Activity by Month
Action Tracker
2011-05-01
2011-04-22
2011-03-28
Greg
posted
Shark For A Cure Fundraiser
Visit the the 'Shark For A Cure' boutique at www.diamondshark.com Like SharkStores on Facebook at www.facebook.com
Rosa Angela Fabio presentation at Rett Syndrome Conference 2009
2011-03-19
Greg
posted
1 year-old Katri
This is Katri at 1 year age. She has Rett Syndrome. Her regression took place at 28 months.
Greg
posted
Sara Expresses Her Love
Our daughter has Rett Syndrome. As a baby, Sara could say momma, hey and ball. Then Rett syndrome stole her ability to speak and the use of her hands. Due to Rett, Sara has never stood, walked, crawled or even sat on her...
Greg
posted
Katri at 1 before regression
Katri at 1 year before her regression spell with RETT syndrome.
Greg
posted
Emma Standing
Emma has Rett Syndrome. It robs her of many skills. She is "beating" rett syndrome.
2011-03-01
Greg
posted
Moriah's Scoliosis Surgery
Living with Rett from a Divine Perspective "FAVOR FROM GOD ON THE OPERATING TABLE" Our beloved daughter Moriah was born with Rett Syndrome. Rett Syndrome is a neurological and developmental disorder that occurs mostly in...
Greg
posted
Vanessa's 18th Birthday
Vanessa was born on January 7, 1993, with a neurological disorder called Rett Syndrome, that robbed her of the wonderful life she could have had. Although her body is twisted and broken, she still smiles and laughs on a...
Greg
posted
Juliana using Tobii
Juliana is four years old and has Rett Syndrome. She has never been able to speak, but now through the use of amazing technology she is getting her voice!
Air date: Wednesday, June 17, 2009, 3:00:00 PM Timedisplayed is Eastern Time, Washington DC Local Category: Wednesday Afternoon Lectures Description: Rett syndrome is a postnatal developmental disorder characterized by...
Greg
posted
Lily's Rett Syndrome Memoir
Lily suffers from Rett Syndrome. This is a photo memoir of her life so far.
Canadian recording artist Dana Marie wrote "I'll Fly" for a little girl named Anna who has Rett Syndrome. She is donating half the proceeds from the download of this song to Girl Power 2 Cure for Rett Syndrome research....
Greg
posted
Audriana's Music Therapy
Audriana is working on new skills and making good progress in music therapy. She loves it very much!
Greg
posted
Rett Moms on The View
A really fun time on our visit to NYC for the taping of the The View segment on Rett Syndrome -- plus a photo shoot with amazing photographer Peter Hurley! Music by Michael Franti - Sound of Sunshine!
Abby was diagnosed with Rett Syndrome at two years of age. Learn more about Rett Syndrome at rettsyndrome.org
Greg
posted
Salome's New Toy
Salome was diagnosed with Rett syndrome. She discovered this strange plastic hedgehog toy
2011-02-25
honda1981
commented on
Annie Standing
She is such a beautiful young girl. My daughter is 2 years old , she has been diagnosed with atypical rett. This video gives me hope that she could stand because she has trunk balance issues...
2010-12-23
2010-11-07
pjauquet
commented on
IRSF 2010 Boston Fundraiser Film
Very nice video. Our Katri is 15 now, and I still cry from time to time when I watch others struggle as we do.
2010-11-03
Vanessa Peace
commented on
IRSF 2010 Boston Fundraiser Film
I am so grateful for you hope. Our Gabriella (22 months) was recently diagnosed with Rett Syndrome and we are joining the fight...
2010-11-01
On September 26, 2010 Dr. Aleksandra Djukic, Director of the Tri-State Rett Syndrome Center in the Bronx, NY hosted a quarterly Parent Gathering. Monica Coenraads, Rett Syndrome Research Trust Executive Director, presented...
Rett Syndrome video from the 2010 Festival of Food & Wine in Boston, MA. An annual fundraiser to benefit the International Rett Syndrome Foundation (IRSF). The film was created by Arnold Worldwide in Boston. To learn...
Greg
posted
Celebrate Jessica Martins
ffjdfancyfreeme wrote: Jessica Martins (Sept. 13, 1990 - Oct. 25, 2009) Please enjoy this video created to help celebrate the life of Jessica Martins -- a girl who lived with Rett Syndrome, enjoyed her life despite her...
Greg
posted
Caroline's Thank You
This is Caroline's way to thank all those who have helped her through life in so many ways... They are truely Angels! Thank You!
Greg
posted
Musique et stimulation
Stimulation de Mélanie,petite fille atteinte du "syndrome de Rett ",avec l'aide de la musique. Vidéo réalisée pour l'association fillerette - Pour le bonheur de Mélanie Adresse du site de l'association...
2010-09-11
Our 11 year old daughter Chelsea is afflicted with Rett Syndrome. This video is a slide show of her life so far, dovetailing into Monica's new organization, Rett Syndrome Research Trust, with a very singular goal: finding...
2010-08-22
RettMom
commented on
Abby Using Laurete Software
Thank you for sharing this video, it was very inspiring for me. Can you please tell me the name of that software program Abby is using? Also, what kind of "eye gaze equipment" are you getting? I am very interested in...
2010-08-11
As you can see, a video is a remarkable way to learn about those with Rett Syndrome. This site is the premier place on the Internet for such videos and we invite you to add your own. The process is simple. Just click on...
2010-08-10
teeem04
commented on
Melody Louise Ballard
From one Rett Mom to another, don't stop! Keep fighting! You're beautiful little girl IS amazing and so are you! Awesome video!
2010-06-19
2010-04-16
profexorgeek
posted
Nora Gets a Kiss
This is my daughter Nora, who has Rett Syndrome. She loves to stand up to stuff and shift her weight back and forth from her hands to her feet. Her little brother Coen really likes to play with her and she's a lot more...
2010-03-04
Rating: 8.19. Nice video showing the challenges those with Rett syndrome and their caregivers face every day.
2010-02-25
2009-08-31
THanna
reviewed
Waiting for Wings
Rating: 10. Your Sarah is so beautiful, I love her smile! Your son is a handsome young man as well. Great video! Our daughter has Rett too, and is named Sara.
2009-07-02
2009-05-09
First recording of original song "Silent Angel" at Lobos Lodge, Carmel, CA, May 2, 2009. Co-written by Rick Jamison and Kathy Schmidt
2009-05-07
Heather Poppleton
reviewed
Payback time
Rating: 10. Juliet Looks like she was definitely having fun riding around with her sister.
2009-04-18
MariaLuvzA7X wrote: I take you on a small visit to my home. This is just part of what goes on in my home. Vinnie steals food, Julie watches TV all day and...Elmo!!! **Julianna has Rett Syndrome and Vinnie has Autism
In Memory of Jennifer Lorraine Breaux . She fought a hard battle for 17 years with Rett Syndrome, and severe seizures. She was a our sweet angel, we love and miss her. Ronald and Chrissy Breaux Jennifer Loraine Breaux...
