFGW0.jpg <a href="http://rett.tv/video/Honoka"><img src="http://s3.amazonaws.com/magnifythumbs/Y3TKRRZCNT8SFGW0.jpg" align="right" border="0"></a> 2914953 wrote: SHE IS HONOKA WHO HAVE RETT SYNDROME.8 YEARS OLD.HE IS OUR THE ELDEST SON.4 YEARS OLD.They have gymnastic exercise. 2008-09-16T07:17:03+05:00 61 http://rett.tv/video/Miracles-of-Brain-Wave-Vibratio Miracles of Brain Wave Vibration - Annette's Rett Syndrome Journey(7min) http://www.youtube.com/v/5U-Gm1mbCG0 http://s3.amazonaws.com/magnifythumbs/4NQNSW6ZKKHQRTQ4.jpg <a href="http://rett.tv/video/Miracles-of-Brain-Wave-Vibratio"><img src="http://s3.amazonaws.com/magnifythumbs/4NQNSW6ZKKHQRTQ4.jpg" align="right" border="0"></a> SBCproduction wrote: In his book, Brain Wave Vibration: Getting Back into the Rhythm of a Happy, Healthy Life, Ilchi Lee introduces a simple training technique that has already transformed thousands of lives. Brain Wave Vibration is a powerful, easy-to-follow method that helps people bring their bodies and minds back into balance for total health, happiness, and peace. The simplest form of practice merely requires moving your body to your own internal rhythms. We have heard so many wonderful stories from people who have practiced Brain Wave Vibration on a regular basis. Some of these stories focus on amazing physical recovery, often from ailments that have plagued the person for years. In other cases, people have totally changed their mindset about their lives, which completely transforms everything they experience. Recently we heard a story that touched us deeply. One woman, who had read the book and had practiced Brain Wave Vibration for a while, decided to try it with her daughter. The daughter w... 2008-09-04T10:07:52+05:00 432 http://rett.tv/video/retts-syndrome-nilay-20-years-t retts syndrome nilay 20 years turkey http://www.youtube.com/v/eF5T4da5SOA http://s3.amazonaws.com/magnifythumbs/HVZF31Y1W4F7PSC1.jpg <a href="http://rett.tv/video/retts-syndrome-nilay-20-years-t"><img src="http://s3.amazonaws.com/magnifythumbs/HVZF31Y1W4F7PSC1.jpg" align="right" border="0"></a> kuzucuk86 wrote: nilay oyun oynarken retts retts 2008-09-04T10:07:57+05:00 37 http://rett.tv/video/Miracles-of-Brain-Wave-Vibrati-2 Miracles of Brain Wave Vibration - Annette's Rett Syndrome Journey(4min) http://www.youtube.com/v/iXc12DGxmAk http://s3.amazonaws.com/magnifythumbs/XQVMGM0D10WS6ZQP.jpg <a href="http://rett.tv/video/Miracles-of-Brain-Wave-Vibrati-2"><img src="http://s3.amazonaws.com/magnifythumbs/XQVMGM0D10WS6ZQP.jpg" align="right" border="0"></a> SBCproduction wrote: In his book, Brain Wave Vibration: Getting Back into the Rhythm of a Happy, Healthy Life, Ilchi Lee introduces a simple training technique that has already transformed thousands of lives. Brain Wave Vibration is a powerful, easy-to-follow method that helps people bring their bodies and minds back into balance for total health, happiness, and peace. The simplest form of practice merely requires moving your body to your own internal rhythms. We have heard so many wonderful stories from people who have practiced Brain Wave Vibration on a regular basis. Some of these stories focus on amazing physical recovery, often from ailments that have plagued the person for years. In other cases, people have totally changed their mindset about their lives, which completely transforms everything they experience. Recently we heard a story that touched us deeply. One woman, who had read the book and had practiced Brain Wave Vibration for a while, decided to try it with her daughter. The daughter w... 2008-09-04T10:08:09+05:00 246 http://rett.tv/video/Exclusion-Mapping Exclusion Mapping http://www.youtube.com/v/da3SaYGcxZU http://s3.amazonaws.com/magnifythumbs/VDJLB2FL2WVK3L5S.jpg <a href="http://rett.tv/video/Exclusion-Mapping"><img src="http://s3.amazonaws.com/magnifythumbs/VDJLB2FL2WVK3L5S.jpg" align="right" border="0"></a> mosesp6 wrote: A useful technique for narrowing down the location of a gene involves comparing the chromosomes of affected siblings. Two sisters with Rett syndrome allow researchers an opportunity to map the most likely location of the gene by excluding areas of the chromosome that are not alike. Includes audio narration. Exclusion, Mapping Exclusion Mapping 2008-09-04T10:11:58+05:00 33 http://rett.tv/video/Roanoke-Strollathon-2008 Roanoke Strollathon 2008 http://www.youtube.com/v/lOlmDFKsZBc http://s3.amazonaws.com/magnifythumbs/LMMT50RY4KY8M5B3.jpg <a href="http://rett.tv/video/Roanoke-Strollathon-2008"><img src="http://s3.amazonaws.com/magnifythumbs/LMMT50RY4KY8M5B3.jpg" align="right" border="0"></a> THEP8S wrote: Annual Strollathon in Roanoke, VA to raise funds to help find a cure for Rett Syndrome. strollathon, roanoke, rett strollathon roanoke rett 2008-09-01T16:47:33+05:00 635 http://rett.tv/video/Rett-syndrome-5 Rett syndrome http://www.youtube.com/v/srxjt1R0WbM http://s3.amazonaws.com/magnifythumbs/DY23Y3H0DYLSXTPB.jpg <a href="http://rett.tv/video/Rett-syndrome-5"><img src="http://s3.amazonaws.com/magnifythumbs/DY23Y3H0DYLSXTPB.jpg" align="right" border="0"></a> yassermetwally wrote: Rett syndrome Rett Rett 2008-09-01T16:47:37+05:00 14 http://rett.tv/video/Rett-syndrome-6 Rett syndrome http://www.youtube.com/v/KKc3SelQEHo http://s3.amazonaws.com/magnifythumbs/PF1LC8MC2X8H3ZT1.jpg <a href="http://rett.tv/video/Rett-syndrome-6"><img src="http://s3.amazonaws.com/magnifythumbs/PF1LC8MC2X8H3ZT1.jpg" align="right" border="0"></a> yassermetwally wrote: Rett syndrome Rett Rett 2008-09-01T16:48:07+05:00 9 http://rett.tv/video/silly-swimming-sarah silly swimming sarah http://www.youtube.com/v/3y8RFXfSIvI http://s3.amazonaws.com/magnifythumbs/NDVSDM94QC1NT463.jpg <a href="http://rett.tv/video/silly-swimming-sarah"><img src="http://s3.amazonaws.com/magnifythumbs/NDVSDM94QC1NT463.jpg" align="right" border="0"></a> hardingharoo wrote: ok, she is such a crack up! she and gretchen played for almost two hours like this! funny! rett rett 2008-09-01T16:48:23+05:00 91 http://rett.tv/video/Brooklyn-thinks-her-cousin-is Brooklyn thinks her cousin is SO funny! http://www.youtube.com/v/V3M_Z72wbRw http://s3.amazonaws.com/magnifythumbs/R171Q948N9N2Y5G9.jpg <a href="http://rett.tv/video/Brooklyn-thinks-her-cousin-is"><img src="http://s3.amazonaws.com/magnifythumbs/R171Q948N9N2Y5G9.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn's cousin Jackson is on of her very best friends. As you can see in this video he can get her giggling so hard. I love that they are buddies! Rett Rett 2008-09-01T16:49:10+05:00 75 http://rett.tv/video/Brooklyn-having-a-Sonic-Slush Brooklyn having a Sonic Slushie http://www.youtube.com/v/UEau7rv65kA http://s3.amazonaws.com/magnifythumbs/HMB1LP5PW8MSLTN2.jpg <a href="http://rett.tv/video/Brooklyn-having-a-Sonic-Slush"><img src="http://s3.amazonaws.com/magnifythumbs/HMB1LP5PW8MSLTN2.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn had her first taste of a Strawberry Slush at Sonic today and loved it. Her reaction was so cute, we had to get it on film. She had the same reaction with every sip! It was so cold she would grimace but LOVED it and gave us a huge smile and wanted more (you can see using her eye gaze, staring at the cup!) You can't really blame the girl for loving Sonic! rett rett 2008-09-01T16:49:26+05:00 71 http://rett.tv/video/Sarah-Beach-Soccer Sarah Beach Soccer http://www.youtube.com/v/rYdMplYo0p8 http://s3.amazonaws.com/magnifythumbs/N918V2D46JB4WNZZ.jpg <a href="http://rett.tv/video/Sarah-Beach-Soccer"><img src="http://s3.amazonaws.com/magnifythumbs/N918V2D46JB4WNZZ.jpg" align="right" border="0"></a> hardingharoo wrote: On the beach! Sarah as defender in beach soccer -- she loves starting off each point by rolling it down her legs! rett rett 2008-09-01T16:49:37+05:00 43 http://rett.tv/video/Squealing-Sarah Squealing Sarah http://www.youtube.com/v/ZjQZVav-qoI http://s3.amazonaws.com/magnifythumbs/QDKBNB3X56MN7RZG.jpg <a href="http://rett.tv/video/Squealing-Sarah"><img src="http://s3.amazonaws.com/magnifythumbs/QDKBNB3X56MN7RZG.jpg" align="right" border="0"></a> hardingharoo wrote: Oh, the squeal! She is soooo happy right now! rett rett 2008-09-01T16:49:41+05:00 84 http://rett.tv/video/Megan-dolphins Megan dolphins http://www.youtube.com/v/En1HVSduyFE http://s3.amazonaws.com/magnifythumbs/6QXXPWJ2CQP25PKJ.jpg <a href="http://rett.tv/video/Megan-dolphins"><img src="http://s3.amazonaws.com/magnifythumbs/6QXXPWJ2CQP25PKJ.jpg" align="right" border="0"></a> 19monique64 wrote: Mijn naam is Megan en ik ben 2 jaar oud. Ik heb een ongeneeslijke ziekte genaamd CDKL5. Over de hele wereld zijn er maar ongeveer 40 kinderen met deze ziekte. Iedere dag heb ik heel veel last van epilepsie en daardoor kan ik nog niet zitten, praten, lopen etc. Ik kan wel heel goed draaien en dat doe ik dan ook de hele dag. In Amerika word er wel onderzoek gedaan naar mijn ziekte en daar willen wij dan ook graag naartoe maar we moeten het zelf betalen. Ook is er op Curaçao een therapie voor mij, zwemmen met dolfijnen. Dit kost een heleboel geld en mijn papa en mama zijn heel hard aan het sparen, zodat wij misschien eind volgend jaar daar naartoe kunnen. Wij zoeken een heleboel mensen die ons willen sponsoren of helpen dat te realiseren. 2008-09-01T16:50:01+05:00 192 http://rett.tv/video/Miracles-of-Brain-Wave-Vibrat Miracles of Brain Wave Vibration - Annette's Rett Syndrome Journey(7min) http://www.youtube.com/v/cMeWoWyL1eo http://s3.amazonaws.com/magnifythumbs/6GB73M7PYZ95HH4S.jpg <a href="http://rett.tv/video/Miracles-of-Brain-Wave-Vibrat"><img src="http://s3.amazonaws.com/magnifythumbs/6GB73M7PYZ95HH4S.jpg" align="right" border="0"></a> IlchiLee wrote: In his book, Brain Wave Vibration: Getting Back into the Rhythm of a Happy, Healthy Life, Ilchi Lee introduces a simple training technique that has already transformed thousands of lives. Brain Wave Vibration is a powerful, easy-to-follow method that helps people bring their bodies and minds back into balance for total health, happiness, and peace. The simplest form of practice merely requires moving your body to your own internal rhythms. We have heard so many wonderful stories from people who have practiced Brain Wave Vibration on a regular basis. Some of these stories focus on amazing physical recovery, often from ailments that have plagued the person for years. In other cases, people have totally changed their mindset about their lives, which completely transforms everything they experience. Recently we heard a story that touched us deeply. One woman, who had read the book and had practiced Brain Wave Vibration for a while, decided to try it with her daughter. The daughter was su... 2008-09-01T16:43:45+05:00 432 http://rett.tv/video/Lauras-Stem-Cell-Experience-R Laura's Stem Cell Experience - Rett syndrome http://www.youtube.com/v/MAq1UtJK6s8 http://s3.amazonaws.com/magnifythumbs/PNJ1H09BPZPBD0N1.jpg <a href="http://rett.tv/video/Lauras-Stem-Cell-Experience-R"><img src="http://s3.amazonaws.com/magnifythumbs/PNJ1H09BPZPBD0N1.jpg" align="right" border="0"></a> chinastemcells wrote: Please go to http://www.stemcellschina.com for Laura's complete patient experience. 2008-09-01T16:45:08+05:00 172 http://rett.tv/video/Information-on-Monas-case-of Information on Mona's case of Rett Syndrome http://www.youtube.com/v/envzZLA4H8I http://s3.amazonaws.com/magnifythumbs/59T18DTVM8LWN6QR.jpg <a href="http://rett.tv/video/Information-on-Monas-case-of"><img src="http://s3.amazonaws.com/magnifythumbs/59T18DTVM8LWN6QR.jpg" align="right" border="0"></a> loishack wrote: Describing Mona's case of Rett Syndrome and her care. I made this video to help inform people of RS. RS, Rett RS Rett 2008-09-01T16:45:42+05:00 192 http://rett.tv/video/FIRST-ANNUAL-RIDE-FOR-RETT-SY FIRST ANNUAL 'RIDE FOR RETT SYNDROME' http://www.youtube.com/v/IAOTi--oTQ8 http://s3.amazonaws.com/magnifythumbs/RV1W7731M2G50CDW.jpg <a href="http://rett.tv/video/FIRST-ANNUAL-RIDE-FOR-RETT-SY"><img src="http://s3.amazonaws.com/magnifythumbs/RV1W7731M2G50CDW.jpg" align="right" border="0"></a> jenntwix wrote: FUNDRAISER TO RAISE MONEY FOR A CURE RIDE, RETT RIDE RETT 2008-09-01T16:45:46+05:00 313 http://rett.tv/video/Rett-syndrome-7 Rett syndrome http://www.youtube.com/v/d8AB69cANs4 http://s3.amazonaws.com/magnifythumbs/PDK7F5G6QSHHTGVT.jpg <a href="http://rett.tv/video/Rett-syndrome-7"><img src="http://s3.amazonaws.com/magnifythumbs/PDK7F5G6QSHHTGVT.jpg" align="right" border="0"></a> yassermetwally wrote: Rett syndrome Rett Rett 2008-09-01T16:46:10+05:00 39 http://rett.tv/video/Megan-has-Rett-Syndrome-and-w Megan has Rett Syndrome and writes hand over hand http://www.youtube.com/v/OqZfO0KLej0 http://s3.amazonaws.com/magnifythumbs/P66RK56K0CZL3GNF.jpg <a href="http://rett.tv/video/Megan-has-Rett-Syndrome-and-w"><img src="http://s3.amazonaws.com/magnifythumbs/P66RK56K0CZL3GNF.jpg" align="right" border="0"></a> AngelaStaner wrote: Megan writing hand over hand with the help of her associate 2008-09-01T16:46:13+05:00 87 http://rett.tv/video/Rett-syndrome-8 Rett syndrome http://www.youtube.com/v/aEKAQka5a0s http://s3.amazonaws.com/magnifythumbs/L2M5SH49JCRY15KP.jpg <a href="http://rett.tv/video/Rett-syndrome-8"><img src="http://s3.amazonaws.com/magnifythumbs/L2M5SH49JCRY15KP.jpg" align="right" border="0"></a> yassermetwally wrote: RS is characterized by profound cognitive impairment, communication dysfunction, stereotypic movements, and pervasive growth failure, which follow a period of apparently normal development for the first 6 to 18 months of life. All attempts to find a biologic marker were unsuccessful until the recent identification of a gene for RS . The diagnosis of RS, however, is based on clinical criteria, because not all girls with the RS phenotype have mutations in this gene (see below). These include normal pre- and perinatal periods and apparently normal development for the first several months of life. Thereafter, purposeful hand skills are lost along with regression of psychomotor and communication functions. These changes may occur as early as 6 months of age or as late as 2.5 years. Some girls may have features of the autistic spectrum disorders in the sense that eye contact is poor and attempts at socialization and communication are severely limited. Profound irritability without apparent... childhoof, autism childhoof autism 2008-09-01T16:46:20+05:00 15 http://rett.tv/video/Rett-syndrome-9 Rett syndrome http://www.youtube.com/v/kkYWENI6mSg http://s3.amazonaws.com/magnifythumbs/BH19YJ0023PMRPKF.jpg <a href="http://rett.tv/video/Rett-syndrome-9"><img src="http://s3.amazonaws.com/magnifythumbs/BH19YJ0023PMRPKF.jpg" align="right" border="0"></a> yassermetwally wrote: Rett syndrome Rett Rett 2008-09-01T16:46:22+05:00 9 http://rett.tv/video/Rett-syndrome-10 Rett syndrome http://www.youtube.com/v/MAf441axnn0 http://s3.amazonaws.com/magnifythumbs/BMXK66QWMTNC76SW.jpg <a href="http://rett.tv/video/Rett-syndrome-10"><img src="http://s3.amazonaws.com/magnifythumbs/BMXK66QWMTNC76SW.jpg" align="right" border="0"></a> yassermetwally wrote: http://yassermetwally.com Rett syndrome Rett Rett 2008-09-01T16:46:36+05:00 42 http://rett.tv/video/Rett-syndrome-11 Rett syndrome http://www.youtube.com/v/_R5GrAHekZ0 http://s3.amazonaws.com/magnifythumbs/XHF51WNZV7X1SRX9.jpg <a href="http://rett.tv/video/Rett-syndrome-11"><img src="http://s3.amazonaws.com/magnifythumbs/XHF51WNZV7X1SRX9.jpg" align="right" border="0"></a> yassermetwally wrote: Rett syndrome is a relatively rare neurodevelopmental disorder (incidence: approximately one out of 10,000 female births) that reached worldwide prominence in the early 1980s. Owing to its overwhelming predominance in females, Rett syndrome was regarded as a genetic disorder. However, its occurrence is sporadic, with a recurrence risk well below 0.5%. In 1999, confirmation was provided by the demonstration of mutations in the MECP2 gene. At present, more than 95% of females who fulfill consensus criteria for Rett syndrome have a mutation in this gene. Over the past 25 years, understanding of the clinical features and natural history of this unique neurodevelopmental disorder has evolved dramatically. Rett Rett 2008-09-01T16:46:39+05:00 2 http://rett.tv/video/Taylor-Medlin-Bat-Mitzvah-816 Taylor Medlin Bat Mitzvah 8/16/08 http://www.youtube.com/v/WpQWXunA8Mo http://s3.amazonaws.com/magnifythumbs/MDKBBV8VLLDRBLV6.jpg <a href="http://rett.tv/video/Taylor-Medlin-Bat-Mitzvah-816"><img src="http://s3.amazonaws.com/magnifythumbs/MDKBBV8VLLDRBLV6.jpg" align="right" border="0"></a> stevemedlin wrote: Taylor Medlin has Rett syndrome. On 8/16/08 she became a Bat Mitvah. Mazel Tov Taylor! 2008-09-01T16:46:53+05:00 534 http://rett.tv/video/Awake-and-Laugh Awake and Laugh http://www.youtube.com/v/HDy3W_zp4sA http://s3.amazonaws.com/magnifythumbs/J8GWFD3TKKBJ0N1N.jpg <a href="http://rett.tv/video/Awake-and-Laugh"><img src="http://s3.amazonaws.com/magnifythumbs/J8GWFD3TKKBJ0N1N.jpg" align="right" border="0"></a> hardingharoo wrote: Here is a little glimpse at our life with Sarah -- our middle child who suffers from Rett Syndrome. Rett Rett 2008-09-01T16:46:59+05:00 223 http://rett.tv/video/Rett-syndrome-12 Rett syndrome http://www.youtube.com/v/T6KXH_1Nlls http://s3.amazonaws.com/magnifythumbs/GD2ZRHTGSGWYQYSL.jpg <a href="http://rett.tv/video/Rett-syndrome-12"><img src="http://s3.amazonaws.com/magnifythumbs/GD2ZRHTGSGWYQYSL.jpg" align="right" border="0"></a> yassermetwally wrote: Rett syndrome Rett Rett 2008-09-01T16:47:06+05:00 22 http://rett.tv/video/Miracles-of-Brain-Wave-Vibrat-2 Miracles of Brain Wave Vibration - Annette's Rett Syndrome Journey(4min) http://www.youtube.com/v/DHtM_mhFhco http://s3.amazonaws.com/magnifythumbs/L3L0GSZT44LF2K00.jpg <a href="http://rett.tv/video/Miracles-of-Brain-Wave-Vibrat-2"><img src="http://s3.amazonaws.com/magnifythumbs/L3L0GSZT44LF2K00.jpg" align="right" border="0"></a> IlchiLee wrote: After having practiced Brain wave Vibration for a few weeks, I knew it was very helpful. In just those few weeks, I have found that my eyesight improved, I felt less stressed, and I have fewer headaches. These were all great results for me, but as I read the book and learned more, I began to wonder, "Could Brain Wave Vibration help my daughter?" ... 2008-09-01T16:47:18+05:00 246 http://rett.tv/video/Arianna-Speaks Arianna Speaks http://www.youtube.com/v/kerYTvOEatw http://s3.amazonaws.com/magnifythumbs/4SYGVG4040M256CW.jpg <a href="http://rett.tv/video/Arianna-Speaks"><img src="http://s3.amazonaws.com/magnifythumbs/4SYGVG4040M256CW.jpg" align="right" border="0"></a> bookm4n wrote: Here is proof that Rett girls can continue talking. Arianna says "hi" and "yeah" appropriately in this video clip from May 17 2008. Notice I was singing to Arianna. Music seems to aid the communication process. Let me know your thoughts! Thanks! Kim Greenblatt, Arianna's dad 2008-09-01T16:50:08+05:00 28 http://rett.tv/video/Grace-To-Now Grace To Now http://www.youtube.com/v/sD8rjZsyC-Y http://s3.amazonaws.com/magnifythumbs/H20BP8LVTW6CHVT2.jpg <a href="http://rett.tv/video/Grace-To-Now"><img src="http://s3.amazonaws.com/magnifythumbs/H20BP8LVTW6CHVT2.jpg" align="right" border="0"></a> RaceForGrace wrote: Pictures of Grace to Now. www.rettsyndrome.org www.theraceforgrace.com 10 2008-09-01T16:50:04+05:00 600 http://rett.tv/video/Abby-V-Rett-Syndrome-4-Abby-s Abby V Rett Syndrome 4 Abby stands up http://video.google.com/googleplayer.swf?docId=1194262229183064107 http://s3.amazonaws.com/magnifythumbs/RY0YCVQYY6GDRCXD.jpg <a href="http://rett.tv/video/Abby-V-Rett-Syndrome-4-Abby-s"><img src="http://s3.amazonaws.com/magnifythumbs/RY0YCVQYY6GDRCXD.jpg" align="right" border="0"></a> Abby stands up from sitting position on her own 2008-09-01T16:52:12+05:00 http://rett.tv/video/Indianapolis-Girl-Lives-With Indianapolis Girl Lives With Rare Disorder http://eplayer.clipsyndicate.com/cs_api/get_swf?swfHome=eplayer.clipsyndicate.com&va_id=680003 http://s3.amazonaws.com/magnifythumbs/J720C5HMP1MMSDJ7.jpg <a href="http://rett.tv/video/Indianapolis-Girl-Lives-With"><img src="http://s3.amazonaws.com/magnifythumbs/J720C5HMP1MMSDJ7.jpg" align="right" border="0"></a> WRTV ABC Indianapolis wrote: A 12-year-old girl has Phelan-McDermid Syndrome. 2008-09-01T16:52:43+05:00 http://rett.tv/video/Allison-tribute-Rett-syndrome Allison tribute-Rett syndrome http://www.youtube.com/v/3LVASqe0c4w http://s3.amazonaws.com/magnifythumbs/GPDB22B86Z7DPN8Q.jpg <a href="http://rett.tv/video/Allison-tribute-Rett-syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/GPDB22B86Z7DPN8Q.jpg" align="right" border="0"></a> karialirett wrote: My sister allison has rett syndrome, it's a neurological disorder that affects the x chromosome. It usually happens to girls, they are born with Rett and they grow normally until 3-6 months. After that, they start losing their skills. visit my website to get more info and links... 2008-07-29T16:39:36+05:00 77 http://rett.tv/video/Vide-grenier-podensac-8-mai-2 Vide grenier podensac 8 mai 2008 http://www.dailymotion.com/swf/x5enrp http://s3.amazonaws.com/magnifythumbs/77DQPF00LFXZZBRY.jpg <a href="http://rett.tv/video/Vide-grenier-podensac-8-mai-2"><img src="http://s3.amazonaws.com/magnifythumbs/77DQPF00LFXZZBRY.jpg" align="right" border="0"></a> fofie999 wrote: un vide grenier dont les benefices vont pour la lutte contre le syndrôme de rett une maladie infantile 2008-07-29T16:36:43+05:00 29 http://rett.tv/video/Knock-Knock Knock Knock http://www.youtube.com/v/S9rusKlJAJ0 http://s3.amazonaws.com/magnifythumbs/8LXNV5RP28BSPVKG.jpg <a href="http://rett.tv/video/Knock-Knock"><img src="http://s3.amazonaws.com/magnifythumbs/8LXNV5RP28BSPVKG.jpg" align="right" border="0"></a> shellytellyuk wrote: An article on Anglia News about the Shelly Telly DVD "Knock Knock" that starred Jackie Webb and her family. 2008-07-21T17:22:37+05:00 178 http://rett.tv/video/Fernanda Fernanda http://www.youtube.com/v/MEFogZbE_3c http://s3.amazonaws.com/magnifythumbs/BZ2B0VK8SK3X7DC6.jpg <a href="http://rett.tv/video/Fernanda"><img src="http://s3.amazonaws.com/magnifythumbs/BZ2B0VK8SK3X7DC6.jpg" align="right" border="0"></a> ch4rli3 wrote: Letra y Música: Carlos Gamboa 9.54 2008-07-21T17:09:48+05:00 34 http://rett.tv/video/Fernanda-2 Fernanda http://www.youtube.com/v/dGA-xBeVmR8 http://s3.amazonaws.com/magnifythumbs/Q331MYBW4HP360ND.jpg <a href="http://rett.tv/video/Fernanda-2"><img src="http://s3.amazonaws.com/magnifythumbs/Q331MYBW4HP360ND.jpg" align="right" border="0"></a> ch4rli3 wrote: Letra y Musica: Carlos Gamboa 2008-07-21T17:09:41+05:00 33 http://rett.tv/video/Simmi-playing-with-her-new-do Simmi playing with her new doll http://www.youtube.com/v/qJKdG3WFRuM http://s3.amazonaws.com/magnifythumbs/WRDQM3XJJ247FRFZ.jpg <a href="http://rett.tv/video/Simmi-playing-with-her-new-do"><img src="http://s3.amazonaws.com/magnifythumbs/WRDQM3XJJ247FRFZ.jpg" align="right" border="0"></a> FundraiserHero wrote: I thought this was priceless and so precious. I searched for months to find the perfect first baby to give to Simmi, and boy did she love her. laughing, Rett, toddlers laughing Rett toddlers 2008-07-21T17:09:33+05:00 362 http://rett.tv/video/Trouble-eating-71408 Trouble eating 7/14/08 http://www.youtube.com/v/_o1klDwn2lo http://s3.amazonaws.com/magnifythumbs/D9HXYCV9T5HW5RSH.jpg <a href="http://rett.tv/video/Trouble-eating-71408"><img src="http://s3.amazonaws.com/magnifythumbs/D9HXYCV9T5HW5RSH.jpg" align="right" border="0"></a> FundraiserHero wrote: Although Simmi was hungry, she was fighting being fed and having trouble at times with her mouth and tongue. Rett Rett 2008-07-21T17:09:29+05:00 398 http://rett.tv/video/Julianna-And-Vinne-ONCE-AGAIN Julianna And Vinne ONCE AGAIN! http://www.youtube.com/v/PJpVjtDTJvk http://s3.amazonaws.com/magnifythumbs/QL96VBQ7CZTB6BYD.jpg <a href="http://rett.tv/video/Julianna-And-Vinne-ONCE-AGAIN"><img src="http://s3.amazonaws.com/magnifythumbs/QL96VBQ7CZTB6BYD.jpg" align="right" border="0"></a> TakeOrBreakTheHeart wrote: ^_^ My mommy was at Best Buy and I babysat Vinnie && Julianna in the car while my mom was at the store :P It was fun :D ------------------------------------ reminder! Julianna has Rett Syndrome and Vinnie has autism autism, rett autism rett 2008-07-09T18:10:16+05:00 139 http://rett.tv/video/Abby-V-Rett-Syndrome-Part-3-g Abby V Rett Syndrome Part 3 giggle fit http://video.google.com/googleplayer.swf?docId=-2668534707753022484 http://s3.amazonaws.com/magnifythumbs/HKMFGQNFCX8VZM22.jpg <a href="http://rett.tv/video/Abby-V-Rett-Syndrome-Part-3-g"><img src="http://s3.amazonaws.com/magnifythumbs/HKMFGQNFCX8VZM22.jpg" align="right" border="0"></a> Drunk on Milk Giggle fit 2008-07-09T18:08:26+05:00 http://rett.tv/video/RETT-SYNDROME-JULIA-MILLER RETT SYNDROME JULIA MILLER http://www.youtube.com/v/dvrTD-uBjps http://s3.amazonaws.com/magnifythumbs/PML3H8F58TR5NLJ8.jpg <a href="http://rett.tv/video/RETT-SYNDROME-JULIA-MILLER"><img src="http://s3.amazonaws.com/magnifythumbs/PML3H8F58TR5NLJ8.jpg" align="right" border="0"></a> DAVTARZACJUL wrote: PICTURES OF JULIA RETT RETT 2008-07-09T18:09:36+05:00 590 http://rett.tv/video/Brooklyn-Butlers-Benefit-Vide Brooklyn Butler's Benefit Video http://www.youtube.com/v/SgP09e_DWLQ http://s3.amazonaws.com/magnifythumbs/CFPN9XP5RHJMPH5S.jpg <a href="http://rett.tv/video/Brooklyn-Butlers-Benefit-Vide"><img src="http://s3.amazonaws.com/magnifythumbs/CFPN9XP5RHJMPH5S.jpg" align="right" border="0"></a> meggers144 wrote: Pictures of Brooklyn with small pieces of information to music..specifically Brooklyn's song written by Steve Smith Brooklyn, Rett Brooklyn Rett 2008-07-09T18:11:02+05:00 421 http://rett.tv/video/Simmi-using-a-spoon-61108 Simmi using a spoon 6/11/08 http://www.youtube.com/v/oojrqXwkT68 http://s3.amazonaws.com/magnifythumbs/97H797DYJXXCXRFF.jpg <a href="http://rett.tv/video/Simmi-using-a-spoon-61108"><img src="http://s3.amazonaws.com/magnifythumbs/97H797DYJXXCXRFF.jpg" align="right" border="0"></a> FundraiserHero wrote: This was Simmi's first time using the spoon, just one day after her first birthday. Rett Rett 2008-07-09T18:11:43+05:00 353 http://rett.tv/video/Simmi-on-62408 Simmi on 6/24/08 http://www.youtube.com/v/cWo3VQrqMKY http://s3.amazonaws.com/magnifythumbs/PKSWD1Z7PCY97KV2.jpg <a href="http://rett.tv/video/Simmi-on-62408"><img src="http://s3.amazonaws.com/magnifythumbs/PKSWD1Z7PCY97KV2.jpg" align="right" border="0"></a> FundraiserHero wrote: Simmi just started fumbling things out of her hands in June, not long after her first birthday. Rett Rett 2008-07-09T18:11:59+05:00 215 http://rett.tv/video/The-Strength-of-Families-Solv The Strength of Families: Solving Rett Syndrome http://www.youtube.com/v/o0n8ym2KXRM http://s3.amazonaws.com/magnifythumbs/K5B72BLG0YN1SPJ3.jpg <a href="http://rett.tv/video/The-Strength-of-Families-Solv"><img src="http://s3.amazonaws.com/magnifythumbs/K5B72BLG0YN1SPJ3.jpg" align="right" border="0"></a> ResearchChannel wrote: Girls with Rett syndrome develop normally for about 18 months and then begin to regress. Eventually, they have difficulty walking, speaking, and using their hands. With the help of affected girls and their families, Dr. Zoghbi and her collaborators found the gene responsible for this neurological disorder. The gene, called MECP2, encodes a protein essential to the normal functioning of nerve cells in the brain. Dr. Zoghbi discusses how identification of this gene should lead to better methods for diagnosing and treating Rett syndrome. 2008-06-30T07:29:11+05:00 3550 http://rett.tv/video/rett-syndrome rett syndrome http://www.youtube.com/v/jgmbUVk2Tw4 http://s3.amazonaws.com/magnifythumbs/YTLGGJXV8WRBMNBN.jpg <a href="http://rett.tv/video/rett-syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/YTLGGJXV8WRBMNBN.jpg" align="right" border="0"></a> yassermetwally wrote: rett syndrome rett rett 2008-06-30T07:30:02+05:00 24 http://rett.tv/video/Julianna-Vinnie-AGAIN Julianna && Vinnie.. (AGAIN) http://www.youtube.com/v/T1JUnc9_EqI http://s3.amazonaws.com/magnifythumbs/L97FFZ2S39ZN9SZS.jpg <a href="http://rett.tv/video/Julianna-Vinnie-AGAIN"><img src="http://s3.amazonaws.com/magnifythumbs/L97FFZ2S39ZN9SZS.jpg" align="right" border="0"></a> TakeOrBreakTheHeart wrote: first it starts with my sister Julianna... Julianna has Rett Syndrome. Then I show my cute brother, Vinnie.... he has Autism. :] Autism, Rett Autism Rett 2008-06-30T07:30:08+05:00 180 http://rett.tv/video/Grace-News-Report Grace News Report http://www.youtube.com/v/YDoSwa0IaGs http://s3.amazonaws.com/magnifythumbs/T7NTSP2VDD8ZRQW7.jpg <a href="http://rett.tv/video/Grace-News-Report"><img src="http://s3.amazonaws.com/magnifythumbs/T7NTSP2VDD8ZRQW7.jpg" align="right" border="0"></a> RaceForGrace wrote: News report about Grace Reddington. A 3 year old girl with Rett Syndrome 2008-06-30T07:30:13+05:00 188 http://rett.tv/video/The-Race-for-Grace The Race for Grace http://www.youtube.com/v/qVD4ijK2MyQ http://s3.amazonaws.com/magnifythumbs/4ZBQGK33XXPWBNQW.jpg <a href="http://rett.tv/video/The-Race-for-Grace"><img src="http://s3.amazonaws.com/magnifythumbs/4ZBQGK33XXPWBNQW.jpg" align="right" border="0"></a> DIGITALphotoconcept wrote: Sports photography by George Ross: A selection of photographs from 'The Race for Grace', a fundraising event for Rett Syndrome 2008-06-30T07:30:43+05:00 323 http://rett.tv/video/Simone-6508 Simone 6/5/08 http://www.youtube.com/v/nahU_GC2C4k http://s3.amazonaws.com/magnifythumbs/7QL7Y6TG2WPTC55F.jpg <a href="http://rett.tv/video/Simone-6508"><img src="http://s3.amazonaws.com/magnifythumbs/7QL7Y6TG2WPTC55F.jpg" align="right" border="0"></a> FundraiserHero wrote: Simmi started to bobble her head last week. So cute and quirky! She will be a year old on 6/10. Rett Rett 2008-06-30T07:31:27+05:00 315 http://rett.tv/video/The-Fork The Fork http://www.youtube.com/v/JXFKb0zkpHI http://s3.amazonaws.com/magnifythumbs/Q7V62C1S5WW7BQFW.jpg <a href="http://rett.tv/video/The-Fork"><img src="http://s3.amazonaws.com/magnifythumbs/Q7V62C1S5WW7BQFW.jpg" align="right" border="0"></a> caitlynsmomma wrote: We are working hard on the Fork around here...See our progress Fork, Rett Fork Rett 2008-06-30T07:31:57+05:00 15 http://rett.tv/video/Areah-Rett-Syndrome Areah & Rett Syndrome http://www.youtube.com/v/hUO01lX1KHQ http://s3.amazonaws.com/magnifythumbs/B2D29Y9GQRRH73WM.jpg <a href="http://rett.tv/video/Areah-Rett-Syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/B2D29Y9GQRRH73WM.jpg" align="right" border="0"></a> cbrown113 wrote: Areah at age 10. Rett's syndrome Angel our silent angel. RS Rett syndrome is a neurodevelopmental disorder that is classified as a pervasive developmental disorder by the DSM-IV. Many argue that this is a misclassification just as it would be to include such disorders as fragile X syndrome, tuberous sclerosis, or Down syndrome where one can see autistic features. The symptoms of this disorder are most easily confused with those of Angelman syndrome and autism. The clinical features include a deceleration of the rate of head growth (including microcephaly in some) and small hands and feet. Stereotypic, repetitive hand movements such as mouthing or wringing are also noted. Symptoms of the disorder include cognitive impairment and problems with socialization, the latter during the regression period. 2008-06-12T15:39:16+05:00 207 http://rett.tv/video/2008-Tahoe-Ride-For-Rett 2008 Tahoe Ride For Rett http://www.youtube.com/v/dnP7QTDCLEs http://s3.amazonaws.com/magnifythumbs/DZQSPSSLQ4YZ8266.jpg <a href="http://rett.tv/video/2008-Tahoe-Ride-For-Rett"><img src="http://s3.amazonaws.com/magnifythumbs/DZQSPSSLQ4YZ8266.jpg" align="right" border="0"></a> bfarnu wrote: This is a movie that documents the 1st Annual Lake Tahoe Ride For Rett Syndrome, which we organized as a fundraiser to help find a cure for Rett Syndrome. Our 3 year old daughter Ella, whom you see in the first scene, is one of the young victims of this horrible genetic disorder. Rett Syndrome is a rare and devastating neurological disorder that strikes mostly girls and robs them of their motor skills, speech and many of the things we all take for granted on a day to day basis. Thanks so much to our sponsors who helped us raise over $16,000 for Rett Syndrome research. We are now 72 miles Closer to A Cure... For more information you can log onto www.rettsyndrome.org. 2008-06-12T15:40:44+05:00 262 http://rett.tv/video/Samantha-Corpus-Fundraiser-Sl Samantha Corpus Fundraiser Slideshow http://www.youtube.com/v/116EYw8msyY http://s3.amazonaws.com/magnifythumbs/P36G26CPVMKMMQ90.jpg <a href="http://rett.tv/video/Samantha-Corpus-Fundraiser-Sl"><img src="http://s3.amazonaws.com/magnifythumbs/P36G26CPVMKMMQ90.jpg" align="right" border="0"></a> bfarnu wrote: This is a slide show that was presented at a fundraiser for Rett Syndrome in honor of Samantha Corpus. All the girls appearing are victims of Rett Syndrome, a rare and devastating neurological disorder that strikes mostly girls and robs them of their motor skills, speech and many of the things we all take for granted on a day to day basis. For more information you can log onto www.rettsyndrome.org. Fundraiser, Rett, Corpus, Samantha Fundraiser Rett Corpus Samantha 2008-06-12T15:40:48+05:00 299 http://rett.tv/video/Sndrome-de-Rett-Abrace-esta-c Síndrome de Rett - Abrace esta causa http://www.youtube.com/v/liaWEYDTT0w http://s3.amazonaws.com/magnifythumbs/HMFJ22KFM4Q13MFQ.jpg <a href="http://rett.tv/video/Sndrome-de-Rett-Abrace-esta-c"><img src="http://s3.amazonaws.com/magnifythumbs/HMFJ22KFM4Q13MFQ.jpg" align="right" border="0"></a> leilaschuindt wrote: Campanha informativa divulgada no Blog "Síndrome de Rett" - http://sindromederett.blogspot.com Aos visitantes do YouTube, pedimos que "abracem esta causa" e divulguem o vídeo a TODOS. Vamos mobilizar a sociedade e criar uma "campanha nacional sobre a síndrome de Rett". Para que ninguém mais diga que nunca ouviu falar desta doença. Para que nenhuma menina fique sem diagnóstico. Para que nenhum profissional continue desatualizado. E para que nenhuma família fique sem apoio ou informação. Duração: 1'28" Créditos | Imagens: The Rett Syndrome Handbook (escrito por Kathy Hunter - direitos autorais International Rett Syndrome Foundation) | Música: Petite maman (autor: Nicolas Krassik - fonograma gentilmente cedido por Rob Digital) | Produção: Leila Schuindt Monnerat e Maria Carolina Viana 2008-06-12T15:40:51+05:00 89 http://rett.tv/video/JuliannaVinnie Julianna/Vinnie! http://www.youtube.com/v/eTIawgkb9Hc http://s3.amazonaws.com/magnifythumbs/KQSTD5650HYJGVLX.jpg <a href="http://rett.tv/video/JuliannaVinnie"><img src="http://s3.amazonaws.com/magnifythumbs/KQSTD5650HYJGVLX.jpg" align="right" border="0"></a> TakeOrBreakTheHeart wrote: my brohter and sister. my sister julianna has rett syndrome and my brother vinnie has autism rett, autism rett autism 2008-06-12T15:41:16+05:00 97 http://rett.tv/video/Jessicas-Rett-Walk Jessica's Rett Walk http://www.youtube.com/v/iREU6zcuA3Q http://s3.amazonaws.com/magnifythumbs/4S2B24MG00CL7T3L.jpg <a href="http://rett.tv/video/Jessicas-Rett-Walk"><img src="http://s3.amazonaws.com/magnifythumbs/4S2B24MG00CL7T3L.jpg" align="right" border="0"></a> mom25gr8kds wrote: Rett Rett Rett 2008-06-12T15:42:42+05:00 63 http://rett.tv/video/Carolina Carolina http://www.youtube.com/v/DFYBSHZs48k http://s3.amazonaws.com/magnifythumbs/KH2MGYG43M83NF05.jpg <a href="http://rett.tv/video/Carolina"><img src="http://s3.amazonaws.com/magnifythumbs/KH2MGYG43M83NF05.jpg" align="right" border="0"></a> Telethonitalia wrote: Carolina Fazzini ha 10 anni ed è affetta da Sindrome di Rett. Vive con la madre, il padre e due fratelli più piccoli che le vogliono tanto bene. Non parla, ha tanti problemi e comunica con gli occhi, ma sa regalare momenti di grande gioia a chi le sta vicino. Le recenti scoperte sulla sindrome danno speranza a lei e alla famiglia che ogni giorno lotta contro la malattia. Forse il futuro non è così vicino, ma una speranza ha aperto un varco nella sua vita e in quella della sua famiglia. Per saperne di più visita il sito internet www.telethon.it. 2008-05-06T12:02:32+05:00 346 http://rett.tv/video/So-Much-To-Say-by-Steve-Smith "So Much To Say" by Steve Smith http://www.youtube.com/v/jyAtpyavy9s http://s3.amazonaws.com/magnifythumbs/B8DY4MHYSXGY2N77.jpg <a href="http://rett.tv/video/So-Much-To-Say-by-Steve-Smith"><img src="http://s3.amazonaws.com/magnifythumbs/B8DY4MHYSXGY2N77.jpg" align="right" border="0"></a> ButlerCrew wrote: This is a video montage that includes pictures of Brooklyn from birth up to the one year anniversary of her diagnsis of Rett Syndrome. The song was written for Brooklyn by a wonderful friend of mine the words are: Verse 1: Silent love, she quiets my soul. All my questions have taken their toll. There is no price I wouldn't pay, I'm thankful she has so much to say. Chorus: She has so much to say Like "I love you" and "How was your day?" "Turn on the TV, I'm missing my show." "Do you think my hair looks cute with a bow?" Her eyes tell stories her lips never will With a frown, with a glance she speaks to me still Verse 2: Her thoughts on display for anyone who'll see I've been blinded by the notion that it affects only me These challenges we face won't matter someday An eternity with you with so much to say. Bridge: Those eyes convey all that I need to know A yearning to tell me more than she's able to show Rett Rett 2008-05-22T15:23:50+05:00 214 http://rett.tv/video/Brooklyn-Ashleigh-Butler Brooklyn Ashleigh Butler http://www.youtube.com/v/lZDvGHE8TkQ http://s3.amazonaws.com/magnifythumbs/MBDZDCMJP0J08MXW.jpg <a href="http://rett.tv/video/Brooklyn-Ashleigh-Butler"><img src="http://s3.amazonaws.com/magnifythumbs/MBDZDCMJP0J08MXW.jpg" align="right" border="0"></a> ButlerCrew wrote: May 21, 2007 Brooklyn was diagnosed with Rett Syndrome. October is Rett Syndrome Awareness Month. Rett Rett 2008-05-19T14:32:14+05:00 202 http://rett.tv/video/Simone-on-5408 Simone on 5/4/08 http://www.youtube.com/v/4CZTE139JWs http://s3.amazonaws.com/magnifythumbs/JSN78Q2T8THYCG04.jpg <a href="http://rett.tv/video/Simone-on-5408"><img src="http://s3.amazonaws.com/magnifythumbs/JSN78Q2T8THYCG04.jpg" align="right" border="0"></a> FundraiserHero wrote: This is Simmi trying to finger feed... Rett Rett 2008-05-19T14:34:35+05:00 456 http://rett.tv/video/Brooklyn-riding-in-her-stande Brooklyn "riding" in her stander at preschool http://www.youtube.com/v/HEjF0eY3eqM http://s3.amazonaws.com/magnifythumbs/KDZ039S6XJMFMHGX.jpg <a href="http://rett.tv/video/Brooklyn-riding-in-her-stande"><img src="http://s3.amazonaws.com/magnifythumbs/KDZ039S6XJMFMHGX.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn started preschool this week. She LOVES it. In this video she is being pushed around in her stander by her PT in the gross motor room at school while the other kids are riding their tricycles. She loved it. Rett Rett 2008-05-19T14:34:54+05:00 113 http://rett.tv/video/Jess-in-her-Standing-Frame Jess in her Standing Frame http://www.youtube.com/v/ZwkrAbxBQ9Q http://s3.amazonaws.com/magnifythumbs/640DNY27L1NFG6LF.jpg <a href="http://rett.tv/video/Jess-in-her-Standing-Frame"><img src="http://s3.amazonaws.com/magnifythumbs/640DNY27L1NFG6LF.jpg" align="right" border="0"></a> nevjay100 wrote: Standing - 10th May 2008 Rett Rett 2008-05-19T14:35:22+05:00 89 http://rett.tv/video/Working-on-shifting-weight-du Working on shifting weight during PT session http://www.youtube.com/v/wv_IZ7tUB18 http://s3.amazonaws.com/magnifythumbs/BVD6XHM382YPKPRS.jpg <a href="http://rett.tv/video/Working-on-shifting-weight-du"><img src="http://s3.amazonaws.com/magnifythumbs/BVD6XHM382YPKPRS.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn had her final PT session yesterday. She turns three on Tuesday and has to leave the Early Intervention Program which stinks because she has been working with GREAT therapist. In this video her PT is working with her on shifting her weight from one leg to the next. Rett Rett 2008-05-19T14:36:21+05:00 75 http://rett.tv/video/Cumpleaos-3-En-casita Cumpleaños #3 En casita http://www.youtube.com/v/vagYh1VI3lo http://s3.amazonaws.com/magnifythumbs/C2FMLH6BJHTW6ZNK.jpg <a href="http://rett.tv/video/Cumpleaos-3-En-casita"><img src="http://s3.amazonaws.com/magnifythumbs/C2FMLH6BJHTW6ZNK.jpg" align="right" border="0"></a> ch4rli3 wrote: Junto con los primos en la piñata... de, sindrome, fernanda, rett de sindrome fernanda rett 2008-05-19T14:36:27+05:00 32 http://rett.tv/video/maladie-de-rett maladie de rett http://www.youtube.com/v/1m7oi6UXz3U http://s3.amazonaws.com/magnifythumbs/K73RCLQ5XX65NPC9.jpg <a href="http://rett.tv/video/maladie-de-rett"><img src="http://s3.amazonaws.com/magnifythumbs/K73RCLQ5XX65NPC9.jpg" align="right" border="0"></a> fofie999 wrote: un vide grenier pour aider a la lutte contre le syndrome de rett , une maladie infantile grave 2008-05-19T14:36:36+05:00 30 http://rett.tv/video/Paula-Pacheco-Gravitational-S Paula Pacheco - Gravitational Security http://magvid.cache.magnify.net/S31M6H29LD3YM6CD/video.flv http://s3.amazonaws.com/magnifythumbs/S31M6H29LD3YM6CD.jpg <a href="http://rett.tv/video/Paula-Pacheco-Gravitational-S"><img src="http://s3.amazonaws.com/magnifythumbs/S31M6H29LD3YM6CD.jpg" align="right" border="0"></a> Securidad gravitational. Paual en clase con su terapeuta de psicomotricidad. Paula in class at a physical therapy session. 2008-05-19T13:18:23+05:00 50 http://rett.tv/video/Sndrome-de-Rett Síndrome de Rett http://www.youtube.com/v/ZRqvaRwy9TE http://s3.amazonaws.com/magnifythumbs/RW53H4LMMY648LFB.jpg <a href="http://rett.tv/video/Sndrome-de-Rett"><img src="http://s3.amazonaws.com/magnifythumbs/RW53H4LMMY648LFB.jpg" align="right" border="0"></a> petrelrett wrote: La Asociación Valenciana del Síndrome de Rett, organiza una charla de la Dra. Clavera y al mismo tiempo se realiza un día de convivencia. 2008-05-06T12:00:00+05:00 595 http://rett.tv/video/Entrevista-sobre-el-sndrome-d Entrevista sobre el síndrome de rett http://www.youtube.com/v/99a0srkWHDM http://s3.amazonaws.com/magnifythumbs/K7G390B959KCNCRN.jpg <a href="http://rett.tv/video/Entrevista-sobre-el-sndrome-d"><img src="http://s3.amazonaws.com/magnifythumbs/K7G390B959KCNCRN.jpg" align="right" border="0"></a> villardelrey wrote: video medicina medicina 2008-05-06T12:01:11+05:00 470 http://rett.tv/video/www-biorett-com www.biorett.com http://www.youtube.com/v/ieQDOOdrDUY http://s3.amazonaws.com/magnifythumbs/J4GLZT3H0J5PBP6P.jpg <a href="http://rett.tv/video/www-biorett-com"><img src="http://s3.amazonaws.com/magnifythumbs/J4GLZT3H0J5PBP6P.jpg" align="right" border="0"></a> petrelrett wrote: Marta una niña con Síndrome de Rett,y el estudio de biorett 2008-05-06T12:03:34+05:00 177 http://rett.tv/video/Luna-y-Malena Luna y Malena http://www.youtube.com/v/lQLfE2JuVIs http://s3.amazonaws.com/magnifythumbs/BWXPRB0YZ4NMBBLV.jpg <a href="http://rett.tv/video/Luna-y-Malena"><img src="http://s3.amazonaws.com/magnifythumbs/BWXPRB0YZ4NMBBLV.jpg" align="right" border="0"></a> andresantivero wrote: Luna, de 9 años de edad con sindrome de rett y Malena, su hermana de 8 meses de edad malena, rett, luna, sindrome malena rett luna sindrome 2008-05-06T12:04:22+05:00 188 http://rett.tv/video/constanza-en-kinesiologia constanza en kinesiologia http://www.youtube.com/v/Tchs2F0DuQk http://s3.amazonaws.com/magnifythumbs/HFQVSGKQR7P7M7V8.jpg <a href="http://rett.tv/video/constanza-en-kinesiologia"><img src="http://s3.amazonaws.com/magnifythumbs/HFQVSGKQR7P7M7V8.jpg" align="right" border="0"></a> cristianberrondo wrote: constanza en kinesiologia de, rett, constanza, sindrome de rett constanza sindrome 2008-05-06T12:04:43+05:00 180 http://rett.tv/video/Dentro-il-silenzio Dentro il silenzio http://www.youtube.com/v/uGhX7hSy73o http://s3.amazonaws.com/magnifythumbs/KPLTZQCMY97J8YS0.jpg <a href="http://rett.tv/video/Dentro-il-silenzio"><img src="http://s3.amazonaws.com/magnifythumbs/KPLTZQCMY97J8YS0.jpg" align="right" border="0"></a> Telethonitalia wrote: Storia di Anna Negri, affetta dalla Sindrome di Rett. Per la regia di Gianluca e Massimiliano De Serio 2008-05-06T12:10:38+05:00 290 http://rett.tv/video/Carolina-2 Carolina http://www.youtube.com/v/X1SmkAz3Iik http://s3.amazonaws.com/magnifythumbs/J9T8DJJV90K4Y0G6.jpg <a href="http://rett.tv/video/Carolina-2"><img src="http://s3.amazonaws.com/magnifythumbs/J9T8DJJV90K4Y0G6.jpg" align="right" border="0"></a> christiancarmosino wrote: corto Telethon 2007 2008-05-06T12:10:41+05:00 355 http://rett.tv/video/Danielles-Rett-Syndrome-Journ Danielle's Rett Syndrome Journey http://video.google.com/googleplayer.swf?docId=4515451570006695176 http://s3.amazonaws.com/magnifythumbs/TRNHLPPK78Y5K3Z5.jpg <a href="http://rett.tv/video/Danielles-Rett-Syndrome-Journ"><img src="http://s3.amazonaws.com/magnifythumbs/TRNHLPPK78Y5K3Z5.jpg" align="right" border="0"></a> Danielle "Deedee" Goodwin was diagnosed with Autism at 24 months (Sept. 2000). She had no speech, had no eye contact, ground her teeth and had stereotypic hand movements. In November of 2005, Danielle was admitted to the hospital with sudden neurological losses. At that time she was diagnosed with Rett Syndrome. She had been struggling for 4 years with failure to thrive. It became a severe problem by April 5, 2007 when she had a G-Tube placed. From that date on she had repeated g-tube infections and sepsis 5 times. During this time we started seeing cardiac issues, temperature regulation problem, and episodes of extremely low blood pressure. August 15, 2007 she had a pacemaker placed. This controlled the Bradycardia (heart rate below 30 bpm). The blood pressure continued to be a problem. Then she started have sever apnea episodes (waking and sleeping). It was at this time they realized that her autonomic system was failing. This progressed to not being able to hold any food or g-tube feedings down. Then i... 2008-05-06T11:57:00+05:00 http://rett.tv/video/The-Strength-of-Families-Solv-2 The Strength of Families: Solving Rett Syndrome http://video.google.com/googleplayer.swf?docId=-6977220590903547573 http://s3.amazonaws.com/magnifythumbs/S9GNYBRQTKW0TK8Y.jpg <a href="http://rett.tv/video/The-Strength-of-Families-Solv-2"><img src="http://s3.amazonaws.com/magnifythumbs/S9GNYBRQTKW0TK8Y.jpg" align="right" border="0"></a> Copyright 2003 Howard Hughes Medical Institute wrote: Girls with Rett syndrome develop normally for about 18 months and then begin to regress. Eventually, they have difficulty walking, speaking, and using their hands. With the help of affected girls and their families, Dr. Zoghbi and her collaborators found the gene responsible for this neurological disorder. The gene, called MECP2, encodes a protein essential to the normal functioning of nerve cells in the brain. Dr. Zoghbi discusses how identification of this gene should lead to better methods for diagnosing and treating Rett syndrome. - ResearchChannel is a nonprofit media and technology organization that connects a global audience with the research and academic institutions whose developments, insights and discoveries affect our lives and futures. 2008-05-06T11:56:56+05:00 http://rett.tv/video/Simmi-on-5408 Simmi on 5/4/08 http://www.youtube.com/v/HjY6hLa2lRg http://s3.amazonaws.com/magnifythumbs/MPLCNQTPGGW215M7.jpg <a href="http://rett.tv/video/Simmi-on-5408"><img src="http://s3.amazonaws.com/magnifythumbs/MPLCNQTPGGW215M7.jpg" align="right" border="0"></a> FundraiserHero wrote: After going on a plane and having some seizures, it seems that Simmi started a rambling speech. Rett Rett 2008-05-04T20:05:39+05:00 568 http://rett.tv/video/Therapy-Hammock Therapy Hammock http://www.youtube.com/v/8rXkN4cmH-g http://s3.amazonaws.com/magnifythumbs/BP94MPP12R1RK9JC.jpg <a href="http://rett.tv/video/Therapy-Hammock"><img src="http://s3.amazonaws.com/magnifythumbs/BP94MPP12R1RK9JC.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn got a new therapy hammock today just like the one her PT uses. She loves it Rett Rett 2008-05-04T20:07:15+05:00 34 http://rett.tv/video/Rett-Syndrome-Class-Presentat Rett Syndrome Class Presentation 1 of 3 http://www.youtube.com/v/l19GblJiOP0 http://s3.amazonaws.com/magnifythumbs/RPN3BB41YXK8HY2F.jpg <a href="http://rett.tv/video/Rett-Syndrome-Class-Presentat"><img src="http://s3.amazonaws.com/magnifythumbs/RPN3BB41YXK8HY2F.jpg" align="right" border="0"></a> emilyholeman wrote: Rett Syndrome presentation, 509 presentation 509 2008-05-04T20:04:47+05:00 118 http://rett.tv/video/Rett-Syndrome-Class-Presentat-2 Rett Syndrome Class Presentation 2 of 3 http://www.youtube.com/v/-ZOhPErdH4w http://s3.amazonaws.com/magnifythumbs/B0TZ8YD8M8RP4K6Y.jpg <a href="http://rett.tv/video/Rett-Syndrome-Class-Presentat-2"><img src="http://s3.amazonaws.com/magnifythumbs/B0TZ8YD8M8RP4K6Y.jpg" align="right" border="0"></a> emilyholeman wrote: 509 presentation IEC, 509 IEC 509 2008-05-04T20:02:44+05:00 135 http://rett.tv/video/Rett-Syndrome-Class-Presentat-3 Rett Syndrome Class Presentation 3 of 3 http://www.youtube.com/v/gZ4y1fP-Oy4 http://s3.amazonaws.com/magnifythumbs/RNML5H12VNKHFDVV.jpg <a href="http://rett.tv/video/Rett-Syndrome-Class-Presentat-3"><img src="http://s3.amazonaws.com/magnifythumbs/RNML5H12VNKHFDVV.jpg" align="right" border="0"></a> emilyholeman wrote: 509 presentation IEC, 509 IEC 509 2008-05-04T20:02:51+05:00 133 http://rett.tv/video/IEC-509-Rett-Syndrome IEC 509 -- Rett Syndrome http://www.youtube.com/v/_xL-LqnwYPo http://s3.amazonaws.com/magnifythumbs/R52FVB93CXJW733T.jpg <a href="http://rett.tv/video/IEC-509-Rett-Syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/R52FVB93CXJW733T.jpg" align="right" border="0"></a> MegLMax wrote: Disability Presentation 2008-04-27T18:19:51+05:00 236 http://rett.tv/video/KJM-leg2 KJM leg2 http://www.youtube.com/v/8fHR7xmgYwc http://s3.amazonaws.com/magnifythumbs/7JHXP3P4SWBM9QHH.jpg <a href="http://rett.tv/video/KJM-leg2"><img src="http://s3.amazonaws.com/magnifythumbs/7JHXP3P4SWBM9QHH.jpg" align="right" border="0"></a> karenbebymccready wrote: Leg spasm. Girl with Rett Syndrome. leg, Rett, spasm leg Rett spasm 2008-04-27T18:20:52+05:00 108 http://rett.tv/video/My-sister-Julianna My sister Julianna. http://www.youtube.com/v/FRJTKijem3s http://s3.amazonaws.com/magnifythumbs/H2XMKLR5FPKJCC95.jpg <a href="http://rett.tv/video/My-sister-Julianna"><img src="http://s3.amazonaws.com/magnifythumbs/H2XMKLR5FPKJCC95.jpg" align="right" border="0"></a> TakeOrBreakTheHeart wrote: My sister Julianna has Rett Syndrome. I just wanted to show ppls how she is. Rett Rett 2008-04-27T18:21:20+05:00 29 http://rett.tv/video/April-Angel-Benson-meet-the-W April & Angel Benson meet the Wiggles http://www.youtube.com/v/fCRV674NtWw http://s3.amazonaws.com/magnifythumbs/SGN2CSZMXG06YVKY.jpg <a href="http://rett.tv/video/April-Angel-Benson-meet-the-W"><img src="http://s3.amazonaws.com/magnifythumbs/SGN2CSZMXG06YVKY.jpg" align="right" border="0"></a> DoogleWho wrote: my 2 neices who suffer from rett syndrome were lucky enough to meet the wiggles personaly in Port Macquaire in march 2008, i was lucky enough to be invited along as well,the guys are so nice and im honered to have had the chance to meet them as well. doogle, wiggles, macquaire, port doogle wiggles macquaire port 2008-04-27T18:21:39+05:00 455 http://rett.tv/video/Simone-on-41108 Simone on 4/11/08 http://www.youtube.com/v/qBB_KmPFXo4 http://s3.amazonaws.com/magnifythumbs/QMF96Z065MF6N69J.jpg <a href="http://rett.tv/video/Simone-on-41108"><img src="http://s3.amazonaws.com/magnifythumbs/QMF96Z065MF6N69J.jpg" align="right" border="0"></a> FundraiserHero wrote: We enjoy these moments of her being aware and interactive with the family. When we get them, we try to film them because they don't happen all the time. Rett Rett 2008-04-27T18:22:05+05:00 168 http://rett.tv/video/Trampoline-Time Trampoline Time http://www.youtube.com/v/y6bOQI85gAE http://s3.amazonaws.com/magnifythumbs/5HFS8R6ZZG3QWCRP.jpg <a href="http://rett.tv/video/Trampoline-Time"><img src="http://s3.amazonaws.com/magnifythumbs/5HFS8R6ZZG3QWCRP.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn had a lot of fun on the trampoline once she got used to it. Rett Rett 2008-04-27T18:23:03+05:00 17 http://rett.tv/video/Simone-on-42108 Simone on 4/21/08 http://www.youtube.com/v/UvXN_FwQgnE http://s3.amazonaws.com/magnifythumbs/FGN23T9JNSBVBXNZ.jpg <a href="http://rett.tv/video/Simone-on-42108"><img src="http://s3.amazonaws.com/magnifythumbs/FGN23T9JNSBVBXNZ.jpg" align="right" border="0"></a> FundraiserHero wrote: Simone has never gained back the ability to pick up pieces of food and has a very hard time putting them into her mouth. Rett Rett 2008-04-27T18:23:26+05:00 539 http://rett.tv/video/Simone-on-41208 Simone on 4/12/08 http://www.youtube.com/v/fZp1vo4RfXc http://s3.amazonaws.com/magnifythumbs/W1VGXDNQW6HTN94W.jpg <a href="http://rett.tv/video/Simone-on-41208"><img src="http://s3.amazonaws.com/magnifythumbs/W1VGXDNQW6HTN94W.jpg" align="right" border="0"></a> FundraiserHero wrote: Simmi at 10 months old Rett Rett 2008-04-27T18:23:31+05:00 546 http://rett.tv/video/Grace-the-Movie-2 Grace the Movie http://www.youtube.com/v/yVlWIqdn1Is http://s3.amazonaws.com/magnifythumbs/PPZFSHRVHJB09W0T.jpg <a href="http://rett.tv/video/Grace-the-Movie-2"><img src="http://s3.amazonaws.com/magnifythumbs/PPZFSHRVHJB09W0T.jpg" align="right" border="0"></a> mumphydon wrote: A movie about Grace, a 3 year old girl with Rett Syndrome and the upcoming Race for Grace. see www.theRaceForGrace.com www.RettSyndrome.org For more information grace, race, rett grace race rett 2008-04-18T06:36:05+05:00 332 http://rett.tv/video/Audreys-Song Audrey's Song http://www.youtube.com/v/vgbdHCLrXFU http://s3.amazonaws.com/magnifythumbs/MKTZBR5JVBWJ137Q.jpg <a href="http://rett.tv/video/Audreys-Song"><img src="http://s3.amazonaws.com/magnifythumbs/MKTZBR5JVBWJ137Q.jpg" align="right" border="0"></a> trocaria wrote: This is a tribute to my sister, Audrey Natalia. As you will notice, things started out fine for Audrey until at the age of 14 months she received the 3rd dose of the Salk vacciantion. It destroyed her body beyond repair. (It can also be argued that Audrey had what is now known as RETT Syndrome. It can futher be argued that the vaccination triggered the gene defect that causes RETT.) But it did not destroy her spirit nor did it destroy love, the love we had for her and that she had for us. Love never dies, love goes on. So too will my sister go on and so too will we all. Due to time constrictions with the music, I was not able to produce all of the words to "Audrey's Song" written by her Mother, P.I. Volkens. If anyone would like, I will be happy to print it here, happier still to have it put to use for any family who needs it. It's been a long weekend and I am done! OH! One more thing: Music. First song is called "Once upon a Time" released on the "September Songs" CD sung by ol... 10 2008-04-18T06:36:52+05:00 349 http://rett.tv/video/Simone-41308 Simone 4/13/08 http://www.youtube.com/v/lT84t32Ye-Y http://s3.amazonaws.com/magnifythumbs/XTRPW55F610RMYW7.jpg <a href="http://rett.tv/video/Simone-41308"><img src="http://s3.amazonaws.com/magnifythumbs/XTRPW55F610RMYW7.jpg" align="right" border="0"></a> FundraiserHero wrote: Today Simmi started putting her hands together Rett Rett 2008-04-18T06:38:20+05:00 348 http://rett.tv/video/Balancing Balancing http://www.youtube.com/v/GR_-EU5S9YY http://s3.amazonaws.com/magnifythumbs/XZBLTP552PY3Z4VW.jpg <a href="http://rett.tv/video/Balancing"><img src="http://s3.amazonaws.com/magnifythumbs/XZBLTP552PY3Z4VW.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn's PT has been working on Brooklyn's balance. Here is some video of that Rett Rett 2008-04-18T06:38:13+05:00 64 http://rett.tv/video/Jess-Easter-Rabbit Jess & Easter Rabbit http://www.youtube.com/v/B92g0dDaX-c http://s3.amazonaws.com/magnifythumbs/KGJDD4GS0Y2BB7M8.jpg <a href="http://rett.tv/video/Jess-Easter-Rabbit"><img src="http://s3.amazonaws.com/magnifythumbs/KGJDD4GS0Y2BB7M8.jpg" align="right" border="0"></a> nevjay100 wrote: Jess was given this singing rabbit for Easter and she LOVES him. It always brings a smile to he face. 8.87 Rett Rett 2008-04-18T06:37:53+05:00 110 http://rett.tv/video/Simone-40508 Simone 4/05/08 http://www.youtube.com/v/rSYywQ5oM1M http://s3.amazonaws.com/magnifythumbs/RL7PLQ5F18NT8J7Q.jpg <a href="http://rett.tv/video/Simone-40508"><img src="http://s3.amazonaws.com/magnifythumbs/RL7PLQ5F18NT8J7Q.jpg" align="right" border="0"></a> FundraiserHero wrote: Simmi getting stuck... Rett Rett 2008-04-18T06:38:25+05:00 548 http://rett.tv/video/More-walking More walking http://www.youtube.com/v/zHKfqz1ZDOY http://s3.amazonaws.com/magnifythumbs/H78DS9M6H89H3SVQ.jpg <a href="http://rett.tv/video/More-walking"><img src="http://s3.amazonaws.com/magnifythumbs/H78DS9M6H89H3SVQ.jpg" align="right" border="0"></a> ButlerCrew wrote: I know everyone likes to see updates on Brooklyn's walking. Here she is with Nan during PT tpday Rett Rett 2008-04-18T06:38:31+05:00 36 http://rett.tv/video/Cumpleaos-15-3 Cumpleaños # (15) 3! http://www.youtube.com/v/9pv8Oh1G4Us http://s3.amazonaws.com/magnifythumbs/70HDRSLMDKGJ2T1R.jpg <a href="http://rett.tv/video/Cumpleaos-15-3"><img src="http://s3.amazonaws.com/magnifythumbs/70HDRSLMDKGJ2T1R.jpg" align="right" border="0"></a> ch4rli3 wrote: Fernanda y su pastel de 15 años fernanda, rett fernanda rett 2008-04-18T06:39:00+05:00 81 http://rett.tv/video/Rett-Syndrome-2 Rett Syndrome http://www.youtube.com/v/7S2k2QTMqm4 http://s3.amazonaws.com/magnifythumbs/KHP8Z65JHBFGFDQL.jpg <a href="http://rett.tv/video/Rett-Syndrome-2"><img src="http://s3.amazonaws.com/magnifythumbs/KHP8Z65JHBFGFDQL.jpg" align="right" border="0"></a> veiledexpressions wrote: Rett Syndrome Awareness Rett Rett 2008-04-18T06:34:18+05:00 191 http://rett.tv/video/Alexis-with-Rett-Syndrome Alexis with Rett Syndrome http://www.youtube.com/v/skbPDNeuAr8 http://s3.amazonaws.com/magnifythumbs/XH50QP5VDSL2V1ZG.jpg <a href="http://rett.tv/video/Alexis-with-Rett-Syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/XH50QP5VDSL2V1ZG.jpg" align="right" border="0"></a> donger22 wrote: Alexis rett rett 2008-04-18T06:34:47+05:00 295 http://rett.tv/video/Danielles-Rett-Syndrome-Journ-2 Danielle's Rett Syndrome Journey http://www.youtube.com/v/6bIQ3OzpEuA http://s3.amazonaws.com/magnifythumbs/TRG96B1BNWK337KZ.jpg <a href="http://rett.tv/video/Danielles-Rett-Syndrome-Journ-2"><img src="http://s3.amazonaws.com/magnifythumbs/TRG96B1BNWK337KZ.jpg" align="right" border="0"></a> MyRettAngel wrote: Danielle "Deedee" was diagnosed with Autism at 24 months (Sept. 2000). She had no speech, had no eye contact, ground her teeth and had stereotypic hand movements. In November of 2005, Danielle was admitted to the hospital with sudden neurological losses. At that time she was diagnosed with Rett Syndrome. She had been struggling for 4 years with failure to thrive. It became a severe problem by April 5, 2007 when she had a G-Tube placed. From that date on she had repeated g-tube infections and sepsis 5 times. During this time we started seeing cardiac issues, temperature regulation problem, and episodes of extremely low blood pressure. August 15, 2007 she had a pacemaker placed. This controlled the Bradycardia (heart rate below 30 bpm). The blood pressure continued to be a problem. Then she started have sever apnea episodes (waking and sleeping). It was at this time they realized that her autonomic system was failing. This progressed to not being able to hold any food or g-tube feedings do... 2008-04-18T06:34:41+05:00 317 http://rett.tv/video/Circle-of-Angels-Research-Fun Circle of Angels Research Fund - Rett Syndrome / Part 1. http://www.youtube.com/v/OycFefZDfZk http://s3.amazonaws.com/magnifythumbs/M4Z7R1ZWG09PNZDC.jpg <a href="http://rett.tv/video/Circle-of-Angels-Research-Fun"><img src="http://s3.amazonaws.com/magnifythumbs/M4Z7R1ZWG09PNZDC.jpg" align="right" border="0"></a> SzChristie wrote: Rett syndrome (symbolized RTT) is caused by sporadic mutations in the gene MECP2 located on the X chromosome. It almost exclusively affects girls -- male fetuses with the disorder rarely survive to term. Development is typically normal until 6-18 months, when language and motor milestones regress, purposeful hand use is lost and acquired deceleration in the rate of head growth (resulting in microcephaly in some) is seen. Hand stereotypies are typical and breathing irregularities such as hyperventilation, breathholding, or sighing are seen in many. Early on, autistic-like behavior may be seen. Rett syndrome is usually caused (95% or more) by a de novo mutation in the child (so it is inherited from a genotypically normal mother, i.e. without a MECP2 mutation). It can also be inherited from phenotypically normal mothers who have a germline[3] mutation in the gene encoding methyl-CpG-binding protein-2, MECP2. MECP2 is found near the end of the long arm of the X chromosome at Xq28. An atypical... Autism, Diseases, Rett Autism Diseases Rett 2008-04-18T06:34:06+05:00 364 http://rett.tv/video/Circle-of-Angels-Research-Fun-2 Circle of Angels Research Fund - Rett Syndrome / Part 2. http://www.youtube.com/v/-Kh6etd-_VA http://s3.amazonaws.com/magnifythumbs/TXYDPBH8NX0Q5YK7.jpg <a href="http://rett.tv/video/Circle-of-Angels-Research-Fun-2"><img src="http://s3.amazonaws.com/magnifythumbs/TXYDPBH8NX0Q5YK7.jpg" align="right" border="0"></a> SzChristie wrote: Most individuals with Rett syndrome are female. One explanation given for this was that the genetic defect that caused Rett syndrome in females caused embryonic lethality in males (that is, males with disease-causing MECP2 mutations died before they were born). While a plausible hypothesis, more recent research has contradicted this explanation. The incidence of Rett in males is unknown.[4] The severity of Rett syndrome in females can vary depending on the type and position of the MECP2 mutation and the pattern of X-chromosome inactivation. It is generally assumed that 50% of a female's cells use the maternal X chromosome while the other 50% uses the paternal X chromosome (see X-inactivation). However, if most cells in the brain activate the X chromosome with the functional MECP2 allele, the individual will have very mild Rett syndrome; likewise, if most neurons activate the X chromosome with the mutated MECP2 allele, the individual will have very severe Rett syndrome just as males wit... Autism, Diseases, Rett Autism Diseases Rett 2008-04-18T06:34:22+05:00 317 http://rett.tv/video/Live-With-Rett-Syndrome Live With Rett Syndrome http://www.youtube.com/v/rQvTgV7f2JM http://s3.amazonaws.com/magnifythumbs/C8F6X7QY62B6SKBH.jpg <a href="http://rett.tv/video/Live-With-Rett-Syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/C8F6X7QY62B6SKBH.jpg" align="right" border="0"></a> SzChristie wrote: Rett syndrome is a neurodevelopmental disorder that is classified as a pervasive developmental disorder by the DSM-IV. Many argue that this is a misclassification just as it would be to include such disorders as fragile X syndrome, tuberous sclerosis, or Down syndrome where one can see autistic features. The symptoms of this disorder are most easily confused with those of Angelman syndrome and autism. The clinical features include a deceleration of the rate of head growth (including microcephaly in some) and small hands and feet. Stereotypic, repetitive hand movements such as mouthing or wringing are also noted. Symptoms of the disorder include cognitive impairment and problems with socialization, the latter during the regression period. Socialization typically improves by the time they enter school. Girls with Rett syndrome are very prone to gastrointestinal disorders and up to 80% have seizures. They typically have no verbal skills, and about 50% of females are not ambulatory. Scolios... Autism, Disease, Rett Autism Disease Rett 2008-04-18T06:33:23+05:00 203 http://rett.tv/video/Kayla Kayla http://www.youtube.com/v/nbHyOTW8-wA http://s3.amazonaws.com/magnifythumbs/S5QBVBHRQJR4BDBV.jpg <a href="http://rett.tv/video/Kayla"><img src="http://s3.amazonaws.com/magnifythumbs/S5QBVBHRQJR4BDBV.jpg" align="right" border="0"></a> catluvrinky wrote: Kayla Rett, Kayla Rett Kayla 2008-02-28T10:37:22+05:00 342 http://rett.tv/video/These-hiccups-are-hilarious These hiccups are hilarious! http://www.youtube.com/v/K71MtHenIYU http://s3.amazonaws.com/magnifythumbs/J63G658ZQ4SMDZGS.jpg <a href="http://rett.tv/video/These-hiccups-are-hilarious"><img src="http://s3.amazonaws.com/magnifythumbs/J63G658ZQ4SMDZGS.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn was cracking herself up with her hiccups this afternoon. Although she also thought her cousin Jackson was pretty funny with his balloon too! Rett Rett 2008-02-28T10:37:28+05:00 45 http://rett.tv/video/My-stroller-is-still-fun-insi My stroller is still fun inside! http://www.youtube.com/v/kk7Xu_Ctcmc http://s3.amazonaws.com/magnifythumbs/S08J5XYMT0D6337B.jpg <a href="http://rett.tv/video/My-stroller-is-still-fun-insi"><img src="http://s3.amazonaws.com/magnifythumbs/S08J5XYMT0D6337B.jpg" align="right" border="0"></a> ButlerCrew wrote: It has been too cold to go for a walk outside with Brooklyn's new Maclearn Stroller, so we let her chase the dog around inside! Rett Rett 2008-02-28T10:37:56+05:00 58 http://rett.tv/video/Asking-Jackson-to-knock-over Asking Jackson to knock over the blocks http://www.youtube.com/v/wPYPofrm2V4 http://s3.amazonaws.com/magnifythumbs/K62RC3DTW3Y5KQB9.jpg <a href="http://rett.tv/video/Asking-Jackson-to-knock-over"><img src="http://s3.amazonaws.com/magnifythumbs/K62RC3DTW3Y5KQB9.jpg" align="right" border="0"></a> ButlerCrew wrote: We are tryin to use the big mac switch to allow Brooklyn to interact with Jackson to play. Rett Rett 2008-02-28T10:38:54+05:00 36 http://rett.tv/video/con-mam con mamá http://www.youtube.com/v/0RHvaPJcuy0 http://s3.amazonaws.com/magnifythumbs/60V437W32FRWLM2H.jpg <a href="http://rett.tv/video/con-mam"><img src="http://s3.amazonaws.com/magnifythumbs/60V437W32FRWLM2H.jpg" align="right" border="0"></a> ch4rli3 wrote: antes de dormir, unas sonrisitas a la cámara. 2008-02-28T10:39:52+05:00 37 http://rett.tv/video/Blue-Girl Blue Girl http://www.youtube.com/v/Zdw6xwwaXUM http://s3.amazonaws.com/magnifythumbs/6G01J19G6898R02X.jpg <a href="http://rett.tv/video/Blue-Girl"><img src="http://s3.amazonaws.com/magnifythumbs/6G01J19G6898R02X.jpg" align="right" border="0"></a> ch4rli3 wrote: Fernanda in Blue 2008-02-28T10:39:55+05:00 101 http://rett.tv/video/Rett-Syndrome-Awareness Rett Syndrome Awareness http://video.google.com/googleplayer.swf?docId=1822890166889186317 http://s3.amazonaws.com/magnifythumbs/K6P45LHYPKKQS0BQ.jpg <a href="http://rett.tv/video/Rett-Syndrome-Awareness"><img src="http://s3.amazonaws.com/magnifythumbs/K6P45LHYPKKQS0BQ.jpg" align="right" border="0"></a> Rett Syndrome information,and pictures of Ciara ann. 2007-10-18. View it on Google Video. 2008-02-28T10:41:40+05:00 http://rett.tv/video/Rett-Syndrome-3 Rett Syndrome http://www.youtube.com/v/5NdwBUvF5-w http://s3.amazonaws.com/magnifythumbs/W9ZBNHS0CR5VDGBJ.jpg <a href="http://rett.tv/video/Rett-Syndrome-3"><img src="http://s3.amazonaws.com/magnifythumbs/W9ZBNHS0CR5VDGBJ.jpg" align="right" border="0"></a> wtwalt2 wrote: Brief description of Rett Syndrome EDS/IEC, Description, 522, Rett EDS/IEC Description 522 Rett 2008-02-28T10:34:18+05:00 255 http://rett.tv/video/willemijn-een-jaar-in-beeld willemijn een jaar in beeld http://www.youtube.com/v/CJiw5rUwtuQ http://s3.amazonaws.com/magnifythumbs/X1W6YG9YZVFYJN9J.jpg <a href="http://rett.tv/video/willemijn-een-jaar-in-beeld"><img src="http://s3.amazonaws.com/magnifythumbs/X1W6YG9YZVFYJN9J.jpg" align="right" border="0"></a> ericmirjam wrote: willemijn een jaar in beeld. foto's en video's van de 3-jarige willemijn, meisjes met syndroom van rett 2008-02-28T10:36:47+05:00 208 http://rett.tv/video/Ella-12-16-months Ella 12-16 months http://www.youtube.com/v/-NX1WJBjw6E http://s3.amazonaws.com/magnifythumbs/KNLH6H865MFSM0Y3.jpg <a href="http://rett.tv/video/Ella-12-16-months"><img src="http://s3.amazonaws.com/magnifythumbs/KNLH6H865MFSM0Y3.jpg" align="right" border="0"></a> bfarnu wrote: This is a video of our precious daughter, Ella, when she was 15-18 months old. One year later, she was diagnosed with Rett Syndrome, a rare, incurable neurological disorder that affects 1 in every 15,000 girls. If you would like to learn more about Rett Syndrome and help us find a cure, please visit www.rettsyndrome.org or you can visit Ella's website at www.believe-in-me.org. Rett Rett 2008-02-28T10:35:22+05:00 660 http://rett.tv/video/rett-syndrome-4 rett syndrome http://www.youtube.com/v/WtT2vgg_r5M http://s3.amazonaws.com/magnifythumbs/7BDTKNN9S59MKKYY.jpg <a href="http://rett.tv/video/rett-syndrome-4"><img src="http://s3.amazonaws.com/magnifythumbs/7BDTKNN9S59MKKYY.jpg" align="right" border="0"></a> solidrecording2012 wrote: rett syndrome child ari rett, rettsyndrome, rs, child rett rettsyndrome rs child 2008-02-28T10:34:52+05:00 233 http://rett.tv/video/Grace-the-Movie Grace the Movie http://www.youtube.com/v/sYs53JV0wOw http://s3.amazonaws.com/magnifythumbs/PFTM5J9KCP9TTTGY.jpg <a href="http://rett.tv/video/Grace-the-Movie"><img src="http://s3.amazonaws.com/magnifythumbs/PFTM5J9KCP9TTTGY.jpg" align="right" border="0"></a> RaceForGrace wrote: A movie about Grace, a 3 year old girl with Rett Syndrome and the upcoming Race for Grace. see www.theRaceForGrace.com www.RettSyndrome.org For more information 2008-02-28T10:35:02+05:00 332 http://rett.tv/video/Sierra-Rett-Syndrome Sierra & Rett Syndrome http://www.youtube.com/v/IoagyBMZThU http://s3.amazonaws.com/magnifythumbs/9BP078R63B2ZG3Z0.jpg <a href="http://rett.tv/video/Sierra-Rett-Syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/9BP078R63B2ZG3Z0.jpg" align="right" border="0"></a> laineyful wrote: Sierra is now 4 yrs old and has Rett Syndrome. Thats her twin brother in the picture. They started out developmentally at the same level but the gap started growing between them. Rett Syndrome is a neurological disorder that causes severe regression and loss of gross and fine motor skills, speech, and causes a host of medical problems like seizures, scoliosis, reflux, and GI problems. It is often misdiagnosed as CP or autism. There is no cure. rett, palsy, autism, cerebral rett palsy autism cerebral 2008-02-28T10:32:34+05:00 153 http://rett.tv/video/Rett-Syndrome-When-Vanessa-Sm Rett Syndrome "When Vanessa Smiles" http://www.youtube.com/v/fhLj0H6hkLg http://s3.amazonaws.com/magnifythumbs/B8M5WX87WPQDY9W8.jpg <a href="http://rett.tv/video/Rett-Syndrome-When-Vanessa-Sm"><img src="http://s3.amazonaws.com/magnifythumbs/B8M5WX87WPQDY9W8.jpg" align="right" border="0"></a> Jaynedoe1956 wrote: Here is my oldest grandchild, born with Rett Syndrome. It is a neurological disorder that robs these little girls of their motor skills. I chose Celine Dion's song "Fly" because she dedicated it to her niece, Karine, who lost her fight against Cystic Fibrosis in 1993, the year Vanessa was born. Vanessa is my "Silent Angel",the love of my life, who is not doing well, and losing her fight. 2008-02-28T10:31:52+05:00 200 http://rett.tv/video/Brooklyn-watching-a-movie-in Brooklyn watching a movie in her stander http://www.youtube.com/v/f9lF9mwmQgg http://s3.amazonaws.com/magnifythumbs/MY40YGW69NWG6CQT.jpg <a href="http://rett.tv/video/Brooklyn-watching-a-movie-in"><img src="http://s3.amazonaws.com/magnifythumbs/MY40YGW69NWG6CQT.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn is in in her Rifton Stander (which we have on loan through her early intervention program) watching the Wiggles. We want to try to get her on her feet to build her strength. Rett Rett 2008-01-17T14:09:10+05:00 41 http://rett.tv/video/Rett-Syndrome-Australia-Resea Rett Syndrome Australia Research Fund Commercial http://www.youtube.com/v/6eh8aSUi0Qg http://s3.amazonaws.com/magnifythumbs/7HJ6H5W1N7N75ZP5.jpg <a href="http://rett.tv/video/Rett-Syndrome-Australia-Resea"><img src="http://s3.amazonaws.com/magnifythumbs/7HJ6H5W1N7N75ZP5.jpg" align="right" border="0"></a> ajloveshbk666 wrote: This Tv Ad is For Rett Syndrome, My little sister has it and so does many little girls around the world, I am putting this on youtube to help promote it and also to help raise funds for the foundation. My mother is also posting this on here also, so please, help us with this, help give these silent angels their wings back For more info go to: www.rett.nesher.com.au (this website is in process of being updated) 10 Rett, medicine, physical, science Rett medicine physical science 2008-01-17T14:06:32+05:00 30 http://rett.tv/video/sndrome-de-rett-2 síndrome de rett http://www.youtube.com/v/uDlpquf9MlA http://s3.amazonaws.com/magnifythumbs/B8DNCWNLWKZMX9PL.jpg <a href="http://rett.tv/video/sndrome-de-rett-2"><img src="http://s3.amazonaws.com/magnifythumbs/B8DNCWNLWKZMX9PL.jpg" align="right" border="0"></a> petrelrett wrote: Paula andando 2008-01-07T18:19:38+05:00 42 http://rett.tv/video/Sndrome-de-Rett-3 Síndrome de Rett http://www.youtube.com/v/ULYbSM6cImE http://s3.amazonaws.com/magnifythumbs/MWPPPB8YFP050P8W.jpg <a href="http://rett.tv/video/Sndrome-de-Rett-3"><img src="http://s3.amazonaws.com/magnifythumbs/MWPPPB8YFP050P8W.jpg" align="right" border="0"></a> petrelrett wrote: Paula andando en el campo 2008-01-07T18:19:42+05:00 44 http://rett.tv/video/Sndrome-de-Rett-4 Síndrome de Rett http://www.youtube.com/v/-nfEcjHp2Ao http://s3.amazonaws.com/magnifythumbs/VNR2CPG2VB3GXR1C.jpg <a href="http://rett.tv/video/Sndrome-de-Rett-4"><img src="http://s3.amazonaws.com/magnifythumbs/VNR2CPG2VB3GXR1C.jpg" align="right" border="0"></a> petrelrett wrote: paula en bicicleta 2008-01-07T18:19:44+05:00 29 http://rett.tv/video/Re-YOUR-WORSTFUNNIEST-NEW-YEA Re: YOUR WORST/FUNNIEST NEW YEARS EXPERIENCE http://www.youtube.com/v/Lz8s6dZBORc http://s3.amazonaws.com/magnifythumbs/F5WF2Q8WMT19PCW0.jpg <a href="http://rett.tv/video/Re-YOUR-WORSTFUNNIEST-NEW-YEA"><img src="http://s3.amazonaws.com/magnifythumbs/F5WF2Q8WMT19PCW0.jpg" align="right" border="0"></a> shawn3bel wrote: Response video to JustMomo89 regarding a memorable New Year's experience. Probably not what she expected, but it's life nonetheless. Happy New Year All! Rett Syndrome www.irsa.org 2008-01-01T05:30:23+05:00 http://rett.tv/video/Fernanda-2-years-10-months-Re Fernanda 2 years 10 months (Rett Girl) http://www.youtube.com/v/Xz18weetzxM http://s3.amazonaws.com/magnifythumbs/XTF09VRP29VP1BVG.jpg <a href="http://rett.tv/video/Fernanda-2-years-10-months-Re"><img src="http://s3.amazonaws.com/magnifythumbs/XTF09VRP29VP1BVG.jpg" align="right" border="0"></a> ch4rli3 wrote: This is my daughter Fernanda laughing loud. Rett, daughter, kids, special Rett daughter kids special 2008-01-01T05:39:21+05:00 37 http://rett.tv/video/Jess-End-of-Year-School-Conce Jess End of Year School Concert http://www.youtube.com/v/pK47pdl0P8s http://s3.amazonaws.com/magnifythumbs/6R4X8JB36RVZXD1V.jpg <a href="http://rett.tv/video/Jess-End-of-Year-School-Conce"><img src="http://s3.amazonaws.com/magnifythumbs/6R4X8JB36RVZXD1V.jpg" align="right" border="0"></a> nevjayb wrote: Jess' class dancing to Achy Breaky Heart! Rett Rett 2007-12-27T19:52:42+05:00 http://rett.tv/video/Jessie-at-Coffs-Harbour Jessie at Coffs Harbour http://www.youtube.com/v/JFzTKFSLGZg http://s3.amazonaws.com/magnifythumbs/J1ZY7CFVTWTQ1FXX.jpg <a href="http://rett.tv/video/Jessie-at-Coffs-Harbour"><img src="http://s3.amazonaws.com/magnifythumbs/J1ZY7CFVTWTQ1FXX.jpg" align="right" border="0"></a> majicmiss wrote: Jess on her first visit to the beach. Not to sure of the sand moving under her feet. Rett Rett 2007-12-18T18:09:32+05:00 http://rett.tv/video/Pia-turns-three Pia turns three http://www.youtube.com/v/9K6EIbcQYD4 http://s3.amazonaws.com/magnifythumbs/QZSQKGVZ8FJ391CK.jpg <a href="http://rett.tv/video/Pia-turns-three"><img src="http://s3.amazonaws.com/magnifythumbs/QZSQKGVZ8FJ391CK.jpg" align="right" border="0"></a> kpad2 wrote: Our litle Silent Angel turned three on 4 December 2007. This is a glimpse of the first three wonderful years of her life. Rett Rett 2007-12-27T19:52:09+05:00 248 http://rett.tv/video/Jess-on-Touchscreen-Computer Jess on Touchscreen Computer http://www.youtube.com/v/VZXEjR9k9uY http://s3.amazonaws.com/magnifythumbs/GS7VZC71D8BB61LL.jpg <a href="http://rett.tv/video/Jess-on-Touchscreen-Computer"><img src="http://s3.amazonaws.com/magnifythumbs/GS7VZC71D8BB61LL.jpg" align="right" border="0"></a> nevjay100 wrote: Jess using a new program on her computer - she really likes the popcorn noise. Rett Rett 2007-12-27T19:52:27+05:00 70 http://rett.tv/video/Hula-Girl-Sarah Hula Girl Sarah http://www.youtube.com/v/Z2Pn7jka-Ts http://s3.amazonaws.com/magnifythumbs/75VV0L9T3F7X9H8S.jpg <a href="http://rett.tv/video/Hula-Girl-Sarah"><img src="http://s3.amazonaws.com/magnifythumbs/75VV0L9T3F7X9H8S.jpg" align="right" border="0"></a> hardingharoo wrote: Sarah is holding on to a hula hoop and taking a spin in her wheelchair! This is quite a feat for a little girl with Rett Syndrome! Go Girl! Wahoo! rett rett 2007-12-06T19:54:26+05:00 21 http://rett.tv/video/Natasha-Enjoying-Her-Fish-Tan Natasha Enjoying Her Fish Tank http://magvid.cache.magnify.net/6BBBBVV34PYH7MRY/video.flv http://s3.amazonaws.com/magnifythumbs/6BBBBVV34PYH7MRY.jpg <a href="http://rett.tv/video/Natasha-Enjoying-Her-Fish-Tan"><img src="http://s3.amazonaws.com/magnifythumbs/6BBBBVV34PYH7MRY.jpg" align="right" border="0"></a> Taken in 2006, Natasha Joy is busy enjoying her fish tank, rocking and "talking" to her Dad Natasha, Sabo, Rett Natasha Sabo Rett 2007-11-18T14:02:55+05:00 78 http://rett.tv/video/Natasha-Happy-After-School Natasha Happy After School http://magvid.cache.magnify.net/VDDMBGH2P6FBBY4Q/video.flv http://s3.amazonaws.com/magnifythumbs/VDDMBGH2P6FBBY4Q.jpg <a href="http://rett.tv/video/Natasha-Happy-After-School"><img src="http://s3.amazonaws.com/magnifythumbs/VDDMBGH2P6FBBY4Q.jpg" align="right" border="0"></a> Natasha Joy is pretty happy sitting at the kitchen table and waiting for her snack "talking" to Mommy Rett, Natasha, Sabo Rett Natasha Sabo 2007-11-18T14:06:42+05:00 31 http://rett.tv/video/Nilay-standing Nilay standing http://www.youtube.com/v/cIEI46mUjYo http://s3.amazonaws.com/magnifythumbs/M6C05DVLQ4MYSCL7.jpg <a href="http://rett.tv/video/Nilay-standing"><img src="http://s3.amazonaws.com/magnifythumbs/M6C05DVLQ4MYSCL7.jpg" align="right" border="0"></a> kuzucuk86 wrote: reds sendromu nilay denge dersınde retts retts 2007-11-12T19:03:26+05:00 37 http://rett.tv/video/Nilay-from-Turkey-Retts-syndr Nilay from Turkey Retts syndrome (age 20) http://www.youtube.com/v/BiC9J88vDuA http://s3.amazonaws.com/magnifythumbs/QBSL3HQG343KCH3K.jpg <a href="http://rett.tv/video/Nilay-from-Turkey-Retts-syndr"><img src="http://s3.amazonaws.com/magnifythumbs/QBSL3HQG343KCH3K.jpg" align="right" border="0"></a> kuzucuk86 wrote: nilay toca retts retts 2007-11-12T19:03:32+05:00 48 http://rett.tv/video/Young-Rett-Angel Young Rett Angel http://www.youtube.com/v/4b687oZSSpg http://s3.amazonaws.com/magnifythumbs/5L9LS8WZBWX2ZLLZ.jpg <a href="http://rett.tv/video/Young-Rett-Angel"><img src="http://s3.amazonaws.com/magnifythumbs/5L9LS8WZBWX2ZLLZ.jpg" align="right" border="0"></a> luksemburka wrote: la pettite Ajla d`un an rett rett 2007-11-12T06:12:14+05:00 78 http://rett.tv/video/Sarah-Driving-Her-Chair Sarah Driving Her Chair http://magvid.cache.magnify.net/KF9D19T66WC15JQ4/video.flv http://s3.amazonaws.com/magnifythumbs/KF9D19T66WC15JQ4.jpg <a href="http://rett.tv/video/Sarah-Driving-Her-Chair"><img src="http://s3.amazonaws.com/magnifythumbs/KF9D19T66WC15JQ4.jpg" align="right" border="0"></a> 7.75 RETT RETT 2007-11-12T05:36:51+05:00 34 http://rett.tv/video/Syndrome-de-Rett-News-Story Syndrome de Rett News Story http://www.dailymotion.com/swf/x30g2r http://s3.amazonaws.com/magnifythumbs/MQSGHPB6DSK96Z35.jpg <a href="http://rett.tv/video/Syndrome-de-Rett-News-Story"><img src="http://s3.amazonaws.com/magnifythumbs/MQSGHPB6DSK96Z35.jpg" align="right" border="0"></a> rett, maladie, orpheline rett maladie orpheline 2007-11-02T18:29:18+05:00 107 http://rett.tv/video/Jess-Walking Jess Walking http://www.youtube.com/v/L9Cc5aRrX4c http://s3.amazonaws.com/magnifythumbs/SPCRQ9ZCGDH9JQQK.jpg <a href="http://rett.tv/video/Jess-Walking"><img src="http://s3.amazonaws.com/magnifythumbs/SPCRQ9ZCGDH9JQQK.jpg" align="right" border="0"></a> nevjay100 wrote: Here's Jess going for a walk (with a bit of help from Mum!) She can walk with her only her hands held in the hydro pool. On land she needs quite a bit more support & is very wobbly! Rett Rett 2007-11-02T18:30:27+05:00 113 http://rett.tv/video/Only-one-step Only one step http://www.youtube.com/v/a2bqBWVVP4o http://s3.amazonaws.com/magnifythumbs/6GHQYR5QDJ9CXK70.jpg <a href="http://rett.tv/video/Only-one-step"><img src="http://s3.amazonaws.com/magnifythumbs/6GHQYR5QDJ9CXK70.jpg" align="right" border="0"></a> ButlerCrew wrote: She was walking for us as part of Development Therapy. She had taken three or four steps on her own before I got my camera Rett Rett 2007-09-11T16:57:08+05:00 47 http://rett.tv/video/Cole-Isabella Cole & Isabella http://www.youtube.com/v/JwUQx38tYEY http://s3.amazonaws.com/magnifythumbs/WDPKMR1W6QHNJHJ8.jpg <a href="http://rett.tv/video/Cole-Isabella"><img src="http://s3.amazonaws.com/magnifythumbs/WDPKMR1W6QHNJHJ8.jpg" align="right" border="0"></a> THEP8S wrote: Cole & Isabella dancing at Civil War Ball. 2007-08-23T07:23:59+05:00 40 http://rett.tv/video/Jess-Using-Touchcreen-Compute Jess Using Touchcreen Computer http://www.youtube.com/v/JrcfeVs361k http://s3.amazonaws.com/magnifythumbs/HG590R2J3Q9G6Q1X.jpg <a href="http://rett.tv/video/Jess-Using-Touchcreen-Compute"><img src="http://s3.amazonaws.com/magnifythumbs/HG590R2J3Q9G6Q1X.jpg" align="right" border="0"></a> nevjay100 wrote: Here's Jess using her new touchscreen tablet PC. We haven't got much software on it for her yet. This one we made using photo's from around the house and a program called ChooseIt Maker. As you can see she does a pretty good job! 8.19 touchscreen, Rett touchscreen Rett 2007-08-23T07:23:25+05:00 169 http://rett.tv/video/Brooklyn-at-the-Wiggles-Conce Brooklyn at the Wiggles Concert http://www.youtube.com/v/uTuNLDtXNvo http://s3.amazonaws.com/magnifythumbs/JQB58QQ4LBKWB45P.jpg <a href="http://rett.tv/video/Brooklyn-at-the-Wiggles-Conce"><img src="http://s3.amazonaws.com/magnifythumbs/JQB58QQ4LBKWB45P.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn had a great time at the Wiggles. Here she is during on of her favorite song! Fun, Having Fun Having 2007-08-21T17:36:13+05:00 24 http://rett.tv/video/More-time-in-the-Barbie-Car More time in the Barbie Car http://www.youtube.com/v/eViqjE23ebs http://s3.amazonaws.com/magnifythumbs/BWXW837PKYLF5503.jpg <a href="http://rett.tv/video/More-time-in-the-Barbie-Car"><img src="http://s3.amazonaws.com/magnifythumbs/BWXW837PKYLF5503.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn and Grace in the Barbie car AGAIN Rett Rett 2007-08-04T10:11:35+05:00 16 http://rett.tv/video/Brooklyn-loves-her-pink-float Brooklyn loves her pink float http://www.youtube.com/v/RySCwhkNrv8 http://s3.amazonaws.com/magnifythumbs/7T5PJB8FG9WZLT7H.jpg <a href="http://rett.tv/video/Brooklyn-loves-her-pink-float"><img src="http://s3.amazonaws.com/magnifythumbs/7T5PJB8FG9WZLT7H.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn had so much fun hanging out in the pool with Grammy tonight! Rett Rett 2007-08-04T10:11:29+05:00 25 http://rett.tv/video/Riding-with-Grace-in-the-Barb Riding with Grace in the Barbie Car http://www.youtube.com/v/ayf9JkxTNSI http://s3.amazonaws.com/magnifythumbs/GFYHR21R941MQNC2.jpg <a href="http://rett.tv/video/Riding-with-Grace-in-the-Barb"><img src="http://s3.amazonaws.com/magnifythumbs/GFYHR21R941MQNC2.jpg" align="right" border="0"></a> ButlerCrew wrote: Brooklyn LOVED riding around in the Barbie car! Rett Rett 2007-08-04T10:11:17+05:00 34 http://rett.tv/video/brooklyn-swimming-mov brooklyn swimming.mov http://magvid.cache.magnify.net/6GFT481131PZD5YY/video.flv http://s3.amazonaws.com/magnifythumbs/6GFT481131PZD5YY.jpg <a href="http://rett.tv/video/brooklyn-swimming-mov"><img src="http://s3.amazonaws.com/magnifythumbs/6GFT481131PZD5YY.jpg" align="right" border="0"></a> Brooklyn loves playing in the pool. I guess that is a good thing since it is great therapy for our Rett girls! playing playing 2007-08-02T18:10:43+05:00 24 http://rett.tv/video/Manon-with-parents Manon with parents http://www.youtube.com/v/X3m5N5xKWdw http://s3.amazonaws.com/magnifythumbs/GP6RSMFB0CFKC9PX.jpg <a href="http://rett.tv/video/Manon-with-parents"><img src="http://s3.amazonaws.com/magnifythumbs/GP6RSMFB0CFKC9PX.jpg" align="right" border="0"></a> kodelbe wrote: Manon, her parents and brother and sister visited us rett, aurelie, manon, hans rett aurelie manon hans 2007-07-26T06:44:46+05:00 http://rett.tv/video/Dressup2Cure Dressup2Cure http://www.youtube.com/v/auIfHpOcBFM http://s3.amazonaws.com/magnifythumbs/GHM2X89DBP8ZC389.jpg <a href="http://rett.tv/video/Dressup2Cure"><img src="http://s3.amazonaws.com/magnifythumbs/GHM2X89DBP8ZC389.jpg" align="right" border="0"></a> nshields wrote: Girl Authority got together and dressed up in silly costumes to support a great cause. For more information visit www.dressup2cure.com 2007-07-26T06:44:12+05:00 164 http://rett.tv/video/Brooklyn-crusing-in-the-Barbi Brooklyn crusing in the Barbie Car http://magvid.cache.magnify.net/XJ8Y4M59YRGTC9G6/video.flv http://s3.amazonaws.com/magnifythumbs/XJ8Y4M59YRGTC9G6.jpg <a href="http://rett.tv/video/Brooklyn-crusing-in-the-Barbi"><img src="http://s3.amazonaws.com/magnifythumbs/XJ8Y4M59YRGTC9G6.jpg" align="right" border="0"></a> Brooklyn had so much fun riding in the Barbie car with her friend Faith. 8.19 fun fun 2007-07-21T19:24:19+05:00 17 http://rett.tv/video/Ciara-Ann Ciara Ann http://video.google.com/googleplayer.swf?docId=-6059451950556043452 http://s3.amazonaws.com/magnifythumbs/SDDBRRWG9X07NMX9.jpg <a href="http://rett.tv/video/Ciara-Ann"><img src="http://s3.amazonaws.com/magnifythumbs/SDDBRRWG9X07NMX9.jpg" align="right" border="0"></a> Ciara Ann birth-age 3.5. Ciara has Rett Syndrome. 8.5 2007-07-11T17:38:26+05:00 http://rett.tv/video/Brooklyn-loves-swinging Brooklyn loves swinging http://www.youtube.com/v/5QTJprZERQg http://s3.amazonaws.com/magnifythumbs/DGSLVR82MF1ND513.jpg <a href="http://rett.tv/video/Brooklyn-loves-swinging"><img src="http://s3.amazonaws.com/magnifythumbs/DGSLVR82MF1ND513.jpg" align="right" border="0"></a> Brooklyn is enjoying her new swing set. She loves to swing. Her OT says it is great therapy we all just love to see her smile! She is 2 - just diagnosed this May, one week after her second birthday. 7 Rett, Therapy Rett Therapy 2007-07-11T12:59:41+05:00 49 http://rett.tv/video/Rett-Syndrome-Mouse-Before-Tr Rett Syndrome Mouse - Before Treatment http://www.youtube.com/v/XHXU25NTGf4 http://s3.amazonaws.com/magnifythumbs/RGZRDKJSMSQN5Y8V.jpg <a href="http://rett.tv/video/Rett-Syndrome-Mouse-Before-Tr"><img src="http://s3.amazonaws.com/magnifythumbs/RGZRDKJSMSQN5Y8V.jpg" align="right" border="0"></a> newscientistvideo wrote: For more information: http://www.newscientist.com/channel/health/dn11138 Video showing a mouse with Rett syndrome displaying low stance, inertia, tremor, arrhythmic breathing, splayed hind-limb position and moderate hind-limb clasping. Courtesy of Adrian Bird at University of Edinburgh 6.4 2007-07-10T21:07:31+05:00 27 http://rett.tv/video/Rett-Syndrome-Mouse-After-Tre Rett Syndrome Mouse - After Treatment http://www.youtube.com/v/RVUq5C9LS-4 http://s3.amazonaws.com/magnifythumbs/4N699L59VZHCW1DZ.jpg <a href="http://rett.tv/video/Rett-Syndrome-Mouse-After-Tre"><img src="http://s3.amazonaws.com/magnifythumbs/4N699L59VZHCW1DZ.jpg" align="right" border="0"></a> newscientistvideo wrote: For more information: http://www.newscientist.com/channel/health/dn11138 Video showing a mouse whose gene function has been restored and thereby reversing the Rett syndrome-like symptoms. Courtesy of Adrian Bird at University of Edinburgh 7 2007-07-10T21:07:25+05:00 36 http://rett.tv/video/Edda Edda http://www.youtube.com/v/xOfx-6zMqyc http://s3.amazonaws.com/magnifythumbs/XSGSJSVN8NJWNKKD.jpg <a href="http://rett.tv/video/Edda"><img src="http://s3.amazonaws.com/magnifythumbs/XSGSJSVN8NJWNKKD.jpg" align="right" border="0"></a> dturnip1 wrote: Edda running Rett Rett 2007-07-08T08:58:14+05:00 17 http://rett.tv/video/Willemijn-loopt Willemijn loopt! http://www.youtube.com/v/kVKP3REP2Hw http://s3.amazonaws.com/magnifythumbs/81P0GC8WGNZ462D7.jpg <a href="http://rett.tv/video/Willemijn-loopt"><img src="http://s3.amazonaws.com/magnifythumbs/81P0GC8WGNZ462D7.jpg" align="right" border="0"></a> ericmirjam wrote: Deze week heeft er een klein wonder plaatsgevonden. Tijdens een ochtendje oefenen met de fysiotherapeute Mary zette Willemijn haar eerste stapjes in de NF Walker! Een geweldige ervaring voor haar. Lopen vergt zoveel coordinatie dat het erg moeilijk is voor haar hersenen om dat proces tot een goed einde te brengen 9.25 2007-07-02T06:41:51+05:00 43 http://rett.tv/video/Rett-en-Las-Provincias-Inform Rett en Las Provincias Informativos http://www.youtube.com/v/3w-k951DIuU http://s3.amazonaws.com/magnifythumbs/WKGCV2T3P2Q2CSSM.jpg <a href="http://rett.tv/video/Rett-en-Las-Provincias-Inform"><img src="http://s3.amazonaws.com/magnifythumbs/WKGCV2T3P2Q2CSSM.jpg" align="right" border="0"></a> mayhemburn wrote: Entrevista sobre sindrome de Rett en Las Provincias Informativos 9.25 2007-07-02T06:36:32+05:00 176 http://rett.tv/video/Jess-on-Liberty-Swing Jess on Liberty Swing http://www.youtube.com/v/CzF611K7Z1Y http://s3.amazonaws.com/magnifythumbs/K6ZM4S81JWZWWZZH.jpg <a href="http://rett.tv/video/Jess-on-Liberty-Swing"><img src="http://s3.amazonaws.com/magnifythumbs/K6ZM4S81JWZWWZZH.jpg" align="right" border="0"></a> nevjay100 wrote: Here's a film of Jess on the wheelchair accessible Liberty Swing. As you can hear from her laughter she loved it! The picture quality isn't great but turn up the volume, the sound is great! Jess is nearly 6 years old and has Rett Syndrome, visit www.rettsyndrome.org for more information. 2007-07-01T18:31:49+05:00 59 http://rett.tv/video/Jess-Picking-up-Chocolate-Fro Jess Picking up Chocolate Frog http://www.youtube.com/v/Fu3lF3Q9s8g http://s3.amazonaws.com/magnifythumbs/X47P09TVBBXX6FY6.jpg <a href="http://rett.tv/video/Jess-Picking-up-Chocolate-Fro"><img src="http://s3.amazonaws.com/magnifythumbs/X47P09TVBBXX6FY6.jpg" align="right" border="0"></a> nevjay100 wrote: Here's a short film of Jess grabbing hold of a chocolate. Jess is nearly 6 years old and has Rett Syndrome. Visit www.rettsyndrome.org for more information. 9.25 Rett Rett 2007-07-01T18:31:40+05:00 114 http://rett.tv/video/Elayna-Marie Elayna Marie http://www.youtube.com/v/SkUPefM_LRo http://s3.amazonaws.com/magnifythumbs/96NVFJ4QY577P5YX.jpg <a href="http://rett.tv/video/Elayna-Marie"><img src="http://s3.amazonaws.com/magnifythumbs/96NVFJ4QY577P5YX.jpg" align="right" border="0"></a> jrbbeserra wrote: Elayna keeping herself entertained with her hands and feet. Elayna is 16 months old and was diagnosed with rett syndrome 11/06 at 11 months old. rett rett 2007-06-21T19:41:33+05:00 38 http://rett.tv/video/Encuentro-de-familias-Rett Encuentro de familias Rett http://www.youtube.com/v/cNd1QWStbN8 http://s3.amazonaws.com/magnifythumbs/FVS00M2GRDC1VJ9H.jpg <a href="http://rett.tv/video/Encuentro-de-familias-Rett"><img src="http://s3.amazonaws.com/magnifythumbs/FVS00M2GRDC1VJ9H.jpg" align="right" border="0"></a> mayhemburn wrote: Asiciacion Valenciana sindrome de Rett, encuentro. sindrome, rett, valenciana sindrome rett valenciana 2007-06-21T19:33:56+05:00 649 http://rett.tv/video/manon-rett-syndrome manon rett syndrome http://www.youtube.com/v/TKRf0ITr348 http://s3.amazonaws.com/magnifythumbs/8SRBKR8PDC2FSP9Q.jpg <a href="http://rett.tv/video/manon-rett-syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/8SRBKR8PDC2FSP9Q.jpg" align="right" border="0"></a> aureliericaud wrote: manon exercise to walk soon manon, rett manon rett 2007-06-21T19:32:25+05:00 35 http://rett.tv/video/Nikki-gives-me-a-hug Nikki gives me a hug http://www.youtube.com/v/UpjG8MFfmfA http://s3.amazonaws.com/magnifythumbs/MSJMRB5RKNGYMHZ9.jpg <a href="http://rett.tv/video/Nikki-gives-me-a-hug"><img src="http://s3.amazonaws.com/magnifythumbs/MSJMRB5RKNGYMHZ9.jpg" align="right" border="0"></a> michaeldknowles wrote: Nikki gives me a hug 2007-06-21T19:31:15+05:00 90 http://rett.tv/video/RETT-Disorder RETT Disorder http://www.youtube.com/v/ZBsEwg_yuDQ http://s3.amazonaws.com/magnifythumbs/SWM8D6GKKF1HGBZT.jpg <a href="http://rett.tv/video/RETT-Disorder"><img src="http://s3.amazonaws.com/magnifythumbs/SWM8D6GKKF1HGBZT.jpg" align="right" border="0"></a> fertila wrote: one of rett disorder child pervasive, development, disorder pervasive development disorder 2007-06-21T19:31:04+05:00 233 http://rett.tv/video/Daphni-Jo-Swimming Daphni Jo Swimming http://www.youtube.com/v/msLhrpMjdOg http://s3.amazonaws.com/magnifythumbs/4LGRS0JXSYBTY0WK.jpg <a href="http://rett.tv/video/Daphni-Jo-Swimming"><img src="http://s3.amazonaws.com/magnifythumbs/4LGRS0JXSYBTY0WK.jpg" align="right" border="0"></a> AJDEDIrby wrote: Miss Daphni Jo swimming with her Auntie Jessie and cousing Patric Rett, Jo, Angel, Daphni Rett Jo Angel Daphni 2007-06-21T19:29:49+05:00 http://rett.tv/video/ariana ariana http://www.youtube.com/v/Lt3iF0r9GIs http://s3.amazonaws.com/magnifythumbs/5C12LJSM1HM540C1.jpg <a href="http://rett.tv/video/ariana"><img src="http://s3.amazonaws.com/magnifythumbs/5C12LJSM1HM540C1.jpg" align="right" border="0"></a> rettangel wrote: ariana a rett angel 7.75 rett, disabled, child rett disabled child 2007-06-21T19:28:22+05:00 135 http://rett.tv/video/Rett-Syndrome-child-named-Ari Rett Syndrome child named Ariana http://www.youtube.com/v/VtC3ao9_gtM http://s3.amazonaws.com/magnifythumbs/NZ1THK05KX4H0CRG.jpg <a href="http://rett.tv/video/Rett-Syndrome-child-named-Ari"><img src="http://s3.amazonaws.com/magnifythumbs/NZ1THK05KX4H0CRG.jpg" align="right" border="0"></a> rettangel wrote: our daughter ariana is a rett angel 10 2007-06-21T19:26:33+05:00 232 http://rett.tv/video/Sindrome-de-Rett-Leticia-Tava Sindrome de Rett - Leticia Tavares Vezaro http://video.google.com/googleplayer.swf?docId=-2365408864633485010 http://s3.amazonaws.com/magnifythumbs/7NWB9BFP4GFYNGNK.jpg <a href="http://rett.tv/video/Sindrome-de-Rett-Leticia-Tava"><img src="http://s3.amazonaws.com/magnifythumbs/7NWB9BFP4GFYNGNK.jpg" align="right" border="0"></a> Minha filha com 3 anos de idade. 2007-06-06T03:04:26+05:00 http://rett.tv/video/BC-on-Autism-30-Part-2-of-the BC on Autism 30: Part 2 of the autism conference notes http://e.blip.tv/scripts/flash/showplayer.swf?file=file%2F146766 http://s3.amazonaws.com/magnifythumbs/PQLPDTDFB44S5HW5.jpg <a href="http://rett.tv/video/BC-on-Autism-30-Part-2-of-the"><img src="http://s3.amazonaws.com/magnifythumbs/PQLPDTDFB44S5HW5.jpg" align="right" border="0"></a> Part 2: Rett syndrome and an overview by MehlmerAgain, more of an audio thing. 2007-06-03T10:25:16+05:00 http://rett.tv/video/Rett-Syndrome-Picnic-Fundrais Rett Syndrome Picnic & Fundraiser http://www.youtube.com/v/k-YO-rFgbfQ http://s3.amazonaws.com/magnifythumbs/Y56TFQQHQQ15Y361.jpg <a href="http://rett.tv/video/Rett-Syndrome-Picnic-Fundrais"><img src="http://s3.amazonaws.com/magnifythumbs/Y56TFQQHQQ15Y361.jpg" align="right" border="0"></a> kamiand wrote: Picnic for families and friends of girls with Rett syndrome to raise money and awareness for the International Rett syndrome Association. 2007-04-27T05:32:31+05:00 473 http://rett.tv/video/Kathy-Falk Kathy Falk http://www.metacafe.com/fplayer/397083/video.swf http://s3.amazonaws.com/magnifythumbs/8Y867YJJRLWQXG4J.jpg <a href="http://rett.tv/video/Kathy-Falk"><img src="http://s3.amazonaws.com/magnifythumbs/8Y867YJJRLWQXG4J.jpg" align="right" border="0"></a> mfalk162 wrote: This is a beautiful girl with Rett Syndrome. 10 Kathy, Syndrome, Falk, Rett Kathy Syndrome Falk Rett 2007-04-27T05:32:31+05:00 163 http://rett.tv/video/Caitlyn-1206 Caitlyn 12/06 http://www.youtube.com/v/VOoD0lFL-Y8 http://s3.amazonaws.com/magnifythumbs/TWMZ4T7BYNX0BW98.jpg <a href="http://rett.tv/video/Caitlyn-1206"><img src="http://s3.amazonaws.com/magnifythumbs/TWMZ4T7BYNX0BW98.jpg" align="right" border="0"></a> caitlynsmomma wrote: She is who she is, and we love her! rett, syndrome, caitlyn rett syndrome caitlyn 2007-04-27T05:34:08+05:00 23 http://rett.tv/video/Rett-Syndrome-Reversal-Summar Rett Syndrome Reversal Summary http://www.youtube.com/v/RyAvKGmAElQ http://s3.amazonaws.com/magnifythumbs/7HCY3RLCK0S2P53K.jpg <a href="http://rett.tv/video/Rett-Syndrome-Reversal-Summar"><img src="http://s3.amazonaws.com/magnifythumbs/7HCY3RLCK0S2P53K.jpg" align="right" border="0"></a> amandaksellers wrote: Reveral of Symptoms in Autism Spectrum Disorder - Rett Syndrome 10 rett, syndrome, reversal rett syndrome reversal 2007-04-27T05:33:23+05:00 187 http://rett.tv/video/Rebeccas-Rett-Syndrome Rebecca's Rett Syndrome http://www.youtube.com/v/KL0TAAQOrds http://s3.amazonaws.com/magnifythumbs/C7NRWQL8CCXD8QXL.jpg <a href="http://rett.tv/video/Rebeccas-Rett-Syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/C7NRWQL8CCXD8QXL.jpg" align="right" border="0"></a> coxmr1 wrote: My 3½ year old Daughter Rebecca who has Rett Syndrome. Filmed on 02/01/07 Rett, Syndrome Rett Syndrome 2007-04-27T05:33:22+05:00 26 http://rett.tv/video/Run-For-Rett-San-Diego Run For Rett San Diego http://www.youtube.com/v/NQhGeYrBGDE http://s3.amazonaws.com/magnifythumbs/B5BDXTKYZMKP9TFH.jpg <a href="http://rett.tv/video/Run-For-Rett-San-Diego"><img src="http://s3.amazonaws.com/magnifythumbs/B5BDXTKYZMKP9TFH.jpg" align="right" border="0"></a> kamiand wrote: Run For Rett Syndrome to raise money and awareness for treatments and a cure for Rett syndrome. November 03. 2007-04-27T05:33:22+05:00 514 http://rett.tv/video/Christmas-Alive-and-Well-at-S Christmas Alive and Well at Signal Hill School http://www.youtube.com/v/li8lI3MlIl8 http://s3.amazonaws.com/magnifythumbs/4Q7FX2ZRV3VTSY4F.jpg <a href="http://rett.tv/video/Christmas-Alive-and-Well-at-S"><img src="http://s3.amazonaws.com/magnifythumbs/4Q7FX2ZRV3VTSY4F.jpg" align="right" border="0"></a> hardingharoo wrote: Great Christmas shows! Sarah, with Rett Syndrome, is mainstreamed in Kindergarten and did great! There is also a "little" girl in her class as well as a wonderful mix of children who are so dear to little Sarah. Christmas, diversity, Rett, Syndrome Christmas diversity Rett Syndrome 2007-04-27T05:33:21+05:00 429 http://rett.tv/video/Kathy-Falk-3 Kathy Falk http://www.youtube.com/v/z4KnWPc5zJU http://s3.amazonaws.com/magnifythumbs/7N8W39K4QX23661L.jpg <a href="http://rett.tv/video/Kathy-Falk-3"><img src="http://s3.amazonaws.com/magnifythumbs/7N8W39K4QX23661L.jpg" align="right" border="0"></a> mfalk162 wrote: This is a video of Kathy Falk who is a wonderful girl with a terrible problem... Rett Syndrome. kathy, syndrome, falk, rett kathy syndrome falk rett 2007-04-27T05:33:21+05:00 163 http://rett.tv/video/Rebeccas-Video Rebecca's Video http://www.youtube.com/v/rPNkg7VWRIU http://s3.amazonaws.com/magnifythumbs/S485CT3GQPTTZ7QW.jpg <a href="http://rett.tv/video/Rebeccas-Video"><img src="http://s3.amazonaws.com/magnifythumbs/S485CT3GQPTTZ7QW.jpg" align="right" border="0"></a> coxmr1 wrote: My daughter with Rett Syndrome enjoying some cartoons in 2005. Rett, Syndrome Rett Syndrome 2007-04-27T05:33:21+05:00 60 http://rett.tv/video/Siri Siri http://www.youtube.com/v/8XDYbsiY1ME http://s3.amazonaws.com/magnifythumbs/SKQ32MDNDK82Y81H.jpg <a href="http://rett.tv/video/Siri"><img src="http://s3.amazonaws.com/magnifythumbs/SKQ32MDNDK82Y81H.jpg" align="right" border="0"></a> SuperDuckyWho wrote: This is my sister Siri (aka "Seeber" aka "Seebs") who I love like... well... like something a person loves a lot! She has Rett Syndrome, but for a long time I didn't know that, especially when I was little. She's just my sister to me and always will be. She doesn't talk but she types with us and her PCA (though I don't think they call them that anymore. Not sure what they do call them even though I work as one too every now and then) This is Christmas and I just unpacked my new KA-ME-RA!!! Hence, I must record... and hence, I have no idea how to use it. XD Sister, Autism, Rett, Syndrome Sister Autism Rett Syndrome 2007-04-27T05:33:21+05:00 22 http://rett.tv/video/Katie Katie http://www.youtube.com/v/R_tkPfpOhc8 http://s3.amazonaws.com/magnifythumbs/FYX2QNG5J4YYHFTM.jpg <a href="http://rett.tv/video/Katie"><img src="http://s3.amazonaws.com/magnifythumbs/FYX2QNG5J4YYHFTM.jpg" align="right" border="0"></a> Queseradeti wrote: Rett Syndrome (RS) is a unique neurodevelopmental disorder which begins to show its affects in infancy or early childhood. It is seen almost exclusively in females, although it can occur rarely in boys. It is found in all racial and ethnic groups throughout the world. 2007-04-27T05:33:20+05:00 267 http://rett.tv/video/Mouse-Model-of-Retts-Syndrome Mouse Model of Rett's Syndrome http://www.youtube.com/v/vgq6J4Zf3B4 http://s3.amazonaws.com/magnifythumbs/KTLJ9500J3R23BRD.jpg <a href="http://rett.tv/video/Mouse-Model-of-Retts-Syndrome"><img src="http://s3.amazonaws.com/magnifythumbs/KTLJ9500J3R23BRD.jpg" align="right" border="0"></a> Proneural wrote: This is a video clip from HHMI about the mouse model for a neurological disease called Rett's syndrome. 2007-05-13T17:16:47+05:00 74 http://rett.tv/video/Rett-Syndrome-Documentary-Tra Rett Syndrome Documentary Trailer http://www.youtube.com/v/_SnPB_ELTIk http://s3.amazonaws.com/magnifythumbs/BRLRT6M9574FXXP6.jpg <a href="http://rett.tv/video/Rett-Syndrome-Documentary-Tra"><img src="http://s3.amazonaws.com/magnifythumbs/BRLRT6M9574FXXP6.jpg" align="right" border="0"></a> michaeldknowles wrote: Rett Syndrome is the most physically disabling of the Autism spectrum disorders. I met a girl named Nikki who has Rett Syndrom and I made a documentary about her and Rett Syndrome. I just finished editing it. This is a trailer for the documentary. 10 2007-05-10T18:54:51+05:00 132 http://rett.tv/video/Maiyas-Drop-Seizures Maiya's Drop Seizures http://magvid.cache.magnify.net/PYNMBCF4GLYTSDNV/video.flv http://s3.amazonaws.com/magnifythumbs/PYNMBCF4GLYTSDNV.jpg <a href="http://rett.tv/video/Maiyas-Drop-Seizures"><img src="http://s3.amazonaws.com/magnifythumbs/PYNMBCF4GLYTSDNV.jpg" align="right" border="0"></a> This is a video of Maiya experiencing drop seizures. I took this video and emailed it to Maiya's neurologists to confirm that they were actually seizures. This is a GREAT way to have your child's doctor see what is happening without making a special visit to the doctor's office, it's an electronic version of the old house call. 10 Drop, Seizure Drop Seizure 2007-05-10T13:27:30+05:00 57 http://rett.tv/video/Maiyas-Switch Maiya's Switch http://magvid.cache.magnify.net/W5MK5HRVDPVVZMXX/video.flv http://s3.amazonaws.com/magnifythumbs/W5MK5HRVDPVVZMXX.jpg <a href="http://rett.tv/video/Maiyas-Switch"><img src="http://s3.amazonaws.com/magnifythumbs/W5MK5HRVDPVVZMXX.jpg" align="right" border="0"></a> An interesting video of Maiya's unique method of switch use. "rett, syndrome" "rett syndrome" 2007-05-09T14:45:41+05:00 79 http://rett.tv/video/Abby-V-with-her-therapist-Ret Abby V with her therapist. Rett Syndrome 1 http://video.google.com/googleplayer.swf?docId=4070206662448766723 http://s3.amazonaws.com/magnifythumbs/LPLZRBGXVC76006H.jpg <a href="http://rett.tv/video/Abby-V-with-her-therapist-Ret"><img src="http://s3.amazonaws.com/magnifythumbs/LPLZRBGXVC76006H.jpg" align="right" border="0"></a> Abby V using sign language and fighting her apraxia to use her hands. 7.75 2007-04-27T05:50:08+05:00 http://rett.tv/video/Abby-V-Rett-Syndrome-part-2 Abby V - Rett Syndrome part 2 http://video.google.com/googleplayer.swf?docId=6992533065155419385 http://s3.amazonaws.com/magnifythumbs/6CDWN888VTYP4WV8.jpg <a href="http://rett.tv/video/Abby-V-Rett-Syndrome-part-2"><img src="http://s3.amazonaws.com/magnifythumbs/6CDWN888VTYP4WV8.jpg" align="right" border="0"></a> Right before we started filming Abby had rocked back and forth not being able to complete a movement or sound. 2007-04-27T05:50:08+05:00 http://rett.tv/video/The-Heros-Path The Hero's Path http://video.google.com/googleplayer.swf?docId=7014091294332456510 http://s3.amazonaws.com/magnifythumbs/P9YYFNFJZMYBZWDW.jpg <a href="http://rett.tv/video/The-Heros-Path"><img src="http://s3.amazonaws.com/magnifythumbs/P9YYFNFJZMYBZWDW.jpg" align="right" border="0"></a> The International Rett Syndrome Association presents a short film about Rett Syndrome and the Circle of Angels Research Fund. Introduced by Julia Roberts 5.5 2007-04-27T05:50:07+05:00 http://rett.tv/video/Willemijn-Waterpret Willemijn Waterpret http://www.youtube.com/v/hLApF2JqEe4 http://s3.amazonaws.com/magnifythumbs/WWX8BCGR03FNDKNR.jpg <a href="http://rett.tv/video/Willemijn-Waterpret"><img src="http://s3.amazonaws.com/magnifythumbs/WWX8BCGR03FNDKNR.jpg" align="right" border="0"></a> ericmirjam wrote: Waterpret op 14 april 2007! 2007-04-27T05:35:25+05:00 29 http://rett.tv/video/REVERSAL-OF-SYMPTOMS-IN-AN-AU REVERSAL OF SYMPTOMS IN AN AUTISM SPECTRUM DISORDER http://www.youtube.com/v/vn0T3lMqlkw http://s3.amazonaws.com/magnifythumbs/TNXZWRX61X25B1SM.jpg <a href="http://rett.tv/video/REVERSAL-OF-SYMPTOMS-IN-AN-AU"><img src="http://s3.amazonaws.com/magnifythumbs/TNXZWRX61X25B1SM.jpg" align="right" border="0"></a> multivu wrote: Rett Syndrome is reversed in genetic mouse model Cincinnati, OH (February 08, 2007) / PRNewswire / — The Rett Syndrome Research Foundation (RSRF) announces results of a landmark study reversing the symptoms of Rett Syndrome (RTT) in a genetic mouse model. The findings, by Adrian Bird, Ph.D., of the University of Edinburgh and Chairman of the RSRF Scientific Advisory Board, appear online in Science Express on February 8, 2007. Rett Syndrome is a severe childhood neurological disease that is the most physically disabling of the autism spectrum disorders. The experiments were funded by the Rett Syndrome Research Foundation (RSRF), the Wellcome Trust and the Rett Syndrome U.K./Jeans for Genes. Caused by mutations in the gene MECP2, RTT affects primarily girls, striking at random in early childhood and destroying speech, normal movement and functional hand use. Many children become wheelchair bound; those who walk display an abnormal, stiff-legged gait. Disordered breathing patterns and Parki... 2007-04-27T05:35:05+05:00 http://rett.tv/video/Rett-Angel-Allie Rett Angel Allie http://www.youtube.com/v/eOVOY8B2rKQ http://s3.amazonaws.com/magnifythumbs/WP0SSX0BPGFN065V.jpg <a href="http://rett.tv/video/Rett-Angel-Allie"><img src="http://s3.amazonaws.com/magnifythumbs/WP0SSX0BPGFN065V.jpg" align="right" border="0"></a> Rett Syndrome Awareness Video 10 Rett Rett 2007-04-27T05:34:10+05:00 186 http://rett.tv/video/Sarah Sarah http://www.youtube.com/v/6z91XWD4ZeI http://s3.amazonaws.com/magnifythumbs/BP9QB26CDFLW5ZRP.jpg <a href="http://rett.tv/video/Sarah"><img src="http://s3.amazonaws.com/magnifythumbs/BP9QB26CDFLW5ZRP.jpg" align="right" border="0"></a> hardingharoo wrote: Here is Sarah on the floor playing. 10 play, Rett, Syndrome play Rett Syndrome 2007-04-27T05:34:10+05:00 230 http://rett.tv/video/Verbal-Notes-from-an-Autism-C Verbal Notes from an Autism Conference Part 2 http://www.youtube.com/v/T0tVK04GETA http://s3.amazonaws.com/magnifythumbs/VKCS5XZP1BRYYHSV.jpg <a href="http://rett.tv/video/Verbal-Notes-from-an-Autism-C"><img src="http://s3.amazonaws.com/magnifythumbs/VKCS5XZP1BRYYHSV.jpg" align="right" border="0"></a> BartholomewCubbins wrote: Part 2 mainly deals with Rett Syndrome. Again, more of a listen than a watch. Science, autism, genetics Science autism genetics 2007-04-27T05:34:10+05:00 468 http://rett.tv/video/Modern-Technology Modern Technology http://www.youtube.com/v/IK_trreP51c http://s3.amazonaws.com/magnifythumbs/DS25HF9TV7G4JGWM.jpg <a href="http://rett.tv/video/Modern-Technology"><img src="http://s3.amazonaws.com/magnifythumbs/DS25HF9TV7G4JGWM.jpg" align="right" border="0"></a> caitlynsmomma wrote: Caitlyn asking to go potty! Rett, Syndrome Rett Syndrome 2007-04-27T05:34:10+05:00 13 http://rett.tv/video/Edda-walking Edda walking http://www.youtube.com/v/ipiyCto5Mh4 http://s3.amazonaws.com/magnifythumbs/H3VYYCP4KTJMTDKF.jpg <a href="http://rett.tv/video/Edda-walking"><img src="http://s3.amazonaws.com/magnifythumbs/H3VYYCP4KTJMTDKF.jpg" align="right" border="0"></a> dturnip1 wrote: Edda at Choa Chu Kang Park rett, syndrome rett syndrome 2007-04-27T05:34:10+05:00 27 http://rett.tv/video/Snow-2007 Snow 2007 http://www.youtube.com/v/ZjlsE_YYV7c http://s3.amazonaws.com/magnifythumbs/SJ1657VVTQSYCQ4C.jpg <a href="http://rett.tv/video/Snow-2007"><img src="http://s3.amazonaws.com/magnifythumbs/SJ1657VVTQSYCQ4C.jpg" align="right" border="0"></a> caitlynsmomma wrote: We went out and played in the snow while it was snowing! 9.43 snow, rett, syndrome snow rett syndrome 2007-04-27T05:34:10+05:00 23 http://rett.tv/video/Edda-on-the-jungle-gym Edda on the jungle gym http://www.youtube.com/v/1BABkthrjwQ http://s3.amazonaws.com/magnifythumbs/PJ0FY462LP6SVLKX.jpg <a href="http://rett.tv/video/Edda-on-the-jungle-gym"><img src="http://s3.amazonaws.com/magnifythumbs/PJ0FY462LP6SVLKX.jpg" align="right" border="0"></a> dturnip1 wrote: Edda saying oh oh on the jungle gym rett, syndrome rett syndrome 2007-04-27T05:34:10+05:00 12 http://rett.tv/video/Head-shoulder-knees-and-toes Head shoulder knees and toes. http://www.youtube.com/v/TXBZibF6sz8 http://s3.amazonaws.com/magnifythumbs/WZCV8SVJZJG21CQY.jpg <a href="http://rett.tv/video/Head-shoulder-knees-and-toes"><img src="http://s3.amazonaws.com/magnifythumbs/WZCV8SVJZJG21CQY.jpg" align="right" border="0"></a> dturnip1 wrote: Jeremy and Edda singing at Choa Chu Kang Park. Rett, Syndrome Rett Syndrome 2007-04-27T05:34:09+05:00 26